Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-04-2013, 05:02 AM #1
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Book writing a book?

over the last few years I've been thinking about writing a book, a kinda "this is what you're up against so get ready" from perspective of multiple people with TBI/ PCS instead of doctors who haven't had first hand experience, I just figured if i had been given something like that 7yrs ago when it happened to me maybe I wouldn't of made so many mistakes and gone through the roller coaster ride without the seat belt on.... But being your typical brain injured personality i keep forgetting, procrastinating, losing focus etc lol
What do you guys think about a book like that??
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**KRISTARA**
Let the sun shine and everything will be fine

Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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Old 01-04-2013, 10:40 AM #2
Concussed Scientist Concussed Scientist is offline
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Default Write that book

Hi Kristara,

I agree that there should be advice given to those who have newly acquired a brain injury, to save them from years of perhaps doing the wrong thing and wasting their lives unnecessarily. If you have the energy to do it, then go ahead and write a book that would benefit others. That would be great. I feel that there should be books out there than have been written from a PCS sufferer's perspective. I have come across at least one of them. But your perspective and insights might be different. If you could get an advance for writing it from the publisher's that would be great.

How about making contact with some publishers and seeing if they were interested? They might give some indications about what they are likely to publish. It would be a good idea to have a chapter written that you could show them. Have you written anything before?

Best of luck with it.
CS

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Originally Posted by Kristara View Post
over the last few years I've been thinking about writing a book, a kinda "this is what you're up against so get ready" from perspective of multiple people with TBI/ PCS instead of doctors who haven't had first hand experience, I just figured if i had been given something like that 7yrs ago when it happened to me maybe I wouldn't of made so many mistakes and gone through the roller coaster ride without the seat belt on.... But being your typical brain injured personality i keep forgetting, procrastinating, losing focus etc lol
What do you guys think about a book like that??
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Old 01-04-2013, 10:47 AM #3
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Quote:
Originally Posted by Kristara View Post
being your typical brain injured personality i keep forgetting, procrastinating, losing focus etc lol
Good idea Kristara, I would read your book, that is so me! Should you decide to embark on your project, I would be most pleased to relate my story.
Best wishes,
Jamie
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Old 01-04-2013, 12:00 PM #4
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There are a number of books written by TBI survivors. There are also some good free online resources like the YouTube series, "You Look Great" by John Byler at
http://www.youtube.com/watch?v=x9Xso...ature=youtu.be
The TBI Survival Guide at www.tbiguide.com
and Lost and Found at
http://www.brainline.org/content/201...u-to-know.html

Many have recommended Brain Lash by Gail Denton. I think it has too much angst in the writing style and may impart too much stress.
There is the Diane Stoller book, she suffered a few brain bleeds.
There is 365 Tips written by a doctor who sustained a TBI at
http://www.amazon.com/Brain-Injury-S.../dp/1932603735

So, these are just the tip of the ice berg of TBI survivor books.
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Old 01-05-2013, 05:54 PM #5
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oh ok cool, i never looked to see if there was anything like that, now ill have to check those out
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**KRISTARA**
Let the sun shine and everything will be fine

Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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Old 01-05-2013, 06:36 PM #6
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I like this idea Perhaps write it so it can be read in bit-sized chunks? I remember what it was like to have nearly 0 tolerance for extended concentration and thought-processing. Perhaps a PCS journal/calendar thing with a blurb for the day, maybe a bit of PCS info/testimony as well as some encouraging response to it?

Like: "A common part of PCS is forgetfulness, including forgetting that you have forgotten or even not realizing the omission in the first place! However over time, one can learn to retrain how they remember and discover new ways to effectively juggle information. Be forgiving, you don't need to rake yourself over the coals for not being perfect. Instead resolve to give yourself grace to keep trying and celebrate the face that you tried, regardless of whether you reached your goal or not."
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Old 01-05-2013, 11:02 PM #7
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hmmm maybe audio book lol
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**KRISTARA**
Let the sun shine and everything will be fine

Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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