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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-19-2013, 09:20 PM
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its been a year since i got my PCS. ive come a long way and pretty much can live my normal life but i half the week i feel fine the other half i feel kind crappy and if i stay out all day no matter how i feel i will feel crappy
ive had all the rest and good food in the world. i havent drank and i keep my exercise to a point i can handle after a year im starting to realize rest isnt gonna do anything for me anymore. im gonna start just doing whatever i want whenever i think maybe my brain is in slow mode and needs so experience to break through and be normal agian. does that make sense? like if i feel fatigue im gonna just push through it....if my eyes hurt looking at the computer im gonna keep looking at it. do you think i can get to the point where my brain just gets used to the lights/fatigue agian and i wont even notice it anymore? |
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| "Thanks for this!" says: | Brain patch (02-20-2013), MOMMYMBD (02-25-2013) |
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02-19-2013, 09:41 PM
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I personally have got to point that if I get to fatigue from pushing I will fall out meaning my body wont let me push until I recharge with sleep...If I was to add stress and push I don't know, I feel like I might pay for it for a few days....just my two cents...I found if I go to MD Appts 3 days out of the week and just do errands and clean house I am wipeout!
I ask my psy if I could get something besides all the rest,vitamins,food and exercise to give me a boost....I constantly feel like Im dragging my feet now.I got reply from MD of NO lol  Quote:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ Last edited by MiaVita2012; 02-19-2013 at 10:12 PM. |
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| "Thanks for this!" says: | Brain patch (02-26-2013) |
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02-19-2013, 09:43 PM
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I have a friend that was hit by a truck and suffered a severe concussion and he's actually been one of my worst supporters because he believes I should just push through it and it will get better. I guess that's what he did at the 6 month mark and it worked for him. His was a LOT of physical injuries that had to heal and did. He's actually kind of stopped speaking to me which is sad.
Sorry sidetracked a bit! I often wonder if what he says might work. I'm at 8 months but I don't feel well enough yet to "push" . Or maybe I'm not fed up or frustrated quite enough yet. Day may come though so I totally see your point. I also think that being in the house resting all the time makes you too aware of everything that's wrong with you and that can backfire also. They say you can't push through a concussion though so I don't know. Has anybody (other than my friend who I think is fooling himself) actually succeeded in pushing through and still seeing improvements? CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-19-2013, 09:50 PM
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im really starting to think your brain goes into slow mode and has to broken in agian
for example a few months into my concussion i was so anxious i couldnt go anywhere without a panic attack. after forcing myself to grocery stores, having people over and just being out and about in general i am now at the point where i dont have an ounce of anxiety with exercise i had to start off slow now i can pretty much workout any way i want and feel ok my lasting symptom is my flashing vision with double vision in my left eye and even though it hurts to be on the computer now im gonna just stay on it and deal with it. i have some brain fog but i noticed if i just realize its part of my PCS and its not gonna kill me i can push through and eventually during the day it breaks. i feel im past the point where i will set myself back to the begining of PCS agian. even on my worst days now they are no where near how they were and i feel the only way i could reset myself agian would be to get drunk but im not gonna do that. and i really noticed what has been helping me is realizing you do have PCS but the worst is over and you will not die from feeling crappy so that crappy feeling i just have been dealing with and it helps to put it in the back of your mind |
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| "Thanks for this!" says: | MiaVita2012 (02-19-2013), Mokey (02-25-2013) |
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02-19-2013, 10:05 PM
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I think you spend so many months thinking "I can't do that or I'll (get sick, get a headache, have a setback, have anxiety)" so we don't do that thing. There comes a point or even different points along the way where you have to "test" those old things again and see that in fact you can do them now or its really not so bad. This then gives new confidence to slowly try other things. Sounds like you're at a good point to carefully push the envelope a little and try old things again.
My NP gets mad at me because I test too much and too soon and set myself back. You can't do it after just one good day! Sounds like you're in a pretty good place and I hope you take the testing slow and steady! That's a shame they can't help you more with your vision. I'm sorry I don't remember if you've seen a neuro ophthalmologist or not? What do you mean by flashy vision? My eyes are my worst symptom and I feel I could do so much better if I could get them straightened around but is it my eyes or my brain that's the problem? Good luck to you. I hope I can try pushing too at one year! Maybe then my friend will come back..... CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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02-19-2013, 10:21 PM
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and my eyes are my biggest problem. ive seen two optometrist and a neuro ophthalmologist and they both say my eyes are perfect its all in my brain. ive seen a neuro that says im stuck in a migraine state and thats maybe why my eyes are bothering me. ive taken multiple meds with no luck so i hope its not permanent damage. my flashy vision is like a constant migraine aura in my peripheral vision. |
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02-19-2013, 10:55 PM
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I don't know. I don't have good judgement yet. I never know if it it's to little or too much. People here say to listen to your body.
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-25-2013, 02:32 PM
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They are right, but there is definitely a point where you just have to push on. There are things you will have to deal with, the "swelling" pressure feelings, the vision issues, the fogginess, that after a certain amount of time you learn how to decipher when they will be better or worse and when you can push and when you just can't. For me, I play softball again now and there are most games I get bad and can push but some I know better, overcast days are a NO NO!
There are also times where you just have to say hey, I have the time I will just take it and let yourself just rest. Do something that doesn't upset your brain, I cook, and let it not have to push through. It will thank you with a good day soon to follow. I'm paying today, Monday, for too busy of a weekend and I've cancelled my plans for tonight to recouperate. You have to listen, pushing too far isn't going to make the next few days better, but not pushing willl leave you feeling isolated and alone in a depressed state. At least it does me. Quote:
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. What happened:I was rear ended while stopped at a stoplight in my little 'go cart' car by an F350 commercial utility van going at least 55. Driver swore his breaks locked up, so no slow down at all. . Diagnosis: Severe concussion, severe whiplash with total muscle failure 6 weeks after wreck, bulging disk between C1 & C2, mild optical damage, nerve damage affecting right arm and leg as well as right eye, PCS and TBI. . Current symptoms: Brain fog, panic attacks, delayed memory issues, confusion, trouble thinking, spacing out, near dyslexic writing/typing, vision focus issues, eyes don't work 'together', muscle spasms in neck make breathing difficult at times, numbness in right side when symptoms get worse, oh the headaches, depression and anxiety, just not me at all! . |
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02-25-2013, 02:55 PM
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I am coming up to 4 months and am starting to push on, you have to test yourself, especially going back to do things which provokes symptoms within reason. I cannot swim or go to the gym, but I can do a big shop in a supermarket, weed the garden for an hour, or go for a long walk. I have been unable up until now to do these things, but I can do them because I tried. I think that it needs to be a gradual process though, because one wouldn't want to provoke the symptoms I had in the first 3 months especially headaches, chronic fatigue and severe light/noise sensitivity.
Last edited by mouse1; 02-25-2013 at 03:30 PM. |
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02-25-2013, 06:06 PM
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I know I cannot handle my biz @ moment to much stress.I am going to try to push a 5 week online college course....I feel like I need to try sooner then later while I am waiting to get some therapies...I need to apply myself to something besides PCS because It is time to take a trial run....we will see what happens!
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (02-26-2013) |
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