Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-27-2013, 11:54 PM #1
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Default Imagine This!

I wish this was a horrible nightmare could just be over....So here I am
I just spent the evening in the hospital with my daughter that is suffering so bad

Well me and my daughter have been talking better since I got the diagnosis ...and realized I have been missing so much of the last year and months.


So I might have to put my rehab on hold all together and homeschool her if the school scene does not get better for her!I am about to lose it but I don't know how....
This is anybody's worst nightmare!!!The pain and suffering is beyond words!!!
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~

Last edited by Jomar; 01-31-2013 at 01:34 AM. Reason: privacy request
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Old 01-28-2013, 12:59 PM #2
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So sorry to hear what you both have been going through. Sending strong healing thoughts to you and your daughter. So tough dealing with our own injury when we need to also take care of our children. My son (11) had a tough year last year at school and I think a lot of it had to do with his internalising worries about his mum at home. I wonder if your daughter is afraid of losing you? Kids need to know we are there for them and sometimes they don't show that they need us, or are really scared inside if something happens to us.

It is so important that you have this knowledge about your daughter. Baby steps....a good mantra for those of us trying to heal brain injuries, and most certainly a very important mantra as your daughter is trying to heal her own emotional wounds.

Just as an aside...I don't know if you daughter has an 'on-line' life, but if she does, I would absolutely be involved in it, and see what is happening to her there. Facebook, texting, etc. are all very dangerous places for teenagers. Given her current fragility, I would protect her from the online world at all costs.

Best wishes for healing. Hang in there. This is a nightmare for you. No question about it.
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Old 01-28-2013, 02:07 PM #3
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Default Mom to mom

I cannot imagine how hard this is on you. Your baby girl needs to feel like she is number one priority at a time when you're also suffering. I'm so sorry you're going through this.

Although it is very minor compared to what you're going through, I can't help but parallel it to my past week dealing with my boys concussion during my own PCS symptoms.

Not in severity or anything, but in how our children need us no matter what else is going on, and its never easy timing. But nature is so amazing, it provides us with strength from somewhere! I never thought I could care for my son the way he would need during his concussion and I did it. It reminded me of my higher calling, my true purpose here on earth. It helped us both, to connect. You can do this.

Trust your motherly instinct, protect your girl with all your might, and care for yourself too. By caring for both of you, you show her and model for her what it looks like to love yourself. It's not uncommon for girls to feel very lost and alone at her age, which is why an identity with her family is crucial. She has to feel important and validated right now. That doesn't mean everything else you're going through isn't important. Not at all.

It just means that priority one, is her. Priority two, three, four can be focused on as the crisis allows.

Crisis counselling- that's what I'd suggest first, but I'm no professional. I just relate as a mama and that's what my instinct is telling me.

Big big hugs, mom to mom. This must be heart breaking, but more is found than what is lost. What you find, you can work to fix.
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 01-28-2013, 09:36 PM #4
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Thumbs up You Are Greatly Appreciated

Mokey~

Thank you so much for the comforting encouragement words in my time of need....I got my daughter understanding a lot more along with the MD's help on my side that she had seen in the hospital during the assessment. I had a meeting with the school principle,counselors this morning and I have their help as well....She decided on her own to go to class today instead of the meeting with school and family....we all agreed she is outpatient and we are going to counseling on top of my apts I had already made for her....

I know this age is not a walk in the park trying to find out her place and who she is in such a non civilized world.It has been a rocky road for both of us and we are going to make it threw both of our sicknesses together. I am very thankful for my life and this challenge just made me even stronger.

~I think this day has been the breaking point of the best day in my life in the past year and months....I feel more humble today then EVER and less PCS symptoms since the accident occurred!!!!!I think it all goes down to inner peace that the Higher Power has blessed me. With this last 48hrs I went threw a dark tunnel and came out in the bright sun light. *****I am a true believer that the Higher power will not put you threw more then you can handle*****

~I decided yesterday PCS was done taking my soul and to never look back and always look ahead~If it does not kill us it makes use stronger and brighter than a fire cracker~


Quote:
Originally Posted by Mokey View Post
So sorry to hear what you both have been going through. Sending strong healing thoughts to you and your daughter. So tough dealing with our own injury when we need to also take care of our children. My son (11) had a tough year last year at school and I think a lot of it had to do with his internalising worries about his mum at home. I wonder if your daughter is afraid of losing you? Kids need to know we are there for them and sometimes they don't show that they need us, or are really scared inside if something happens to us.

It is so important that you have this knowledge about your daughter. Baby steps....a good mantra for those of us trying to heal brain injuries, and most certainly a very important mantra as your daughter is trying to heal her own emotional wounds.

Just as an aside...I don't know if you daughter has an 'on-line' life, but if she does, I would absolutely be involved in it, and see what is happening to her there. Facebook, texting, etc. are all very dangerous places for teenagers. Given her current fragility, I would protect her from the online world at all costs.

Best wishes for healing. Hang in there. This is a nightmare for you. No question about it.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 01-28-2013, 09:55 PM #5
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Heart

Rio~

Thank you so much as a mother with PCS for understanding me and my family from afar....I needed the comforting encouragment words for my daughter and I....

I woke up this morning and did not want to have to face any of the thoughts of what this day would bring....I had read the responses and the support gave me the push to take control of life. With the help of understanding genuine people I had to tackle this mountain today....I did it and I feel like my daughter and I are blessed with the higher power!!! Being threw hell and back I refuse to lose the bond of my number one priority and purpose to fight these battles. We are going to fight our sicknesses together and come out stronger then the average. I thank you greatly more then words can explain
Quote:
Originally Posted by MsRriO View Post
I cannot imagine how hard this is on you. Your baby girl needs to feel like she is number one priority at a time when you're also suffering. I'm so sorry you're going through this.

Although it is very minor compared to what you're going through, I can't help but parallel it to my past week dealing with my boys concussion during my own PCS symptoms.

Not in severity or anything, but in how our children need us no matter what else is going on, and its never easy timing. But nature is so amazing, it provides us with strength from somewhere! I never thought I could care for my son the way he would need during his concussion and I did it. It reminded me of my higher calling, my true purpose here on earth. It helped us both, to connect. You can do this.

Trust your motherly instinct, protect your girl with all your might, and care for yourself too. By caring for both of you, you show her and model for her what it looks like to love yourself. It's not uncommon for girls to feel very lost and alone at her age, which is why an identity with her family is crucial. She has to feel important and validated right now. That doesn't mean everything else you're going through isn't important. Not at all.

It just means that priority one, is her. Priority two, three, four can be focused on as the crisis allows.

Crisis counselling- that's what I'd suggest first, but I'm no professional. I just relate as a mama and that's what my instinct is telling me.

Big big hugs, mom to mom. This must be heart breaking, but more is found than what is lost. What you find, you can work to fix.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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