Lamenting
 

State run health care, the friends in UK, and elsewhere who cried out wondering aloud WHY the U.S. would fall into the pit of impossibly impotent state run health care. Lobbied against it with our "leaders" in the U.S. all of whom were marching to a drum beat by some gal from San Francisco.

We never learn from world history, only by expeience....

I feel for you MsRriO. Caring.

ARGHHHHH........
Mark56:grouphug:

MsRrio,

Your son is so fortunate. He will blossom under this new style of relationship with his mom. It's like what happens when a child is homeschooled.

Just beautiful.

Go ahead. Grieve the past you but celebrate your new opportunities.

btw, Most of the meds have a mess of side-effects. Doctors prescribe them to pacify their patients, not to help them get better. They also are usually taking 'shots in the dark' with the meds. Try this and see if it helps........

The biggest help is oriented toward helping us learn work-arounds and accommodations so we can try to move forward. As we learn these, we lower our stress levels which enhances our brain's opportunity to heal.

Hang in there. It may come slow but improvements will come.

Give you some a big hug for me.

My best to you.

More Ick
 

Hey guys... thanks so much for all the support. Today at Vestibular PT, the PT had my head back and when I sat up, I blacked out and vomited ..... she then felt so bad that she said she has never seen a patient like me so sick so far out from an accident and said there was nothing she could do for me anymore.... :(.

I hear this often.... I am scared I am forever stuck dizzy and sicker than sick. Any words of advice my dear neuro friends? I do not understand what has happened to my brain.... I constantly feel like I just got off a carnival ride and am so so miserable..... My old life feels like it is slipping away into oblivion.

Omg that is awful
 

I feel so badly for you. I know you likely hear that often enough but I just do. :(

I also don't understand how your PT can determine there's nothing they can do for you anymore... surely there is something that can help.

Please forgive me I can't remember if you've seen a neurologist yet?

Haven't been in your shoes, so thinking the only thing I can offer is a hug of support. I hope someone here or on your care team can offer something! I'm so sorry this is happening to you.

Oh Sarah how horrible :( I can only assume you were hopeful that the physio would help and it must be crushing that it didn't. I have just started vestibular therapy (9 days now) and I haven't had any bad moments like yours. I thought I was going to vomit a few times but I didn't. I also do not have any dizziness unless I'm moving. Mine is more of a disequilibrium which I believe to largely be because of my eyes.

I'm sorry but I don't remember if you've seen an ENT? It sounds like your kind of dizziness might be something they could help with? I don't know if this will make you feel any better but... from what I've read... dizziness is a symptom that usually indicates a longer recovery time.. the reason I'm saying this is because I don't want you to think you aren't going to get any better, it's just going to take a little longer unfortunately. I'm in the same boat but I'm trying to be patient and optimistic. (neither which come naturally to me!)

Again, not sure if this will make you feel better or not, my physiotherapist said, after a little prodding, that this type of treatment is not successful very often. It's worth a shot and you'll know by 6-8 weeks if it's working or not but the success rate is not very high. I decided I had nothing better to do for 6-8 weeks :rolleyes: so might as well give it a shot but I'm not getting my hopes up.

Have you been able to quiet your life down some? I can't see how you'll ever recover if you keep going the way you are. I hope you're feeling better now from your physio. I just finished mine and everything's moving! Time to go meditate.

Have faith that you WILL feel better in time. :hug:

CC

I did not start my PT until 7 months post injury. Many times I had wished I had started earlier. Your posts makes me wonder if you are starting too early. Are you able to get rest? I know the first two months of my injury I just sat in a recliner in my living room looking out a window. It was the worst two months of my life but in hind sight. I think it was one of the best things I could have done. That kind of sedation is very hard on the body and takes serious PT to correct later.

Vision Exam?
 

Dear Sara-
I am now 6 months after my accident (rear ended on the freeway in July 2012 with my son in the passenger seat). Initially, the PCS and PTSD diagnosis and the neurologist prescriptions (propanolol and trazodone) for the migraines and his reassurances that all will get better in time pacified me. But even if the "normal" timeframe is 6 months, it is a long time to be in pain.

I finally got tired of losing weight (some 40 pounds which is a silver lining I suppose) and not being able to read or watch movies (I am usually a college professor but am now on sick leave; I am hoping I can return!), that I went to get a neuropsychological exam that revealed some convergence insufficiencies. I went to the University of California binocular vision clinic, and they further diagnosed me with convergence insufficiency and esophoria.

Basically, the whiplash/concussion wiped out the muscle memory of my right eye working with my left eye. Because I've been seeing double, my brain suppressed/turned off the images from my right eye because it was too stressed to reconcile the double vision. This is why I always felt dizzy and nauseous and couldn't read or watch film. My brain couldn't process the double images. I still can only read in limited 30 minute chunks of time. I continue to lose weight but now the doctors are thinking it is cortisol overproduction from anxiety/ptsd. (Meditation!)

The prism glasses help and the vision therapy is rebuilding my eye coordination. But it is the most painful 4 minutes of my day (vision therapy). I would much rather run 5 miles-it's that painful.

So, please do get your vision checked out. The doctors at UC say that the eyes are part of the brain- and the lingering dizziness/nausea may be due to vision issues.

This forum has been so helpful. I've only been able to recently read and understand the wealth of information here. Thanks!

Berkeleybrain...rings so true! My left eye still suppresses a bit when i am tired. 17 months post brain injury. Reading gets better with prisms for me too, but I still have a long way to go. I am a univ. Prof too....we read and write for a living, along with teaching. Tough to habe the vision problems along with everything else!

It took me almost a year to read and write at the same time. Breakthrough came with prisms at 11 months. Sigh! Oh well. It keeps getting better!

New/mn too
 

Hi I am new to the board. I am 5 months post concussion/fall. I am also extremely frustrated. I don't have any children but I am a full time high school art teacher, was also a fitness instructor and an at home tutor. I led an extremely busy life. Now I lay on the couch and feel sorry for myself.
I would love to share information and resources to try to get better. Are there any other mn people on the board?
I live in the northwest metro.
Su

Hey Su
 

Sara, who is the first poster on page one of this thread is from MN and maybe your metro area.... indicates thus in her post, take a look. :)

You may private message her by ckicking on her name in the post box there, opening the drop down menu, click "send private message," which will open a private message window in which to communicate. If you are so new to the system private messages are not yet open to you, the public message route is still enabled I believe.

May all be well with you :grouphug: