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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-02-2015, 12:10 PM | #1 | |||
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Wisest Elder Ever
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Are you taking a complex with 500mg of each B in it?
Can you put the name of it on here so I can look it up? Who makes it? One has to be careful with some B-complexes.... too much B6 can be harmful to some people.
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"Thanks for this!" says: | Lara (01-07-2023) |
05-02-2015, 02:05 PM | #2 | ||
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Legendary
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As mrsD said, what matters is what is on the back of the label. It will list the B vitamins and the amount of those B vitamins. A Super B often has non-B vitamins also. The "supports cellular energy production and antioxidant support" statement is meaningless. It may list the ingredients as thiamine, niacinamide, etc. rather than by the B vitamin term.
The specific brand will help us find the ingredients. |
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08-15-2016, 12:39 AM | #3 | ||
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Junior Member
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How do you continue going after 30 years of pcs. Do you still believe that your symptoms will go away. I'm at 10 monthes and am it wits end with the stress, frustration, and hopelessness coming from the pain itself and effect on my life. You must have incredible strength.
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09-09-2016, 01:30 PM | #4 | ||
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Junior Member
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Quote:
I am with ya here. 7 months in. Getting worse. What happened to cause your PCS? I take a lot of supps, too. A lot that Mark takes. Turmeric is the best for me. It helps a lot. Also I eat tons of sardines and green drinks (not fruit, just the greens). Vit C, too. Lots and lots. Vit D, Calcium, mineral drops really help, Magnesium is great. Sleep stuff is melatonin but it stops after a few days so I rotate. ALso Theanine and SLeep mixes you can buy. Essiac tea is great. My Dr said exercise is one the BEST things you can do. I cannot read too much anymore which sucks because I was an academic. Now I am stupid or feel that way. My personality is different. I hate hated hated country music and only listened to classical. NOW? I find myself laughing to country music. It makes me feel a weird sensation that I forgot existed. Oh, wait, that is a scrap of happiness. Hope you hang in with us. I am trying, too. |
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10-12-2016, 06:30 PM | #5 | ||
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Member
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I saw a psychiatrist and he recommended the following for me:
Magnesium 400mg/day Vitamin B2 400mg/day Vitamin D 2000 IU Others Omega 3s Please let me know if this is an ok regimen. Also, another poster mentioned that my folic acid level might need as boost, as I took a multivitamin that had a large dose of folic acid in the past and it may have helped. Can I safely add that to this regimen? Thanks,
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22. |
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10-12-2016, 08:19 PM | #6 | ||
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Legendary
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If you add a B-50 Complex, folic acid will be included along with a full balance of all the Bs. 1000 mcgs of B-12 is very important.
Mag citrate or theonate is better than mag oxide ( a laxative that often goes right through you)
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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05-04-2018, 11:18 PM | #7 | ||
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Junior Member
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Very confused on the vitamins. My son is 14 months in from his TBI and 4 craniotomies. I bought the Mega mens, D3, N12, B50, C, E, to start but now read it can cause diarea?
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05-05-2018, 11:01 AM | #8 | ||
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Legendary
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Where did you read about diarrhea from vitamins?
High dose vitamin C can cause diarrhea but that is usually 4 to 6 grams, 4000 to 6000 mgs or more, per day. 1000 mgs a day or even twice a day should not be a problem. This is referred to as bowel tolerance. If the bowels get loose, one just reduces the dose. The regimen should not cause diarrhea. Magnesium oxide is a laxative for some. The other forms of magnesium are better. I get mine from VitaCost.com. Just placed an order. Start an account and get on the emailing list and they will notify you of discounts. Start an order but leave it uncompleted over-night and they will email you a code for a 10% discount to finish ordering. The only thing I do not get from VitaCost is Vit E and NSAIDS. Walgreens has good values for those.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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05-22-2018, 12:58 PM | #9 | ||
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Junior Member
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My mini bio
----------- I was a college dropout, I got a job at a factory. I hit my head on long 12 inch metal spikes that hung down from the ceiling in the walkin freezer. I woke up on the floor, no one around. I could barely walk,talk,think. Everybody asked me what was wrong? I couldn't remember exactly. I went home, then next morning I couldn't stand for a few hours, everything seemed to move three feet to right on me. I phoned a local medical organization and asked for a family doctor. They assigned me an ear,nose and throat doctor ENT. (I have since been told by College of Physicians that he could NOT diagnose a head injury stroke, it wasn't his fault) The ENT looked in my ear and insisted my problem was ear infection.(I never even mentioned my ears, I had no ear pain or discharge) I was in such a daze I simply couldn't think straight. I assumed the doctor was right. For almost five months I went exactly every 7 days to this doctor. He would have kept me going back every 7 days forever, but my brother said to ask for specialist. I was sent to eye specialist then ear specialist, but no problem was found. So they concluded I must have psychiatric problems. The factory was forced to lay me off, since I could not function. I didn't understand why I was dizzy 24 hours a day 7 days a week permanently now. I and other family members assumed I was just mentally lazy and now stupid. I could no longer do simple math or read and lost 75 percent of my abilities. I also coincidently had severe digestion, metabolisim problems, running fever,weak immune system, unable to keep muscle on my body. Out of neccesity I created workbooks of drills. Drills for reading comprehension,math, writing, reading out loud. Four hours every night for seven years. I relearned some things but have never got back most of what I lost. Not to mention severe immune system weakness and damaged digestive system, autoimmune disorders. Autoimmune disorders are mostly,mostly misdiagnosed as depression. But depression is merely a symptom of autoimmune disease. Why? basically I believe for two reasons one it generally weakens the immune system, the other is that the Gut and digestion system are linked to the brain. Affect one and you affect the other. 20 years later I was working part time as cleaner in Hospital. I started to describe my medical history to a nurse. Immediately she asked"did you talk and walk like a drunk?" I said "yes". Did you hit your head at any time? I said "yes, how did you know that?" She goes"you just described a stroke and probably brain damage" I found another nurse, then another, then another, eight nurses all said the same thing. I said"you mean to tell me, it wasn't an ear infection?" Then they said"what kind of doctor would say that?" I kind of had a mental breakdown and went into state of shock and deep depression. I started to go to psychiatric therapy. I was in and out from there for about 5 years with many sessions. I tried 17 different anti depressants but ended up in emergency 35 times? They almost literally killed me. The psychiatrists couldn't understand how someone taking only 1/4 of the smallest pill could react like I had taken 100 times the dosage? I've had maybe 1000 autoimmune flareups over the last 30 years(which almost killed me). But according to a rheumatologist and two G.P.'s high fever and arthritis are merely sypmptoms of depression? The autoimmune flareups seemed to almost kill me each time. I submitted that I had a metabolisim problem that magnified the negative of affects of medication and unless that gets addressed first that I could not take meds. The psychiatrists literally laughed. I said I believe there are thousands of causes of depression, like there are thousands of bricks in a wall. I said I believe my problem is partly due to a physiological problem. The doctors disagreed. ---- 25 years ago I convinced a doctor to give me protein metabolisim test. Since I couldn't keep any muscle on my body and my digestion and immune system was so bad. The doctor got the results and literally said "its impossible, no one has results this bad, you'd be really really sick if this was true, just ignore the test results and pretend you never took this test and go home" So I did. Thru trial and error and neccessity I experimented and tried various supplements and herbs and nutrition. I couldn't understand how my head injury resulted in severe digestion and bowel problems. I found various herbs and supplements and foods to help a lot. I shared this information with countless doctors, neurologists, directors of brain damage support groups etc etc. They all said "its all theoretical" I disagreed. 18 years ago, I discovered NAG, which forces the Gut to secrete mucous, temporarily alleviating Leaky Gut or perforated bowels. It not only boosted my immune system but for some reason boosted my Cognitive abilities!!! Why would something that prevents leaky gut also have a major cognitive boost? I looked it up on the internet but found nothing. I later tried Carnosine, which affects the bowels as an antinflamatory but also the brain. Its a wonder supplement. Currently I take Glucosamine(cheaper than NAG) and Natto. I cannot afford Carnosine, but its a super duper wonder cure! I found a dollar store that sells a multimineral supplement that contains zinc plus copper(since you need both) I take Zinc 3 times a day now and it also helps leaky gut a lot! I also take about 8000mg astragalus(most powerful immune booster) Could not substances like glucosamine or NAG combined with Carnosine/zince/copper be used to treat other Cognitive problems? Like Autoimmune diseases? Autisim, Brain Damage, Encephalitis, Turrettes syndrome etc etc??? Curiously a few months ago I discovered this article. This person seems to have learned many things I also was discovering? Brain Injury Rehabilitation through Nutrition and Supplementation - Learn how to Feed a Brain! ** |
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05-23-2018, 02:20 PM | #10 | ||
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Junior Member
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*** I forgot to mention. Since some brain injury has leaky gut syndrome,
I've personally noticed my metabolisim results in either poor or hyper absorption. For instance medications I usually cannot take, its like I've taken 100 times more than normal. Also my multimineral supplement contains iodine. Iodine has a cognitive affect which is good but for me and my leaky gut, after taking 1100mcg for a couple of weeks I get Hyper Hyper anxiety!!!! I noticed a lot of people talking about B6. 30 years ago I tried taking it,well the 3 different types of B6 that were available. Because of my leaky gut I believe had I had strange reactions. I tried several other companies, no additives etc, all same reaction. My arms felt like the nerves in them were becoming petrified or solid. This shouldn't happen to most people, except I believe it was my leaky gut resulting in strange absorption. Many strange absorption affects from many substances, Ginkgo resulted in muscles spams in my eyes and everything tasted like salt. Last edited by Chemar; 05-23-2018 at 02:38 PM. Reason: multiple posts merged |
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