Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-31-2013, 03:57 AM #1
slimjim94 slimjim94 is offline
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Default 5-6 Concussions

Hey guys I am new to this site, I've played hockey since the age of 5 and middle linebacker during high school. I sustained 3 diagnosed concussions, one of which was a grade 4, and several others that were not diagnosed because I had other injuries that were more apparent. My latest one that I can think of came three years ago during a hockey game in which I was knocked unconscious for close to 5 minutes. I am now attending a University no longer playing any sports, however it is very difficult for me to concentrate in any of my classes for longer than 5-6 minutes at a time. My reading comprehension is nonexistent and shut down entirely when I become overwhelmed. The worst part of it all is the depression/mood swings. I can go from complete happiness to complete emptiness in a span of a few hours. Usually the most mood swings I have in a day is 3. But the depression absolutely kills me, I feel isolated and avoid people at all costs. I have to wake up every morning and put a smile on my face to keep my roommates from becoming too alarmed. I have seen a psychiatrist, psychologist, and now the doctor. They had me take a learning deficit test and believe I have ADHD symptoms, but the results aren't due back until the end of the week. The doctor told me today she was going to prescribe me a few medicines only to have me come in and tell me I may need to go see a neurologist. I need to find people who can help me cope with all of this and give me some pointers ANYTHING! THANK YOU.
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Old 01-31-2013, 12:56 PM #2
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Neurologists are great! I had one and she fixed most of my pain! My psychiratist told me to go to one too when I first saw him. She then figured out I had Occipital Neuralgia, which is pain in the two nerves in the back of your head. She also checked my reflexes, checked my eyes and my movements. She also gave me a cognitive test to see my thinking reaction times. Just like normally before my injury, I reacted pretty quickly, she was almost shocked! She did however notice that I was shaking a bit at times, and later concluded that I also have Post Concussion Syndrome and was getting better. At the end of the exam, I did however ask her, when am I going to be better? She gave me the right answer, she told she couldn't answer that, your recovery is in your hands she also told me. I do believe your psychiratist is right though, a neurologist is the first step and a good one too!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 01-31-2013, 01:58 PM #3
Mark in Idaho Mark in Idaho is offline
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SlimJim,

Welcome to NeuroTalk. Your history sounds familiar around here.

Your learning struggles are common to Post Concussion Syndrome. Seeing a neurologist will be good to rule out any serious problems but not likely helpful with your concussion symptoms. Most neuros are not very good at understanding the cognitive struggles of PCS.

You likely have never taken the time to let your brain try to heal. Adding college life stresses just makes it worse.

You need to lower your stress levels so you do not become overwhelmed. You brain is struggling to process the many stimulations common to college life and study. You can succeed but not likely at the normal college pace. You will benefit from seeking help from the college Disabilities Services Department. Getting some assistance with note taking and maybe some tutoring and extra time for test taking will be a big help.

It is really not possible to push through these struggles. Learning work-arounds and accommodations for your struggles is the most common way to move forward.

Please tell us more about your specific struggles. There are plenty of good people here.

My best to you.
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Old 01-31-2013, 02:10 PM #4
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Well yesterday was a serious meltdown in my life when the doctors dragged my situation out more when they said they needed more information.

-I walked around aimlessly for 5 hours, thinking I can't see these people anymore

Worst parts of my situation (I dont have headaches and I sleep fairly well)

-Maintaining relationships; friends have called me out on my stress/mood swings
-Mood Swings/Depression; Yesterday I went from a happy-miserable-mellow mood
-Concentration; I have none. Focusing in class has become nearly impossible. Interaction with other people. If they talk for too long (over 30 seconds to a minute) I tune out. Have difficulty expressing my own thoughts

Those seem to stick out the most. Ill explain more from my journal once it becomes a little more full.

Thanks guys
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Old 01-31-2013, 02:23 PM #5
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The mood swings are common and usually include violent outbursts of anger. Over-stimulation and other stressors are a leading cause of this roller coaster. Read my thread about 'Vitamin Supplements and Nutrition'. It lists some good online resources for you and your friends to check out.

The doctors responses are not uncommon. As I said, they are not usually very good at putting the whole picture together.

My best to you.
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Old 02-05-2013, 02:02 AM #6
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Hey guys,

I saw my therapist again who really tries to help but is it possible going to things like this could make it worse? The more I think about things (anything), the worse things become. I had a huge meltdown on Friday, more along the lines of anger episode that lasted for close to 3 hours. My therapist is a nice lady but seeing her makes me think I am crazy. It sounds like I should see a neurologist?

Well I watched one of the best documentaries for the topic on Netflix last night, "Head Games" I recommend it to anyone on here.

Thanks,

JB
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Old 02-05-2013, 03:03 AM #7
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What is the purpose of your therapy sessions?

Is she trained in the problems that come from concussions?
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Old 02-05-2013, 03:35 AM #8
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The purpose of the therapy is to help me air out any emotions/experiences I've had in the past week. I see her sometimes twice a week. I don't know what to think anymore. Sometimes I feel completely normal, and wonder why I am in there and wonder if anything is wrong because my parents don't believe anything I am telling them. She also reads a journal in which I write 2 entries a day, usually explaining my emotional state. So seeing her and having these battles with the parents, makes me wonder if I am overreacting, I am not sure anymore...
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Old 02-05-2013, 05:16 AM #9
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Maybe she is missing the behaviors you exhibit that are the result of your concussion history. Making 2 journal entries a day may be causing you to focus on how you feel and act as compared to what stimulations in your world are doing to you. There are many PCS triggers that cause us to have a tendency to odd behaviors.

Rather trying to explain how to respond to triggers, she should be helping you learn how to avoid triggers. She should also be helping you learn work-arounds to your PCS behaviors and limitations.

She needs to check out the links on my Vitamin Regimen thread. The You Tube and other links may help her understand you better.

But then, I am not a therapist so I may be dead wrong.
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Old 02-05-2013, 12:05 PM #10
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Quote:
Originally Posted by slimjim94 View Post
I saw my therapist again who really tries to help but is it possible going to things like this could make it worse? The more I think about things (anything), the worse things become.
JB
There is a warning about therapy at: www.headinjury.com
Here it is: http://www.headinjury.com/losself.htm "Psychotherapy is always painful. It involves dropping your mask and exposing your soul. Many times it is dangerous. Too often, therapists cling to their own masks and retreat into their own realities. Frequently, they are biased by their belief systems, and never really see you as a singular, unique human being. If you sense that your therapist is unwilling or unable to hear you and does not appear to appreciate you as a significant person, run as fast as you can. You are in very grave danger."

Be careful.

There is a great amount of info at that site, very informative.

Learn as much as you can without over doing it, and as Mark suggested, rest when you need to.
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