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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-16-2013, 02:48 AM
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I totally went ice skating tonight.
Loud music, lots of people and crazy lights. I brought my earplugs, some dark shades and took frequent breaks over a 40 minute period. It was AWESOME!!!! I didn't fall or bump into anyone and made it home in one piece. I haven't felt this alive in almost two years. Praying I don't pay for it tomorrow. If I do, it was well worth it. Anyone else participate in the occasional "risky business"???
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
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| "Thanks for this!" says: | Brain patch (02-16-2013), cyclecrash (02-16-2013) |
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02-16-2013, 07:49 AM
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Yes. To be honest, this is the only way to gauge your "re-entry" into the world. Sometimes you'll have an awesome experience, sometimes your brain will make you pay for it. But either way, you won't know until you try.
I'm so happy that you had a positive experience! Hopefully you are feeling good today too. Don't get cocky though! Just know that you may be able to tolerate a little bit more than you thought so slowly start doing more if you aren't in pain today. That's awesome that you had fun!
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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| "Thanks for this!" says: | SpaceCadet (02-16-2013) |
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02-16-2013, 09:01 AM
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I am so glad you were able to get out and have some fun. Good job. It takes a lot of nerve to even try to do these things. I love your attitude tword things and appreciate your sense of humor so much. You have made me feel like maybe I can be ok a little this way. Thanks a lot space cadet. Peace.
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | SpaceCadet (02-16-2013) |
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02-16-2013, 09:35 AM
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Nick that is AWESOME!!!!I am happy you got to do something out the box of PCS.I actually was considering going on our spring break snowboard trip and just do the bunny hills with a helmet(never wore a helmet lol)I don't know if I will follow threw because of my balance issues.That is great that you went out and remembered how to do ice skating like you did before PCS!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | SpaceCadet (02-16-2013) |
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