Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-05-2013, 03:56 PM #1
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Default How to be Hopeful After All This

I need an ear to stay positive and to turn things around for the better. I need strategies to practice mindfullness and to keep my mind busy without thinking back to the injury. Any help?
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 02-05-2013, 08:51 PM #2
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Have you tried walking. It is both good for you and can be very relaxing. You might try your hand at art. Drawing is a relatively cheap activity and can occupy your time. If drawing is not to your liking water color is similarly cheap.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
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Old 02-05-2013, 09:17 PM #3
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Self help books to get close to inner peace and positive thoughts....That is where I started....
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Originally Posted by rmschaver View Post
Have you tried walking. It is both good for you and can be very relaxing. You might try your hand at art. Drawing is a relatively cheap activity and can occupy your time. If drawing is not to your liking water color is similarly cheap.
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 02-05-2013, 11:27 PM #4
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watch seinfeld! and listen to psychedelic music! and believe and know that you will be better!~ !
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Old 02-06-2013, 12:02 AM #5
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For the longest time after injury and still sporadically now, 3 months later, I would go over the events of the day I fell and wish I'd done differently somehow, or lament how life changed. I'd even "hear" the smack of my head against the concrete.

While at first I wanted to process everything that happened, I eventually got to a stage of wanting some kind of positive escape, like you.

So far I've done:
  • some drawing/colouring...
  • Some songwriting. (I'm a singer) I've strummed my guitar but found it hard to keep a rhythm since the injury so I have taken a break.
  • I find that when I get acupuncture I really mellow out. I am starting to like that.
  • I bake. I love the smells and the satisfaction of doing something for others. (My family is loving this)
  • I avoid all triggers of sadness if possible. I don't watch the news or sad movies because I just can't process all that pain.
  • I listen to worship music if I'm able to tolerate any sound. I know that's not for everyone but there are some songs that just really get me "out" of my own head and focused on something far greater than human interests.
  • I use positive self messaging a lot from my former CBT days. Such as "I will not let pain steal this moment" when something is wonderful, like my son's laughter, or hearing my husband say sweet things to my son at bedtime kisses like "I sure love being your dad"... Those moments are mine to cherish and I tell myself to "stay in the present".
  • I look for ways to laugh. I find humour in every day things and even my short comings.

Hope some of those inspire ideas of your own.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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