Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-11-2013, 07:47 AM #1
Mwiseman Mwiseman is offline
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Default Brain Fog and Dizzyness - Advise please.

Hi All,

I would appreciate some advise and guidance from you all regarding my remaining lingering symptoms.

As some of you already may know I put my head through the back of a car window whilst on a cycle ride, this was in May 2012

I have improved greatly since then, ( terrible nausia, and my neck whiplash were my main issues ) but my persistent symptoms are :-

1) Dizziness
2) Brain fog
3) Odd twitching and muscle movement in my lower legs - mostly before I go to sleep.

I find that exercise makes the symptoms worse, even a brisk walk. I also notice that if I have to think too hard about something or work something out my brain fog comes on.

I work full time, and I cycle into work each day. So I'm "ok" but still don’t feel great to be honest.

Oddly enough, my symptoms get a lot better in the later part of the day. When I wake up I feel ok, but about an hour or so later the symptoms come on.

I eat well ( ish ! ) I don’t drink any alcohol, I take vitamin supplements daily, B100 complex, B12, Omega fish oil, D, Multivit. I keep very well hydrated, I don’t really drink coffee ( although I love it ) I have a couple of cups at the weekend.

If I rest it gets better, but not fully…. I'm guessing there is no magic wand, and time is the greatest healer ? Still early days ?

Would appreciate any advice or tips on how people cure or manage these symptoms.

Thanks in advance for reading my post, good health to you all.
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Old 01-11-2013, 08:07 AM #2
SmilinEyesMs305 SmilinEyesMs305 is offline
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That's wonderful that you are able to do so much still (working, biking etc.)

Did you take anytime off when you had your accident? I ask because the twitching you experience especially before bed is something I went through and still do when I'm exhausted. My doctor told me it was normal for someone who had a brain injury, but that it was a sign my nervous system was still healing and that I needed to rest as much as possible. Is there anyway you can cut back somewhere and get more rest?

Dizzieness is something I dealt with a lot when I had my accident. I went to vestibular rehab to work on fixing this problem. Its like PT for your balance systems. It really made a huge difference for me. Also, have you had your eyes checked? Many people develop vision issues after an accident like yours. For example your eyes may be sending images to your brain that are hard to match up because your eyes at working together. This could also explain the dizziness.

Brain fog.... yeahhhhh. This one still gets me. I see a rehab doctor who has added medication to help me combat this, (ADHD drug), but it only works when the pill is in my system, so I have to do most of my thinking during this time period, (ex school work, decision making, etc) while I'm on it.


However, most importantly what you are describing is normal. They all will improve if you find more time for your brain to rest
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Old 01-11-2013, 02:14 PM #3
Mwiseman Mwiseman is offline
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Thanks so much for replying ! Smilineyes.

Yes, I am very lucky too be able to do those things. Believe you me, I wasn't for about a month after the accident. I felt dreadful.

Yes I took 6 weeks off in total, athough I did try to go back after two weeks ! Clearly I wasn't ready. To be honest I would love to take more time off to rest, I'll see how things go.

Good idea about cutting back on things, I have had a few very busy and demanding weeks, seval bits of DIY to do and had to work on the car etc.

I will. Ok into vestibular rehab, thanks for the tip.

Could I trouble you to ask for the name of the tablet the dr has given you for the brain fog ? Don't feel obliged if you don't want to share with the world what medication you are on ! Totally understand

So glad and re- assured that the leg twitching is normal. I have told my dr and he didn't seem concerned. My eye twitched like hell shortly after my accident, that has totally stopped now.

Well thanks again for your reply and I hope you feel better soon, hang in there, things will get better for you......




Quote:
Originally Posted by SmilinEyesMs305 View Post
That's wonderful that you are able to do so much still (working, biking etc.)

Did you take anytime off when you had your accident? I ask because the twitching you experience especially before bed is something I went through and still do when I'm exhausted. My doctor told me it was normal for someone who had a brain injury, but that it was a sign my nervous system was still healing and that I needed to rest as much as possible. Is there anyway you can cut back somewhere and get more rest?

Dizzieness is something I dealt with a lot when I had my accident. I went to vestibular rehab to work on fixing this problem. Its like PT for your balance systems. It really made a huge difference for me. Also, have you had your eyes checked? Many people develop vision issues after an accident like yours. For example your eyes may be sending images to your brain that are hard to match up because your eyes at working together. This could also explain the dizziness.

Brain fog.... yeahhhhh. This one still gets me. I see a rehab doctor who has added medication to help me combat this, (ADHD drug), but it only works when the pill is in my system, so I have to do most of my thinking during this time period, (ex school work, decision making, etc) while I'm on it.


However, most importantly what you are describing is normal. They all will improve if you find more time for your brain to rest
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Old 01-11-2013, 02:58 PM #4
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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I have the twitching legs as I try to fall asleep. I take 900 mgs of gabapentin )Neurontin) to reduce these twitches. I also need soft cotton to sleep in because it has a warm uniform feeling. Any odd tactile sensations cause my body to react.

The ADHD type of stimulant does not help the healing process even though it may help with brain fog momentarily.

Wow, my brainis exhausted. Gotta take a nap.

My best,
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"Be still and know that I am God" Psalm 46:10
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Old 01-12-2013, 05:59 PM #5
SmilinEyesMs305 SmilinEyesMs305 is offline
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SmilinEyesMs305 SmilinEyesMs305 is offline
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I sent you a private message with the information you asked for. Check your inbox. Glad I could be of help!
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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