Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-30-2013, 08:31 PM #1
CW21 CW21 is offline
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Is my life on hold? Or even worse will i ever have fun again?

I just watched my wife leave for a "girls night out". Although i tried my best to hide it, i cant help but be a little sad that i have not done anything in the last two months that was even remotely fun.

I used to be the most positive person and enjoyed every aspect of my life.

Now, i feel as if i will be stuck in this world for ever. My symptoms seem to be getting stranger as the time goes on and i am losing my patience with not seeing an end in sight.

.
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35 year old "soon to be again" very active male.
Location : San Diego

September 2012 suffered concussion Wakeboarding.Recovered after a month and a half. November 24th 2012, second impact surfing.
Symtoms currently have is muscle fatigue, vision problems, overall fatigue, and extreme anxiety.
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Old 01-30-2013, 09:19 PM #2
Peter11 Peter11 is offline
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Peter11 Peter11 is offline
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Quote:
Originally Posted by CW21 View Post
Is my life on hold? Or even worse will i ever have fun again?

I just watched my wife leave for a "girls night out". Although i tried my best to hide it, i cant help but be a little sad that i have not done anything in the last two months that was even remotely fun.

I used to be the most positive person and enjoyed every aspect of my life.

Now, i feel as if i will be stuck in this world for ever. My symptoms seem to be getting stranger as the time goes on and i am losing my patience with not seeing an end in sight.

.

Hi mate. I feel the exact same way. My life is on hold. I don’t mind resting for a while, but for how long! How long will I be on hold? Not knowing is probably my greatest worry! Ha-ha. I have also said the exact same thing to my mother… “I’ve done nothing the last 4 months, my life has had no meaning!” The only thing that is keeping me going is noticing small improvements... and holding on to the fact that one day soon I will be back to my usual positive, happy, active, social self! We all will, you included! I know what you mean by stranger symptoms, not necessarily worse, just odd! I think my anxiety is fuelling them, and I’m learning to control that.
We will be better soon!
How has your recovery been so far, what are your symptoms?
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Old 01-30-2013, 09:22 PM #3
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First I am so sorry you are going thru this. I KNOW exactly what you are suffering thru. No your life will not always be this way. Recovery from concussion is a VERY long process. Think in terms of months not days or weeks. Again I know how awful this is. Try to address the worst and most significant health issues. AS there are frequently many issues focus on the worst one or two. Be sure to consider if an issue is physical or emotional. As issues are addressed your health will improve.

Hopefully you have a good Dr on your care team. Even if it is a pcp he/she can help you get the care you need and deserve.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
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CW21 (01-30-2013), Mokey (01-31-2013), MsRriO (01-30-2013)
Old 01-30-2013, 10:20 PM #4
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I hear you loud and clear.

Tonight my family went to a hockey game. We are season ticket holders to our local WHL team. We live and breathe hockey around here. I'm the regular anthemist at the games but I've been on "leave" since injury. (I'm a singer)

Anyway I stayed home. But I am happy for my family, especially my caregiving husband, that life for them marches on as it was. I'm sure they miss me a bit. Lol

But it's so important that our family members get guilt free outings and get to enjoy their lives as before because they take on our burdens; they need the release too. They get stressed seeing us unwell and they absorb our anxiety. So you did VERY well, my friend, to hide how you felt and bid your wife a great girls night. Kudos.

My husband keeps texting me the score so I know I'm on his mind at the game. Can't ask for much more!

When wife gets home give her a big smile and ask about her night. You know how we sometimes need to get out of our own heads? Caring for another person is the best way to forget the self, for a bit.

And like rmschaver says, your life will not always be this way. There are work-arounds for socializing once we get to that stage. We'll be alright. Just know you're not alone in the frustration!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 01-30-2013, 10:46 PM #5
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I know how hard it is not to be able to socialise or take part in activities or sports that you love. Its really important for your mental health though to realise that this is temporary! Might be long but it is temporary! The worst thing you can do to yourself is think long term. Just focus on today and maybe plan for tomorrow but don't think much past that.

My neuro-psych told me that I'm only allowed to worry if it's "productive worry" and what she means is if it's something that needs to be dealt with in the next week then I can plan for it/think about it/worry about it.

For example... if I have a phone call with my insurance company in a couple days then I'm allowed to plan for it and think about it because I need to be prepared for the phone call. If the phone call is a month away...I am not allowed to worry about it and stress what if it goes badly, what if they cut me off, etc.

It's perfectly natural to be sad you can't go out today but you will go out again once you've healed! Think of this as nice quiet time and be grateful she didn't have all the girls over to your place!

My husband is having 12 guys over for poker/superbowl on Sunday so needless to say I have to leave the house for the longest period of time in 6 months and unlike you...I don't want to go out! I'm much more comfortable at home but not with the loud poker buddies here!

Getting sidetracked. .. stop thinking past this week. You will get better!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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