Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-05-2013, 02:55 AM #1
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Default Relapse after being "fine"?

Hi everybody (long time no see!)

I have a question about relapsing. I first got a concussion at the beginning of February 2012 (some of you may remember me from my visits to this board around that time.) I was doing a fairly good job of recovering until around August or September (?) when I got a second concussion (talented, I know.) It didn't seem nearly as bad as the first and I thought I was fairly recovered within a few weeks.

Recently, however, I was going back over some work I had done during 2012 and as I reviewed it, I realized that even during months when I was "recovered", work records reflected huge gaps in my memory and reasoning (oh hindsight...) Since then, I've tried to be more aware of how I'm doing concerning memory in particular and I've been noticing areas where I'm still struggling. Now today/yesterday (the 4th) I've noticed bigger problems with memory, simple math skills, mental fuzziness, etc. That head "aura" thing came back too, where I feel like there's a cloud around my head that puts pressure on my brain and keeps me from thinking. I've also felt emotionally brittle.

Anyone hear of PCS symptoms "hiding" then popping up noticeably months later for no apparent reason?
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Old 01-05-2013, 08:30 AM #2
SmilinEyesMs305 SmilinEyesMs305 is offline
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Couple of ideas here:

1) Have you recently experienced a stressful or emotional event?

2) Had the flu or been sick?

3) Experienced stress over the holidays?

4) Gotten away from eating right/taking vitamins?

5) Not drinking enough water?


Any of these can really take a toll on your brain and cause you to relapse. It's scary, I know. But go back to whatever worked for you the first time. REST is key to this!
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Old 01-05-2013, 05:05 PM #3
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I have been stressed but not in a way I would think is outside the normal level of craziness? Haven't been sick, the holidays were fairly low-keyed this year, and I'm diligent about my daily water consumption. My eating habits have been shifting some but I would say probably in a better direction than they have been? I've struggled with anorexic tendencies off and on and I was fighting a flare up in recent weeks so I've actually been eating a bit *more* than usual and being more relaxed about eating choices instead of being hyper-"healthy" (read: eating more like a normal person) and feeling better.

My version of "normal" in terms of stress involves quite of few intense stressors that are just fairly constant in my life, been like that before the concussions and have resumed if not ramped up since then, though I did try to take downtime to recover especially after that first one that was so intense. I guess I'm just puzzled that I've been "handling" all that stress until suddenly it seems like out of nowhere I've reset to months back?
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Old 01-05-2013, 05:14 PM #4
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That doesn't sound abnormal to me. I've heard of cases in which symptoms go away for awhile and then return later for no apparent reason. My own case is a little different: I suffered a severe relapse from computer work that left me far worse off than the initial injury. But my understanding is that it is not unusual for people to experience minor setbacks after feeling fine for months. As long as you take it easy during these setbacks and don't push yourself, it's probably nothing to be alarmed about.

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Originally Posted by v-lo View Post
I have been stressed but not in a way I would think is outside the normal level of craziness? Haven't been sick, the holidays were fairly low-keyed this year, and I'm diligent about my daily water consumption. My eating habits have been shifting some but I would say probably in a better direction than they have been? I've struggled with anorexic tendencies off and on and I was fighting a flare up in recent weeks so I've actually been eating a bit *more* than usual and being more relaxed about eating choices instead of being hyper-"healthy" (read: eating more like a normal person) and feeling better.

My version of "normal" in terms of stress involves quite of few intense stressors that are just fairly constant in my life, been like that before the concussions and have resumed if not ramped up since then, though I did try to take downtime to recover especially after that first one that was so intense. I guess I'm just puzzled that I've been "handling" all that stress until suddenly it seems like out of nowhere I've reset to months back?
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 01-05-2013, 05:28 PM #5
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Thank you for sharing! It's interesting that you mention computer work setting you off. I'm a freelance graphic designer so my work life plus extra I do as donation at my church is spent on a computer. These past few months have been filled with lots of fast-paced design projects. Maybe it's not that I've done too much overall but I've done too much of one thing? Or maybe like you said, there isn't a reason to be found other than "you hit your head and you're still recovering!"
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Old 01-05-2013, 11:11 PM #6
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absolutely! I was practically symptom free all of 2009, then boom mid-2010 i was hospitalized many times, for random stuff like hypersomnia, couldnt sleep for 6 days finally had to be IV medicated to sleep, a few for insane anxiety attacks, a few more for excruciating headaches, once for mood instability. Symptoms do go away at times but there almost certain to return at some point unfortunately and they usually hit pretty hard on their rebound. Certain things can trigger it like stress but other times its brought on for no particular reason.
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Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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