This is my first concussion and it is devastating on the body & soul all together....Liar I been called in my search of a over a year for diagnosis! I got very angry and went on a one way ticket to hell....Luckily I stayed alive and free to get off that ticket to finally find one Dr that had a piece of compassion for me....

After I went into numerous Dr offices sounding Drunk (but was sober) and sent home empty handed, no hope, no direction, simply maybe some addictive prescription in hand that I would tear up and flush down toilet.....these Dr's basically were telling me to get back on my impulsive one way ticket being a threat to my soul.

Now in result from this I am emotionally a wreck amongst the long list! "But I suppose to make this positive change to get better" or to make therapies have a better result....

Well I think the hardest part is letting go of all these Dr's that helped me become a worse mess then just a straight diagnosis of a TBI/PCS!

The first thing I have learned in this new life of a month is "If it's not their problem, no one cares" Sad but true reality of life in any kind of situation!!

I am not trying to be a negative Nancy at all....I as well have had a horrible week with this "new"life....But at the end of the day I have to say thank you to all of this support group because we are all humans still and we all can relate to this complex syndrome....I do not know what I would do if I did not find you!

Rio I hope today goes better then before....and be strong to keep fighting with whatever result good or bad....I will be looking for your result post

Today I saw my usual family doctor as opposed to the one that I've been dealing with from the start, who was quite frankly, a cow. I was under the impression that I had to see the MD that first started the WCB claim. (I am not sure that's true but I get confused) I'm very glad I got to see my regular doctor today.

ANYWAY. My regular doctor remembers how I was versus how I appear now. She said very bluntly, "this is way over my head. You need to see a neurologist and you're off work until those reports come back. Having you get reassessed every 2 weeks is pointless pressure."

So... I guess that's the news. I believe she is referring me to a neurologist, from what I gather. I think that's perhaps progress? Not sure how to feel, I was so overloaded by the bright, crowded, noisy waiting room that I was burnt right out during the appointment. I'm relieved that I don't have to face working at a loud busy casino at least for a little while longer.

Although I want my life back, and my career, I also want to be allowed the best chances to heal to whatever degree is achievable.

That sounds like good news! I didn't realize you weren't seeing your normal physician. Having someone that knows you is obviously a big difference! I'll be interested to see how long it takes to see a neurologist. I wonder if workers comp will speed that up at all? You could have a few months of not having to worry about anything and just healing!!

At 1 month my doctor made an appointment with a neurologist and it was for 5 months later!!! I got on a cancellation list and was able to see her the next week... she said then that she doesn't normally see concussion patients until around 6 months so that's why the appt was so long away. She was useless at 1 month as she believed I was going to recover any day. Now it's been 6 1/2 months and I could maybe use her advice more now!

Let us know when you get your neurologist appt. In this case I think you'll be better off if it's a long way off, to give you time to heal worry free from WCB harassment, unless there's symptoms that you think you need her help with.

Thanks for the update. I hope you feel calmer now.

CC

Yay!! So good to have someone who has seen the before and after. That really can make all the difference in the world with brain injury. And so nice that you will have longer between assessments, too. Hope that will give you some time to relax and heal!

Good news about your doctor. Hope the neurologist adds something!

Keep on keeping on! It gets better....slowly, but it does!