 |
|
| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
| Reply |
|
|
Thread Tools | Display Modes |
01-31-2013, 11:30 PM
|
#1 | |||
|
||||
|
Member
|
Anyone have seizures or any type as a complication of concussion or along with other PCS symptoms?
I am going to ANOTHER doctor tomorrow to try to figure this out. Remember Mark when I said I wake gasping for air (no previous issues before injury) and with throwing ideas around it was brought up that it might be a sleep apnea thing... And apneas can cause seizures while sleeping... I did bring it up to my doctor but it was brushed aside. Also brushed aside was this: the burnt smell episode was during sleep, about 2 weeks ago. Accompanied by incredible pain and confusion, and later that day extreme exhaustion, troubles getting actual words out (not slurring or stuttering like usual, but actual trouble making sounds), a metal taste in mouth, and a space of 3 hours just unaccounted for, dazed on my couch, felt like 5 minutes. Ok well another episode last night... This time I woke with my jaw clenched so tight and my eyes open like saucers, drooling out the left side of my mouth... With incredible head and jaw pain. I sat up and couldn't open my mouth and I don't know how long it took before I finally recall getting some water to drink. Metal taste in throat. Had terrible time sleeping with the ache in my jaw. No prior history of jaw clenching or TMJ problems, jaw doesn't make funny sounds, just aches because of that feeling of having a "Charlie horse" cramp. Today speech was the same as the burnt smell episode. Awful. Also suffered extreme muscular exhaustion so I didn't even get out of bed until 11am though I'd been awake for hours. Not googling, and not particularly anxious about this. Just wondering if these kinds of episodes have ever happened to anyone here? Btw I'm on "drug free" recovery thus far, just taking Tylenol. I'd be glad if doctor would at least do a test but I suspect it will be described and discarded again. I keep living so it's obviously not going to kill me. Lol
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
|||
|
 Reply With Quote
|
|
02-01-2013, 12:24 AM
|
#2 | |||
|
||||
|
Member
|
You know I have lol!The metal burning smells are still trying to be figured out.The seizures I did have post traumatic seizures so I am taking valium.And the jaw yes I went to jaw TMJ MD last April and had too much inflammation so I am going in Few weeks to see what is going to go on with that....before I could not open my mouth and he had to give me steroids and would not see me till after I seen a Neuro....I'll be the lab rat on the jaw thing and let a few people know....but if you could get a MRI of your neck and if there is bulging in C1 or C2...If a cortisone shot is available it will loosen the jaw and face....that is what my physiatrist and physical therapist told me.....
 Quote:
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MsRriO (02-01-2013) |
|
02-01-2013, 01:01 AM
|
#3 | ||
|
|||
|
Legendary
|
MsRrio,
I take gabapentin (Neurontin) before bed to reduce the jaw clenching. I also am very careful with neck position due to C-1 inflammation risks that lead to my Central Sleep Apnea. Can your husband stay up some night to observe your breathing? My wife did one night and counted my apnea episodes. I stopped breathing 16 times in 1 hour. Most sleep apnea specialists have very little understanding of Central Apnea. The autonomic nerves that control heart beat and breathing are in the C-1 area. When they are compressed by nearby inflammation, the apnea can be a problem. I have never been able to get a doctor to pay attention to my problems. I have to do my own work at reducing my CSA.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MsRriO (02-01-2013) |
|
02-01-2013, 05:04 PM
|
#4 | |||
|
||||
|
Member
|
New doc today. Same song.
"Could be migraine aura" .... no attention paid to the sleep apnea thing at all. How does one learn to cope with being the invisible unheard patient for the rest of time? (Unless I spontaneously heal someday... Lol... Sigh) 
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
|||
|
|
Reply With Quote
|
|
02-01-2013, 05:19 PM
|
#5 | |||
|
||||
|
Member
|
I know how frustrating it is. I've been through it all before with my fibromyalgia, many doctors with no help or belief, and yet I'm still frustrated every time it happens again! I'm sorry to hear you didn't get any help. It is however quite likely that your last statement is true... you will probably spontaneously heal one day! It probably won't be tomorrow
 but one day! That, and the help of this wonderful forum will have to be enough to keep us sane!I hope those events were temporary and you won't have them anymore. CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | MsRriO (02-01-2013) |
|
02-01-2013, 05:46 PM
|
#6 | |||
|
||||
|
Member
|
Thanks cc!
One thing this doctor did say was that I could take Aleve for the pain. Aleve is 220mg naproxen in OTC strength in Canada, for those who don't know. I've been told up to this point that I could only take Tylenol. So.... does anyone else take NSAIDs? (Non steroidal anti inflammatory drugs) Good bad? Ugly? Should I try?
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
|||
|
|
Reply With Quote
|
|
02-01-2013, 06:57 PM
|
#7 | ||
|
|||
|
Member
|
I take aleve two tabs in morning sometimes two twelve hours later. When headaches or back/neck pain are bad I take oxycodone. BTW I have had seizures at night. I was totally unaware most of the time. My wife witnessed it. Once I woke up with bilateral seizures in my hands and arms. The seizures I had subsided with time so if I am having them I no longer notice. However I have developed a horrendous snoring at times. It wakes both my wife and myself. Pre injury I did not have these issues.
__________________
49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
||
|
|
Reply With Quote
|
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Could it be seizures? | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Seizures? | Multiple Sclerosis | |||
| seizures | Children's Health | |||
| seizures and more | Epilepsy | |||
| Had 2 seizures ... what to do?? | Epilepsy | |||
Seizures?
Linear Mode
