Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-18-2013, 08:14 AM #1
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Default Nervous about Neuro

Today I am going to my first neurologist appointment. I am a little scared, and plus maybe a bit excited. Hoping something will come out of this, rather than me being shooed off for the 1000th time. Anyway, I am off. I will post how it goes after I get back. Cheers.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 01-18-2013, 10:38 AM #2
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Default Back from Neuro

Well I am back from the neuro and well apparently she says I have muscle spasms in the neck plus Occipital Neuralgia. She also says I have PCS. She has made an appointment for an injection in the neck and referred me to a physical therapist. It seems I am finally getting somewhere. Thanks all for the continued support.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 01-18-2013, 11:04 AM #3
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Physical therapy for your neck can be a great help! Be sure they not only do adjustments but also teach you exercises to do for yourself at home. Hope that helps a lot with your headaches!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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Old 01-18-2013, 11:45 AM #4
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I am so glad you had a positive doctors appointment and that you now feel you are on the right path to recovery or relief from your pain! I'm hoping to get some therapy soon (next month or two) too so let us know how it goes!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 01-18-2013, 12:11 PM #5
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Consider,

Remember to ice your neck after each treatment. The injection is likely a steroid to reduce inflammation. The icing can accomplish the same until you get the injection. Do it routinely. It will make a big difference.
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Old 01-18-2013, 12:21 PM #6
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I agree with everyone - a good PT can make a huge difference - and as Mark says, ice the neck in the meantime. I too have Occipital Neuralgia from my first concussion and once I got in board with a good PT it helped tremendously. Wishing you all the best!
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PCS "survivor" - first concussion 10/2010 with PCS for nearly a year. Hit back of head on a shelf. Symptoms were head and neck pain, vertigo, nausea, lethargy, anxiety & depression. Experienced greatest amount of recovery between 9-12 months, with the following year being much, much better
.


2nd concussion 12/2012 - hit front left forehead on wooden edge of couch. Currently dealing with a return of PCS symptoms including headache, nausea, vertigo, brain fog, and lethargy.
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Old 01-18-2013, 12:49 PM #7
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Congratulations on your visit to a Neurologist that seems to have listened; and is willing to be a Gatekeeper with you.

Icing after each therapy session is always a good thing. And with times of aggravation.

I hope your success continues onto care for your anxiety, fatigue, depression, and insomnia.
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 01-18-2013, 12:51 PM #8
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Quote:
Originally Posted by Concussion View Post
Congratulations on your visit to a Neurologist that seems to have listened; and is willing to be a Gatekeeper with you.

Icing after each therapy session is always a good thing. And with times of aggravation.

I hope your success continues onto care for your anxiety, fatigue, depression, and insomnia.
Ditto! Agreed!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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