Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-16-2013, 05:38 PM #1
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Default A strange triad of symptoms these last few days

Monty is doing better in the mornings now and eating well, but he's dealing with a new series of events. They have occured 3 times in the past week.
Usually in the morning he's wobbly and uses the walker. He'll sit down and report a fullness in his head. Then he experiences an onslaught of very deep depression and has told me "here it comes". He then begins sobbing that lasts anywhere from 5 minutes to 20. After I comfort him and just let him cry his mood lifts. Within minutes of the end of crying his mood is very good and his balance is strong and stable. The generalized level of depression has been a problem since the fall, but this is the first time that the overall depression and balance problems have resolved after crying.

What do you think might be causing this?
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I need help and advice taking care of my husband. He sustained his concussion on 12/22/12 falling from the kneeling position face down on our tile floor. Impact was over his left eyebrow. Second concussion in same place 6 years ago. Hospitalized 3 days at end of Dec. Symptoms are mild compared to what many of you are enduring. Vision OK, no significant headaches, using a walker for balance, sensitive to light and sound. He's depressed (no history of mood disorders until now). Seeing excellent primary care doc who has put him on probiotic/vitamin therapy. The new Neurologist is wonderful with lots of mTBI experience. Next steps are brain wave testing probably followed by vestibular therapy, plus a 24 hour EEG. I am deeply grateful to all of you for your help.
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Old 01-16-2013, 07:11 PM #2
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My wild guess is that crying releases some neurotransmitter in the brain that helps counteract whatever is causing the depression and balance problems. It would be interesting to know more about that mechanism.

He is very fortunate to have you there for him during those moments of deep dark depression so that he can get through to the bright moment on the other side.
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

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Eowyn Rides Again: My Journey Back from Concussion

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ptcabe (01-21-2013)
Old 01-17-2013, 10:16 AM #3
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Hi, all of this sound like progress to me, especially the ability to recognize (the "here it comes") the onset of the depressive episode, and the fact that it resolves. Early in my recovery I experienced the same thing, I would start crying for no particular reason, than later it would self-resolve.

I can’t answer what’s causing it, other than the general statement that the neuro pathways are altered by brain trauma. For the symptoms you describe, I have found mindfulness practice and meditation helpful. By recognizing “here it comes’, he is already aware at some level. Mindfulness teaches to recognize and accept our feeling and emotions in a non-judgmental way. I say to myself “I’m having feelings of anxiety right now” or “feeling of depression right now”. When I accept these feelings in a non-judgmental way, they resolve more quickly and reoccur less.

Here is a link I found if you are interested.

http://www.mindfulnessinfo.com/

Best to you both.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 01-17-2013, 06:03 PM #4
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I did some reading on "partial seizures" after TBI because of my episode with smelling something burning, and also I had another one with heat spreading over my skin... anyway long story short, bursting into tears was one of the types listed.

Debate exists whether there even IS such a thing as partial seizures (which was mentioned in the article) but worth mentioning to the doctor I'd think. No significant link established to any worse seizures, so it's just kind of like a different label on what you already know. Not sure I buy it either.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 01-18-2013, 08:49 PM #5
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When I started to walk through the fog and symptoms (headache, dizziness, and fullness in my head) I would get so frustrated. Occasionally I would have a good cry. After crying for a bit I would feel some stress resolved.

A lot of what is so hard about PCS is the burden of trying to get through day after day with no reprieve. I can imagine your husband feels the same way. As long as these moments don't get worse, I would not worry. Your encouragement and kindness is priceless!

I believe that getting out frustration is healthy and shows that he is trying to improve, it is when we give up completely that the depression becomes a problem. I think that everyone with PCS goes through some type of grieving period. To not be able to do what you once could is heartbreaking.

Thank you very much for being a considerate caregiver to someone with PCS. Best wishes.
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Old 01-21-2013, 02:49 PM #6
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Heartfelt thanks to all of you for your kind words and support. Monty continues to slowly improve but still has the head fullness, usually at night, accompanied by a headache. Last night Acetominaphen took care of the headache ( or perhaps it resolved on its own). When this happens his balance is poor and he doesn't remember where things are like the walker that was right next to the bed. Fortunately he made so much noise that I woke up and was able to get him back into bed. We are sleeping in separate bedrooms because of his light and noise sensitivity.

Now I am in a terrible dilemma. My father, 85, is failing fast from Congestive Heart Failure in Oregon. He will be admitted today and his Cardiologist is on call. I must fly out on 1/23 and help my mother for an unknown length of time. I am unhappy and stressed that I must leave Monty. We see the Neuro tomorrow and hope to get help and advice. Then I must leave him. Thankfully we have wonderful friends and neighbors who can check on him and who are retired. The Dr may be able to help with home nursing care or in-pt rehab while I am in Portland, ( and perhaps in Minneapolis if we lose Dad and I need to manage the funeral.) I also have a wonderful brother in the Portland area who can help with Dad and Mom, but I know I need a professional support system if we can get one for Monty.
I ask for your prayers. The Mindfullness meditation has been wonderful. We follow Maritza's Meditation for Beginners several times a day.
Peggy
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I need help and advice taking care of my husband. He sustained his concussion on 12/22/12 falling from the kneeling position face down on our tile floor. Impact was over his left eyebrow. Second concussion in same place 6 years ago. Hospitalized 3 days at end of Dec. Symptoms are mild compared to what many of you are enduring. Vision OK, no significant headaches, using a walker for balance, sensitive to light and sound. He's depressed (no history of mood disorders until now). Seeing excellent primary care doc who has put him on probiotic/vitamin therapy. The new Neurologist is wonderful with lots of mTBI experience. Next steps are brain wave testing probably followed by vestibular therapy, plus a 24 hour EEG. I am deeply grateful to all of you for your help.
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Old 01-21-2013, 08:11 PM #7
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Default Fullness

In the time when my symptoms were the worst I would feel like my brain stem was swollen. A very stiff and thick feeling. It worried me but I did not associate it with pain. Eventually it went away. Hopefully it will for Monty to.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

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Old 01-24-2013, 10:18 PM #8
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Sounds like you have a lot to deal with. My social worker told me that we have the strengtj inside us that we need. Hang in there. Sorry to hear about your father. Courage.
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