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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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01-16-2013, 09:15 PM | #1 | |||
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It is a shame how people are so clueless what a TBI does to a person and everything around them!
This week I have got a call from my academic counselor to see if I "was ready to get back to school"! I have been out of school a month today....when I withdrew I told her I am looking at six months to who knows when I can come back! I listened to voicemail and just tried to brush off my shoulder.... Then I get a email from the company my biz worked for; asking if the biz still needed to be on leave from the company?And how I was doing! I did email her back because she was kind enough to acknowledge that I was ill and she was just checking in as well. ***It appears there is no medium when you tell people you have a TBI & PCS*** They either run fast away or opposite think it is like a broken bone and you will be right back!!!! I am 2 steps away from Checking in to a hospital so I don't have to deal with people in general.....I can barley deal with myself! Every time I feel grounded lately I get the worst....I thought I had been through the worst already in this past year and some months of uncontrollable devastation!!! Help Help !!!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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01-16-2013, 10:28 PM | #2 | ||
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I'm afraid I don't have an easy answer. Many of us on this forum have dealt with similar problems from friends, family, and/or coworkers: insensitivity, minimization, and just plain cluelessness. I have found out since my injury who my true friends are, and they are very few. Some people that I once considered friends I no longer consider friends.
Hang in there and know that you are not the only one having to deal with this kind of treatment from other people.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor. |
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01-17-2013, 09:47 AM | #3 | ||
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I second that (xanadu00).
What I have tried to do is focus on the people who have been kind and caring. Maybe there are only one or two (hopefull everyone has one person). Little gems, even from friends far away, can carry you through. Hang in there! It will get better, albeit slowly! |
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"Thanks for this!" says: | MiaVita2012 (01-17-2013), musiclover (01-17-2013), PCS Mikey (01-17-2013), Theta Z (01-17-2013), xanadu00 (01-19-2013) |
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