Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-08-2013, 12:44 AM #41
Healinghopefull Healinghopefull is offline
New Member
 
Join Date: Nov 2012
Location: California
Posts: 4
10 yr Member
Healinghopefull Healinghopefull is offline
New Member
 
Join Date: Nov 2012
Location: California
Posts: 4
10 yr Member
Default maybe this will help...

Quote:
Originally Posted by tugboat View Post
New to the forum. Still working of finding my way around. I have a TBI from a blast injury-explosion. Haven't had much help on getting the proper info on supplements and dosage. I wrote some things down from earlier posts, but would someone help me thru them again please. I get confused by the info on the posts. Or point me to where I can get good information. Thanks for the help.
I happened to see your post today - so sorry about what happened to you.
I had similar problems with supplements after tbi and I felt really confused a lot since there's so much info out there I ended up not doing anything about it for a while.
*admin edit*hope you find what you need and get lots of rest.

Last edited by Chemar; 07-08-2013 at 06:09 AM. Reason: No links allowed for new members and commercial links never allowed
Healinghopefull is offline   Reply With QuoteReply With Quote

advertisement
Old 07-29-2013, 03:59 PM #42
Lkas4 Lkas4 is offline
Junior Member
 
Join Date: Jul 2013
Location: Midwest, USA
Posts: 12
10 yr Member
Lkas4 Lkas4 is offline
Junior Member
 
Join Date: Jul 2013
Location: Midwest, USA
Posts: 12
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
Here is the nutritional regimen I have followed for decades. It was prescribed for me by a doctor back in 1982. I have fallen of the wagon from time to time. Each time, my wife notices a difference and gets me back on the regimen. I have added a few things over the years.

The injured brain needs to do two things, First, it needs to cleanse itself of the toxic remnants of the injury. Second, it needs to regain strength (heal) in the damaged areas. B vitamins are the most important. I suggest:

B-12 (500 to 1000 mcgs daily)
a B-50 complex, for all the other B's so you get a good balance of B's
a high potency multi-vitamin like GNC Mega Women?Men. Centrum and One a Day are too weak.
Some extra anti-oxidants, Vit C and Vit E
D3, plenty of this, 1000 to 5000 iu's
Omega 3, 6, 9 fish oil
Calcium with magnesium

I also have added
Curcumin (pricy but worth it) 950 mgs daily This is a Turmeric extract
DHEA, 25 mgs , a hormone that helps the body balance the other hormones, If your skin gets oily try 1/2 of a 25 mgs tablet
a Costco High Energy multipack (7 pieces) in place of the multi-vitamin

I am currently trying CDC Choline to review it for the manufacturer. It appears to be helping with less foggy brain but after only three days, this could be just a coincidence. I'll post a better review of CDC Choline later.


good meat protein for the amino acids, pork is the best or for vegetarians, there is a seaweed based spirulina extract that sounds pretty good. Most vegetarians do not like to eat the seaweed directly.
a good amino acid supplement including essential fatty acid and BCAA (broken chain amino acid). Vegetarian diets are usually deficient in these so they need supplements. Spirulina is suggested as comprehensive enough.
avoid trans fats.

No caffeine, alcohol, MSG, artificial sweeteners (aspartame, Nutrasweet, Equal, Splenda, sucralose), high fructose corn sweetener, and only moderate natural sugar.

We should also avoid aluminum compounds. The most common aluminum is found in antiperspirants (aluminum chlorhydrate). They should be avoided.

My regimen based on the above costs about $1.30 to $1.50 per day including some non-brain supplements (arthritis).

I was started on the brain basics by a psychiatrist 30 years ago as a way to treat PCS depression and avoid medication. It was very effective. I am tempted to replace my paroxetine with 5-HTP or L-Tryptophan but have not been able to find any conversion factors.

The B-12 and the folic acid in the B-50 is important for repair of the myelin sheath that protects axon and dendrite fibers. The rest are for improving brain metabolism.

This regimen needs to be a long term or lifetime discipline. It take 4 to 8 weeks to see improvements.

After using the regimen for a month or so, it is good to get a blood test for the D3, B-12 and folate to make sure your blood levels are adequate. B-12 should be about 1000 pcgs/mL and folate at about 20 or higher.


There are three valuable resources for you to check out.

The TBI Survival Guide at www.tbiguide.com.
Print it out (84 pages)
The TBI Lost and Found List at
http://www.brainline.org/content/201...u-to-know.html
and You Look Great on YouTube at
http://www.youtube.com/watch?v=x9Xso...ature=youtu.be
The YouTube is a 6 part series that takes about an hour total.

Share these with your family and/or friends. And, try to find a TBI support group to attend with your family. They can be a great source of support and understanding.

Home made Ice pack

My recipe for a flexible/crushable ice pack is simple. One part rubbing alcohol with three parts water in a zip lock baggies. Freeze them, three is good, so you can alternate them and always have a frozen one. Ice frequently for 15 minutes on and 30 minutes off and repeat. If you get any stiffness of head ache, get the ice pack out. The upper neck easily gets inflamed cause symptoms. This should make a difference.

Thank you for this info Mark in Idaho...now I know what a sticky is!
Lkas4 is offline   Reply With QuoteReply With Quote
Old 09-02-2013, 10:45 AM #43
GirlFromNorway GirlFromNorway is offline
Junior Member
 
Join Date: May 2013
Posts: 33
10 yr Member
GirlFromNorway GirlFromNorway is offline
Junior Member
 
Join Date: May 2013
Posts: 33
10 yr Member
Default Study shows the following supplements can help concussion patients

See:

http://www.youtube.com/watch?v=WfAv08feYlo

and

http://www.amenclinics.com/dr-amen/l...althy-protocol
GirlFromNorway is offline   Reply With QuoteReply With Quote
Old 09-02-2013, 10:47 AM #44
GirlFromNorway GirlFromNorway is offline
Junior Member
 
Join Date: May 2013
Posts: 33
10 yr Member
GirlFromNorway GirlFromNorway is offline
Junior Member
 
Join Date: May 2013
Posts: 33
10 yr Member
Default Here is a link to the study

http://narramoreinstitute.org/wp-con...D-3-2011-1.pdf
GirlFromNorway is offline   Reply With QuoteReply With Quote
Old 10-14-2013, 04:19 AM #45
goaliemom goaliemom is offline
New Member
 
Join Date: Oct 2013
Posts: 3
10 yr Member
goaliemom goaliemom is offline
New Member
 
Join Date: Oct 2013
Posts: 3
10 yr Member
Default TBI, Brain Fatigue, Migraines, Dizziness; Functional Manual Therapy?

Thank you so much for generous post about vitamins and supplements regime. I will have a hard time convincing my poor 25 year old son to get on this bandwagon as he is still in denial after 10 months and is still hoping for some quick miracle fix. It is tearing my heart apart.

My son's life suddenly changed 10 excruciating months ago. I'd so much prefer seeing my own life change like this. I know I should be grateful that nothing shows up on his MRI and CATscan, that the vestibular and audiological testing hasn't shown anything - but he isn't well!!!!

My son has extreme brain fatigue (feels like his brain is fried) and glassy eyes after just a couple of hours of working on the computer; migraines; dizziness; and more. It's shocking to learn how little the mainstream medical community knows about all of this. We have been to so many doctors, here in NYC where we live. Searching now for a neck doctor to address the extreme tension in there. But would prefer a doctor or team of doctors who understand the interconnections between all the affected body parts. Seems to me treating this complex condition piecemeal makes no sense.

We will try something new tomorrow: Functional Manual Therapy. Has anybody heard of it? I know now that there is also ostheopathy, myofascial release therapy and cranio-sacral therapy - all are new to us, scary, expensive, probably not covered by our insurance. Seems like this path is one of trial and error, running from doctor to doctor, waiting and wondering. Very very tough...But thank you all for being there so I don't feel so terribly alone.
goaliemom is offline   Reply With QuoteReply With Quote
Old 10-14-2013, 12:16 PM #46
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,421
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,421
15 yr Member
Default An update of my vitamin and supplement regimen

Updated and edited Oct. 14, 2013

Here is the nutritional regimen I have followed for decades. It was prescribed for me by a doctor back in 1982. I have fallen off the wagon from time to time. Each time, my wife notices a difference and gets me back on the regimen. I have added a few things over the years.

The injured brain needs to do two things, First, it needs to cleanse itself of the toxic remnants of the injury. Second, it needs to regain strength (heal) in the damaged areas. B vitamins are the most important. I suggest:

B-12 (500 to 1000 mcgs daily)
a B-50 complex, for all the other B's so you get a good balance of B's
a high potency multi-vitamin like GNC Mega Women/Men. Centrum and One a Day are too weak.
Niacin, 200 to 500 mgs
Some extra anti-oxidants, Vit C and Vit E
D3, plenty of this, 1000 to 5000 iu's
Omega 3 fish oil, with a proper balance of Omega 6 and 9
Calcium with magnesium, 500 mgs per day


I also have added
Curcumin (pricy but worth it) 950 mgs daily This is a Turmeric extract
DHEA, 25 mgs , a hormone that helps the body balance the other hormones, If your skin gets oily try 1/2 of a 25 mgs tablet. I only take a half of a tablet.
a Costco High Energy multipack (7 pieces) in place of the multi-vitamin

I have recently added:
Cayenne capsules
Resveratrol, it is supposed to help the Omega 3 fish oil work better
Garlic capsules for cholesterol


<I am currently trying CDC Choline to review it for the manufacturer. It appears to be helping with less foggy brain but after only three days, this could be just a coincidence. I'll post a better review of CDC Choline later.>

I finished the bottle of CDC Choline and did not justify its continued expense. Others may have a different experience.


Good meat protein for the amino acids, pork is the best.
Or for vegetarians, there is a seaweed based spirulina extract that sounds pretty good. Most vegetarians do not like to eat the seaweed directly. There are some concerns with spirulina according to another NT poster. Check out MrsD's comments. Her comments about B-12 are good.
A good amino acid supplement including essential fatty acids and BCAA's (broken or branched chain amino acids).
Vegetarian diets are usually deficient in these so they need supplements. Spirulina is suggested as comprehensive enough .
avoid trans fats.

No caffeine, alcohol, MSG, artificial sweeteners (aspartame, Nutrasweet, Equal, Splenda, sucralose), high fructose corn sweetener, and only moderate natural sugar. Some studies suggest a single serving of caffeine or alcohol per day is acceptable for those who tolerate it.

We should also avoid aluminum compounds. The most common aluminum is found in antiperspirants (aluminum chlorhydrate) and some antacids. They should be avoided. Learn to read labels before putting it on or in your body.

My regimen based on the above costs about $1.30 to $1.50 per day including some non-brain supplements (arthritis).

I was started on the brain basics by a psychiatrist 30 years ago as a way to treat PCS depression and avoid medication. It was very effective. I am tempted to replace my paroxetine with 5-HTP or L-Tryptophan but have not been able to find any conversion factors.

The B-12 and the folic acid in the B-50 is important for repair of the myelin sheath that protects axon and dendrite fibers. The rest are for improving brain metabolism.

This regimen needs to be a long term or lifetime discipline. It take 4 to 8 weeks to see improvements.

After using the regimen for a month or so, it is good to get a blood test for the D3, B-12 and folate to make sure your blood levels are adequate. B-12 should be about 1000 pcgs/mL and folate at about 20 or higher.


There are three valuable resources for you to check out.

The TBI Survival Guide at www.tbiguide.com.
Print it out (84 pages)

You Look Great on YouTube at
https://www.youtube.com/watch?v=x9Xso4qGdlI
The YouTube is a 6 part series that takes about an hour total.

The brain line 'TBI Lost and Found'
http://www.brainline.org/content/201...u-to-know.html

Share these with your family and/or friends. And, try to find a TBI support group to attend with your family. They can be a great source of support and understanding.

For good legal information about concussions and mTBi's / TBI/s for those entering litigation, check out:
www.tbilaw.com and
www.subtlebraininjury.com.
Attorney Gordon Johnson has very good information about diagnostic testing and such.

Home made Ice pack

My recipe for a flexible/crushable ice pack is simple. One part rubbing alcohol with three parts water in a zip lock baggies. Freeze them, three is good, so you can alternate them and always have a frozen one. Wrap the ice pack in a towel to make it more tolerable. Ice frequently for 15 minutes on and 30 minutes off and repeat. If you get any stiffness or head ache, get the ice pack out. The upper neck easily gets inflamed causing symptoms like head aches, etc. This should make a difference.

edit 02/28/2015---- new updated post appears further down on this thread --post #101:
http://neurotalk.psychcentral.com/post1106982-101.html
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10

Last edited by Lara; 02-28-2015 at 08:07 PM. Reason: fixed broken links
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dagma1 (10-28-2013), postconcussion (10-15-2013), thorx89 (11-15-2014)
Old 10-18-2013, 08:51 AM #47
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
Default

Goaliemom,

I went on the vitamin regimen as recommended by Mark and it has improved my day-to-day life in a most positive way.

You have come to a great forum here at NeuroTalk for support and education. I am no stranger to brain fatigue and brain fog and I fully endorse the vitamin strategy because it has worked wonders for me. I am more able to concentrate and stay on task and my memory seems to be improving too. I've also been improving my diet, good nutrition is very important.

Jamie
__________________
Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea
thedude58 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Afrochick73 (05-06-2014), dagma1 (10-28-2013), Mark in Idaho (10-18-2013)
Old 10-30-2013, 03:55 PM #48
Sam2021 Sam2021 is offline
Junior Member
 
Join Date: Oct 2013
Posts: 10
10 yr Member
Sam2021 Sam2021 is offline
Junior Member
 
Join Date: Oct 2013
Posts: 10
10 yr Member
Default

New to the site, been browsing around want to post my supplement/vitamin regiment which I've been on daily for a while now, (Even before my injury)

-Innate Mens One Daily (Multi)
-Nordic Naturals ProOmega
-Pure encapsulations Vitamin D3 5000iu
-Klean Probiotic
-Spring Valley Magnesium w/ Chelated Zinc
-Natrol Melatonin 5mg (At nighttime)

Anything I should add? My multi already contains B-12's, should I take more?

(It has been 4 weeks post injury/concussion)

Thanks for your help!
Sam2021 is offline   Reply With QuoteReply With Quote
Old 10-30-2013, 04:05 PM #49
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I have a quick observation:

Magnesium in OXIDE form is still around to purchase, and also quite cheap. BUT ...it has been found to not be absorbed much at all. You need a better form such as SlowMag, or a chelated type ...
carbonate
citrate
gluconate
glycinate
lactate
Avoid aspartate type as it stimulates pain receptors (NMDA).

Here is a good website that explains magnesium, and offers food
choices:
http://www.slowmag.com/

Magnesium oxide today is used mostly as a laxative....as in Phillips Caplets.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (01-07-2023)
Old 10-30-2013, 04:11 PM #50
Sam2021 Sam2021 is offline
Junior Member
 
Join Date: Oct 2013
Posts: 10
10 yr Member
Sam2021 Sam2021 is offline
Junior Member
 
Join Date: Oct 2013
Posts: 10
10 yr Member
Default

Thanks for your reply,

I see the form I am taking now is in the (oxide) form. Guess I will look for a new one. Is this particular brand also considered the aspartate type too?

Which one would you recommend specifically?
Sam2021 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Vitamin Regimen thedude58 Traumatic Brain Injury and Post Concussion Syndrome 0 03-25-2013 11:02 AM
Vitamin Supplements love3 Traumatic Brain Injury and Post Concussion Syndrome 13 01-04-2013 04:36 PM
when to take vitamin supplements, fish oil, etc.. podcast Traumatic Brain Injury and Post Concussion Syndrome 2 12-25-2011 08:18 PM
Do Vitamin Supplements Really Work? SallyC Multiple Sclerosis 27 06-10-2011 01:44 PM
NEW ...DNA testing for vitamin supplements... mrsD Peripheral Neuropathy 2 05-12-2008 11:05 AM


All times are GMT -5. The time now is 06:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.