Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-19-2013, 09:37 AM #1
"Starr" "Starr" is offline
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"Starr" "Starr" is offline
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Default Do I Get Cake Or What?

Today is my one year anniversary of my fall. Not sure if its a day to be forgotten or celebrated. On one hand, its changed my life and not necessarily for the best. On the other hand, I'm alive. Proof that helmets do save lives.

In reality, today will be just a day like most others. A chiropractic appointment and a nap.

I have seen some improvements in this year, but they've been slow to happen and progress is frustrating. But if I look not day to day or week to week, but over the longer term, there IS progress, so that I hold onto.

I don't expect things will ever "be the same" or "go back to how they were" but in reality, even without profound accidents, things always change and evolve and nothing is ever the same, so maybe this is not that different. I'm not convinced, I'm still wrestling with it.

Anyhow, just my thoughts on my anniversary. Be well and keep doing the things that are good for you and eventually over the long haul, maybe you too will notice little tidbits of progress.

Starr
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"Thanks for this!" says:
concussedlawyer (02-20-2013), Mark in Idaho (02-19-2013), MiaVita2012 (02-19-2013), Mokey (02-19-2013), MsRriO (02-19-2013), SpaceCadet (02-19-2013)

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Old 02-19-2013, 11:38 AM #2
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cyclecrash cyclecrash is offline
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Default

I say Yay helmets! or I wouldn't be here either! I would make you a sugar free, gluton free, all natural whole foods cake if you wanted it! (but believe me you probably wouldn't want it ) A normal cake would just cause inflammation and you don't want any more of that.

Congratulations on making it to one year strong and with a good outlook! Hopefully once all the stress in your life settles back to normal stress you will start to see more progress when you look back a couple months. You definitely cannot look back weeks or days but I'm sure you are seeing a big difference if you look back say 6 months or more.

I hope you have a good day!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 02-19-2013, 03:43 PM #3
Mokey Mokey is offline
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I also say 'yay for helmets!' or I wouldn't be here either!
Great to have progress. There is more to come. I felt very solemn on my one year anniversary...felt the need to mark it somehow. So good for you for posting!
I am now six months past that one year anniversary, and have seen a steady improvement in most areas. So keep on keeping on!
Keep hopeful.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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