Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-15-2013, 09:55 AM #1
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Confused Nervous

I was up off and on last night nervous about the Jaw MD appointment coming up very soon....I do not want to relapse!I am literally Scared!I know I should not be worried because the MD knows my situation...This MD had seen Me @ what I consider my worst of this roller coaster!!!I do not know what to do I need this fixed but I think about my progress and I get VERY SCARED!
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 02-16-2013, 01:10 AM #2
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Thinking of you. Sorry that you feel so stressed. I don't think any of us escape that feeling much. I hope all goes well.

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Old 02-16-2013, 10:25 AM #3
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Thank you for the kind words...I been taking advantage of this by indulging in all the great foods before. I know I will be put on soft food diet and after the impressions etc are studied I may need to be wired shut...because my TMJ is totally displaced!!!
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Thinking of you. Sorry that you feel so stressed. I don't think any of us escape that feeling much. I hope all goes well.

MissingMe
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 02-17-2013, 05:16 PM #4
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I don't have experience with this, however I know of friends who have had TMJ without head trauma. They have experienced similar sypmtoms and issues due to their TMJ. I know you are worried about what trauma having it fixed may have on your brain, but in the long run, you may see a huge positive change in symptoms, because your not adding pressure to that area of your head.

Wish you the best! When is the appt?
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Old 02-17-2013, 08:46 PM #5
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Hey Smilin~
I did not have this dislocated TMJ until 9months after this accident....The specialist needs hours with me for impressions and then will study them to get a resolution of what we are going to do....And get back with me after doing the studies of impressions.....I am thinking worst scenario:Manipulation of jaw and put back in place and wire shut to keep in place?I don't know...but will find out by mid week probably....So all my rehab has been put on hold till this is resolved
Quote:
Originally Posted by SmilinEyesMs305 View Post
I don't have experience with this, however I know of friends who have had TMJ without head trauma. They have experienced similar sypmtoms and issues due to their TMJ. I know you are worried about what trauma having it fixed may have on your brain, but in the long run, you may see a huge positive change in symptoms, because your not adding pressure to that area of your head.

Wish you the best! When is the appt?
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 02-19-2013, 09:25 PM #6
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Confused Update

Went to TMJ specialist and had to get impressions,models, and measurements done that will be required with the MRI I need of jaw and a CT scan of one arch joint.I am waiting for certain hospital to call me with date of MRI and then I need to go pick up models to take with me to these appts.

I had a panic attack on the way to Specialist and was told I was not to take any my anxiety meds before coming, so I show up with muscle spasms all in jaw,face and upper body. I suppose it was the anticipation of everything had made me go panic. I felt ok after just wore out of 2hours of opening and closing and doing all kinds of jaw things.I was kind of sore to eat the rest of day.Then the next day I had a full blown melt down from I don't know where or why? Now I am just waiting to get MRI and this CT scan of joint.

I think I got upset because my rehabilitation is on total stand still until this jaw thing is fixed and this is a very expensive ordeal that I need to pay for...how?I don't know....I really wish this could all be over I am losing strength with not much to hold on to anymore.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 02-19-2013, 10:36 PM #7
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Quote:
Originally Posted by MiaVita2012 View Post
Went to TMJ specialist and had to get impressions,models, and measurements done that will be required with the MRI I need of jaw and a CT scan of one arch joint.I am waiting for certain hospital to call me with date of MRI and then I need to go pick up models to take with me to these appts.

I had a panic attack on the way to Specialist and was told I was not to take any my anxiety meds before coming, so I show up with muscle spasms all in jaw,face and upper body. I suppose it was the anticipation of everything had made me go panic. I felt ok after just wore out of 2hours of opening and closing and doing all kinds of jaw things.I was kind of sore to eat the rest of day.Then the next day I had a full blown melt down from I don't know where or why? Now I am just waiting to get MRI and this CT scan of joint.

I think I got upset because my rehabilitation is on total stand still until this jaw thing is fixed and this is a very expensive ordeal that I need to pay for...how?I don't know....I really wish this could all be over I am losing strength with not much to hold on to anymore.
Dear miavita2012,
I am really sorry to hear what you going through. It is a roller-coaster from what i read.
I know it is difficult to deal with everything you going through but the best you can do is to remind yourself that you need to take care of yourself first.
Take a deep breath and try to relax a little. Things will unfold, just make the best of it.

Praying for you.
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Old 02-19-2013, 11:11 PM #8
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Thank you Savas for the comforting words.I am trying to do the best I can and keep this head up!I can't smile well because my jaw I look funny lol...but I am thankful I got this chance at life but sometimes it really drains us threw the roller coaster.
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Originally Posted by Savas View Post
Dear miavita2012,
I am really sorry to hear what you going through. It is a roller-coaster from what i read.
I know it is difficult to deal with everything you going through but the best you can do is to remind yourself that you need to take care of yourself first.
Take a deep breath and try to relax a little. Things will unfold, just make the best of it.

Praying for you.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-08-2013, 08:30 PM #9
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Shocked Update on TMJ

So I have completed a CT scan of TMJ joint with impression and got MRI of TMJ now I am waiting....I had talked to a few people that had known family members with dislocated TMJ and they had to get broken, realigned, and wired shut....hmmm so my days are ticking I think that I will be back in house more rest status....but after I can move on to the cognitive therapy while I am still in vestibular therapy...I will find out soon what the plan for jaw is soon Very tiring week I had MD appts everyday this week and I am going to bed.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-08-2013, 08:42 PM #10
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Heart

Mia,
Just wanted to tell you that I am thinking of you. Hope your jaw thing works out with minimal problems. I am sorry you are going through so much. Hope you get feeling better real soon.
Much love,
Brain
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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