FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
Reply |
|
Thread Tools | Display Modes |
|
02-19-2013, 09:25 PM | #1 | |||
|
||||
Member
|
Went to TMJ specialist and had to get impressions,models, and measurements done that will be required with the MRI I need of jaw and a CT scan of one arch joint.I am waiting for certain hospital to call me with date of MRI and then I need to go pick up models to take with me to these appts.
I had a panic attack on the way to Specialist and was told I was not to take any my anxiety meds before coming, so I show up with muscle spasms all in jaw,face and upper body. I suppose it was the anticipation of everything had made me go panic. I felt ok after just wore out of 2hours of opening and closing and doing all kinds of jaw things.I was kind of sore to eat the rest of day.Then the next day I had a full blown melt down from I don't know where or why? Now I am just waiting to get MRI and this CT scan of joint. I think I got upset because my rehabilitation is on total stand still until this jaw thing is fixed and this is a very expensive ordeal that I need to pay for...how?I don't know....I really wish this could all be over I am losing strength with not much to hold on to anymore.
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
Reply With Quote |
"Thanks for this!" says: | Brain patch (03-14-2013), poetrymom (04-23-2013) |
02-19-2013, 10:36 PM | #2 | ||
|
|||
Junior Member
|
Quote:
I am really sorry to hear what you going through. It is a roller-coaster from what i read. I know it is difficult to deal with everything you going through but the best you can do is to remind yourself that you need to take care of yourself first. Take a deep breath and try to relax a little. Things will unfold, just make the best of it. Praying for you. |
||
Reply With Quote |
"Thanks for this!" says: | MiaVita2012 (03-13-2013) |
02-19-2013, 11:11 PM | #3 | |||
|
||||
Member
|
Thank you Savas for the comforting words.I am trying to do the best I can and keep this head up!I can't smile well because my jaw I look funny lol...but I am thankful I got this chance at life but sometimes it really drains us threw the roller coaster.
Quote:
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
Reply With Quote |
03-08-2013, 08:30 PM | #4 | |||
|
||||
Member
|
So I have completed a CT scan of TMJ joint with impression and got MRI of TMJ now I am waiting....I had talked to a few people that had known family members with dislocated TMJ and they had to get broken, realigned, and wired shut....hmmm so my days are ticking I think that I will be back in house more rest status....but after I can move on to the cognitive therapy while I am still in vestibular therapy...I will find out soon what the plan for jaw is soon Very tiring week I had MD appts everyday this week and I am going to bed.
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
Reply With Quote |
"Thanks for this!" says: | Brain patch (03-08-2013) |
03-08-2013, 08:42 PM | #5 | |||
|
||||
Member
|
Mia,
Just wanted to tell you that I am thinking of you. Hope your jaw thing works out with minimal problems. I am sorry you are going through so much. Hope you get feeling better real soon. Much love, Brain
__________________
Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
|||
Reply With Quote |
"Thanks for this!" says: | MiaVita2012 (03-08-2013) |
03-08-2013, 09:19 PM | #6 | ||
|
|||
Member
|
Thinking about you!! Keep your mind off what happens after surgery and just enjoy the fact that you are continuing to move forward with all the right medical people
You are doing a wonderful job advocating for yourself and continuing to push forward in your therapies. You ROCK!
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
||
Reply With Quote |
"Thanks for this!" says: | Brain patch (03-09-2013), MiaVita2012 (03-08-2013) |
03-09-2013, 01:13 AM | #7 | ||
|
|||
Member
|
Hope it goes okay. I had very bad TMJ about 15 years ago, was told I needed to get my jaw reset and wired, and then I met a physiotherapist who specialised in the jaw, and I was treated by her with various things and did home exercises, and it got all better! My jaw is more stable, I don't need to wear something at night, and th searing jaw pain is gone.
Everyone is different, of course, but just to encourage you to make sure you get more than one opinion!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
||
Reply With Quote |
"Thanks for this!" says: | MiaVita2012 (03-09-2013), SmilinEyesMs305 (03-09-2013) |
04-23-2013, 08:50 PM | #8 | |||
|
||||
Member
|
will pray for you Mia.
Take care Poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
|||
Reply With Quote |
"Thanks for this!" says: | MiaVita2012 (04-24-2013) |
04-24-2013, 08:27 AM | #9 | |||
|
||||
Member
|
Thank you for the kind words PoetryMom, I greatly appreciate them.
I ended up not getting any shot because jaw M.D. said it would be a waste and my jaw would continue doing same thing. So I got a temp night equalizer that I wore last night and already feel relief. I am also on a soft food diet. the soft food diet will be long term the M.D. told me at least 4month's.I guess I need to figure another work around on food.Any suggestions would be great!I do not eat dairy, soy, eggs, MSG, artificial coloring, and limit sugar.
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
nervous person vs.nervous patient | Bipolar Disorder | |||
New and Nervous | Trigeminal Neuralgia | |||
New n nervous | New Member Introductions | |||
I'm Nervous~ | The Stumble Inn | |||
Getting Nervous | Thoracic Outlet Syndrome |