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Old 02-11-2013, 08:10 AM #1
ninelives ninelives is offline
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Default 3 weeks without major symptons, is this good news

Hi all,

Have just reached 3 weeks without any major issues. so thought I would try a drive to shopping outlets (shopping mall). Well it was a good hour by car in the snow and sleet, and by the time I arrive at the outlets head was spinning a bit and all the noise etc.
Managed to get to the ladies loo and hid in there for 5-10 mins with eyes shut and hands over ears....
Emereged and stayed about 1 1/2 hours, then got hubby, who I dropped off at the footie, to drive us home.
It was dark by then and all the glare of the lights so had to keep eyes shut going home. We then had arrangements to meet friends for meal that eve so out again, the village pub setting, I thought, would be quiet, but no it was soooo loud.!!!
Anyway managed meal got home late and was shattered. Didn't sleep well, head buzzing.
Woke up next day just felt like I was so tired, like jet lag,but no head ache.
Saw some family that day, had early night and today not feeling too bad.
Could this be the start of recovery? have not had a head ache for 3 weeks now, although funny enough when I first had the injury I had no head aches at all for 3 months .
Am taking it easy today still aware of head.
Its been nearly 8 months now, is there hope ?

Thanking you all and hoping you are all coping well today.

Cx
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Old 02-11-2013, 09:04 AM #2
Mark in Idaho Mark in Idaho is offline
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Sounds like you pushed your limits a bit. I don't understand your question, "Could this be the start of recovery ?"

Your brain is always trying to recover. The more you avoid the stressors such as your busy day, the more your brain can recover. You have observed how your brain tolerates stress. If you use than in formation to moderate your daily activities, you can expect to have more good days and weeks.

Recovery is a learn as you go process. You may be sensitive to noise or bright lights for quite some time. Being ready to take action to reduce the noise and lights will allow you to go on as normal as possible. The brain is not made to tolerate the sound and lights. When people engage in such stressful activities, they are stressing their brain. It is why so many people are taking antidepressants.

Find that moderated level of life and you have a good future ahead.

My best to you.
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"Be still and know that I am God" Psalm 46:10
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Old 02-11-2013, 12:58 PM #3
ninelives ninelives is offline
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Hi Mark,

Thank you for your words of wisdom, yes you right I have learn't what my brain can tolerate, so guess I best not push it too far at the moment.

Also I had eyes tested and colorimtry test done 2 week ago, so am awaiting my new tinted specs. Hoping this will improve the glare of lights and help with computer work...will let you know.

My question,"could this be the start of recovery"?.

Normally when I over do it, it takes me 3-4 days to recover from the terrible head aches, tiredness and anxiety, that generally follows, but this time only had feeling of jet lag type tiredness and no head ache.
So that was why I thinking maybe things are improving.

The trouble is we all want to be able to do normal things and get on with life, and I find it hard not to do so, but equally am aware of my limitaions. Its all so very frutrating some times....but thank you for listening and your good advise.
I wish you well and hope your day has been a good one
Cx
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Old 02-11-2013, 05:14 PM #4
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Hi Cx,

I say congratulations on going three weeks feeling that well!! I too am almost at 8 months and although I haven't had anywhere near 3 weeks of good days, I am seeing more and more good!

My neuropsych is going to help me in March start slowly trying to add things back into my daily routine as tolerated. Right now my no headache good days are most common when I don't do anything. I have to start being able to do some things again.

Getting off track as usual, just wanted to say congratulations for noticing some improvements just be careful you don't overdo it all too soon and suffer a setback.

Try small baby steps. Add one new thing in for a little while and see how it goes. Your day sounded like way too much at once but of course I don't know what a normal day is like for you. I would have rested all day to be able to go out for dinner and driving is a no no for me still.

I want to see a neuro ophthalmologist to get my eyes looked at but its taking sooooo long to get an appt! I hope the glasses help your recovery even more!

I'm hoping that by 1 year there will be a lot more things back to normal in my life and I hope yours too!

Wishing everyone a good day
CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 02-11-2013, 06:37 PM #5
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I'd say three weeks without major symptoms is fantastic news.

I agree with other posters that you may have done a lot on your outing but I also am happy for you that the recovery time after overstimulation seems to be reduced.

Your story gives hope. I know it's all baby steps but its great of you to share your successes, even if not as successful as you'd like... It's progress!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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