Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-03-2013, 06:57 PM #1
claritan claritan is offline
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Default Neurologist said im stuck in a "Migraine state" now here comes Topamax

It was my follow up appointment with him today. He said he is 100% sure im going to make a full recovery soon. its been 11 months today. i am getting better but i feel plateaued

He said i first got a concussion, then had PCS and now says im stuck in a Migraine state that im going to need Topamax to get out of

He said he plans on keeping me on Topamax for 3 months or until i feel better and then taking me off


does this sound right to anyone? i mean it does make sense my biggest and most annoying and basically last symptoms i have are eye flashes, some light sensitivity, eye aches and dull headaches that screw with my equilibrium
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Old 01-03-2013, 08:25 PM #2
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Sounds similar to the thinking expressed by my current Neurologist.

I was injured June 2010 - first Neurologist began the Migraine therapy with Amitriptylline and we escalated dosing to 200 mg twice daily from January 2011 to May 2012 - still no true Headache relief, except minimal quelling.

New Neurologist ( the other retired) began decreasing dosing of Amitriptylline and then we began Topamax to current level of 125 mg. twice daily (now), and Headaches are steady at levels of 2-3/10 daily. I know that the PCS migraine is there, and my headaches are also mTBI chronic headaches - also agreed to by Neurologist. We are remaining at this level of medication.

We are dealing with all my other symptoms individually over time, and occurence, to see which can be addressed, and which will take time and interventional therapies.

I understand now that my concussion/ mTBI is going to be a process of life adjustment as well as finding therapies and new lifestyles to adjust to.
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Old 01-03-2013, 08:56 PM #3
Canadian Sig Canadian Sig is offline
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Topomax made me highly suicidal. It was a complete nightmare that I couldn't escape. I was very lucky that my wife, who had been deployed out of the area, returned and reconised that I was in a dark well and she and my Dr brought me back. Please just make sure there is a support system in place whenever you start a new med.
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"Thanks for this!" says:
Mark in Idaho (01-03-2013)
Old 01-03-2013, 10:33 PM #4
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Aye, Canadian Sig, everyone of these meds we use have some of those possible side effects.... and your thoughts are definitely what is needed in all our lives.

We definitely need close support systems at hand - family, friends, ready access to the docs, anything that will help respond to our needs, and bring us back if things get out of hand.

I just thank those above that my wife has been so understanding throughout this ordeal......and I have finally been able to relate these problems to my 2 adult children, who have both refreshed their contact numbers with my wife.
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Old 01-03-2013, 10:59 PM #5
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I've not heard of a "migraine state," but Topamax is the med that has worked best for me re: getting rid of and keeping rid of headaches. I did make lifestyle adjustments along with it, but it has done by far better for me than amitriptyline.
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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