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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-26-2013, 03:23 PM
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Hi all! I am new to the group. I am 40 years old and suffered mTBI on January 11, 2012. Now suffering with Post Concussion Syndrome, Cognitive Dysfunction, ADHD, some speech issues, headaches, dizziness, blurred vision...etc. I also have a family history of Alzheimer on Mother's side. Just scared as he**. I have a 12 year old daughter and a wonderful husband. They try to understand, but it doesn't help that I try and hide my symptoms but its exhausting pretending.
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02-26-2013, 03:35 PM
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You've found a great place
 I'm still new here too but truly a wealth of knowledge and similar lives going on in here will help you feel better.   Quote:
__________________
. What happened:I was rear ended while stopped at a stoplight in my little 'go cart' car by an F350 commercial utility van going at least 55. Driver swore his breaks locked up, so no slow down at all. . Diagnosis: Severe concussion, severe whiplash with total muscle failure 6 weeks after wreck, bulging disk between C1 & C2, mild optical damage, nerve damage affecting right arm and leg as well as right eye, PCS and TBI. . Current symptoms: Brain fog, panic attacks, delayed memory issues, confusion, trouble thinking, spacing out, near dyslexic writing/typing, vision focus issues, eyes don't work 'together', muscle spasms in neck make breathing difficult at times, numbness in right side when symptoms get worse, oh the headaches, depression and anxiety, just not me at all! . |
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| "Thanks for this!" says: | jmsarge (02-26-2013) |
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02-26-2013, 04:05 PM
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Dear jmsarge,
Firstly welcome!! You will be cared for here. You may not always like what you hear but it will be accurate info. The main guy is Mark. He has studied our condition for years. Read some of his posts on nutrition etc, very helpful. Generally there is nothing that you are experiencing that has not been covered in older posts on this site but if you feel you need support or want to ask anything etc then start a new post and we'll all chip in and help. Secondly please do not worry about the Alzheimers. It is not yet proven to be hereditary. And logic says you will die from something, do not worry from what till it starts to happen. However being scared is normal as you are suffering symptoms that you have not had to deal with before. The more we know about you the more we can help. Take care and keep in contact.
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I am a 36 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs. This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance. The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months. I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion. The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days. I have had 6 CT's, 2 MRI's and am under 3 specialists. I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation. Last edited by peacheysncream; 02-26-2013 at 04:05 PM. Reason: spelling |
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02-26-2013, 06:22 PM
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Legendary
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sarge,
Welcome to NeuroTalk. Sounds like you are living with classic PCS. Check out the thread Vitamins. It has some good links at the bottom for you to share with your hubby and family. They need good information so they will understand and be supportive. There is no reason to try to hide symptoms. It is much easier to be open with your symptoms as long as you try to not pout and complain. Understanding your symptoms allows you to look at them from an objective viewpoint. They do not mean you are deficient or bad, just that you are injured. What have you been doing to help with recovery ? Are you trying to work at a job ? What kind of environment do you live in daily ? Noisy, busy, visually stimulating ???? Are you taking any meds or getting treated by any doctors or other professionals? Where are you ? Different areas have different systems of health care and support for PCS. Please feel free to share here. You are with a good group of supportive people. Unload your burdens when you need to. We have heard them all. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-26-2013, 11:22 PM
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Welcome! Looking forward to your posts around the board.
Some of us are here asking lots of questions (like me!) and some are further along in their journey so they are great advisors. I've found great support here. I don't know what I would have done without it actually. Found these guys about six weeks after injury and have been posting ever since. (Now at 4 months) A true testament to how being here affects my recovery: I have iced my neck DAILY sometimes multiple times a day thanks to Mark's advice, and truly believe this has helped me... Yet not one doctor, specialist nor physiotherapist mentioned it. I've also made great connections with many types/ages of people going through the same struggles, and really bonded with a few moms!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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03-03-2013, 10:24 AM
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Thanks so much! I keep telling myself that I'm not a bad person, just have to do things differently.
I am currently seeing a therapist for PTSD and PCS. She is really helpful. I am currently under the care of a Neurologist, Neuropsychologist, Primary Care Physician and Therapist. I deal with the recovery by doing regular walks, going to start yoga soon. I live in a pretty quiet environment, I don't work because of the complications after the mva. I do have issues with with getting too visually stimulating, even at the grocery store. The docs currently have me on Elavil (50mg) at night and Extended release Ritalin (60mg) daily. I am located in Pennsylvania, and I'm just feeling comfortable talking openly about my condition. I am very frustrated with this and it is very difficult to describe to the uninjured person. Quote:
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03-03-2013, 10:44 AM
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Junior Member
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I was wondering if anybody has had issues with eye twitching with PCS? My eyes twitch crazy sometimes when there is too much stimulation and/or I am over exerting myself. Also issues with blurred vision that comes and goes. Sometimes I think I am going nutz!
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03-03-2013, 01:33 PM
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Quote:
I have it. And it amazed the I.M.E. of the insurance company people so much he even noted it in his notes, we are awaiting their fact finding thoughts on it now. NOTE: he is their I.M.E. not mine - but I used to work with him about 10 years ago, so he was funny when he said that he knows this is not something thats pre-existing and he has to note it as "new" - lol. It twitches to the point of blurring, or just that vision in that eye is like an old time movie; and periodically one finger on the same side of my body will start twiching almost at the same time .
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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03-03-2013, 06:27 PM
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Legendary
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sarge,
What is the Ritalin prescribed for ? Stimulants are not usually recommended for PCS. A newbie FYI : If you use the Post Reply button at the bottom left, it will not quote the previous post. It save effort trying to scroll through long quotes. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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03-04-2013, 03:35 PM
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Junior Member
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It is for the acquired ADHD that decided to show up after head injury.
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