 |
|
| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
| Reply |
|
|
Thread Tools | Display Modes |
01-20-2013, 12:44 PM
|
#1 | |||
|
||||
|
Member
|
I am wondering if anyone has been seen @ the MayoClinic?
 I am tired of tap dancing around this TBI/PCS with the MD's that I have to choose from....I am the one suffering and some how I am doing all the work to find the speciality MD's I need in a limited area!!! I am ready to just go out of state to go to a MayoClinic so I can start to recover and not have to find my own MD's!!! ***Any feedback***On MayoClinic is MORE than GREATLY APPRECIATED! 
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
|
 Reply With Quote
|
|
01-20-2013, 04:39 PM
|
#2 | ||
|
|||
|
Legendary
|
Mayo versus Cleveland versus other highly rated clinics are no better than the triage and first doctors/caseworkers who start your referral process. The Mayo's web site about concussion is way out of date. I would not recommend Mayo if their web site is an indicator of their concussion knowledge.
What symptoms are you still struggling with the most? Have you been able to get weeks of quiet rest?
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
||
|
|
Reply With Quote
|
|
01-20-2013, 05:16 PM
|
#3 | |||
|
||||
|
Member
|
Mark~
I am currently laying in bed with heating pad on feet that have 2pair socks on, Ice on neck, massaged organic extra virgin coconut oil on my own neck lol, face because jaw line starting to get spasms and ice is about to go on face next, ears ringing, eyes are sensitive,chest is tight dont know if muscle spasms , and breathing is short. Before I got to this stage about 10min ago I did meditation breathing,drank cup of white tea, took half benzo to try to stop what felt like my body was just going into a panic attack and it was no negative thoughts in my mind actually felt decent.... I have been getting quite sleep mostly on a schedule that varies from 8-10hrs for most part since Christmas Ok now hands are going numb from holding phone up....I forgot that happened first before all above^^^^^
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ Last edited by MiaVita2012; 01-20-2013 at 05:27 PM. Reason: left out something |
|||
|
|
Reply With Quote
|
|
01-20-2013, 05:41 PM
|
#4 | ||
|
|||
|
Member
|
After my first concussion, I would find that if my anxiety levels or pain levels were up, I was more aware of the temp issues with my body, especially being cold. It's as though my central nervous system was just constantly off kilter!!
I dealt with it for many months and had numerous tests (neurological, cardio, endocrine, etc) all to come back normal. It was frustrating & scary because i couldn't pinpoint a cause. Ultimately the temperature sensitivity improved, but it took many, many months. To cope, I simply tried to deal with each situation as it arose - just as you are doing. Sorry you are experiencing this, I feel for you!
__________________
Musiclover . PCS "survivor" - first concussion 10/2010 with PCS for nearly a year. Hit back of head on a shelf. Symptoms were head and neck pain, vertigo, nausea, lethargy, anxiety & depression. Experienced greatest amount of recovery between 9-12 months, with the following year being much, much better . 2nd concussion 12/2012 - hit front left forehead on wooden edge of couch. Currently dealing with a return of PCS symptoms including headache, nausea, vertigo, brain fog, and lethargy. . ~ just trying to take it one day at a time . ~ |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MiaVita2012 (01-20-2013) |
| Reply |
|
|
~MayoClinic~
Linear Mode
