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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-22-2013, 09:46 AM | #11 | ||
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Mark, do you have any reference or literature you can point me to to help me discuss with the doctor? Thanks?
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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02-22-2013, 10:28 AM | #12 | ||
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Re Insomnia....
I am gettinig beter at this! It was a nightmare for at least a year....I was told that some people with brain injury sleep all the time and others stay awake all the time! Both are problematic! A neuropsych counselled me on reducing my stress over the insomnia...he said to aim for a solid three hour chunk and build from there. I am getting better, and realise I can function (somewhat!) without a full 8 hours. But it does make me wonder how much faster I could improve if I had had great sleeps for 18 months! Also check your medications...I was taking one that caused insomnia (amantadine) so I stopped it. Now that I am sleeping a bit better, and seemed stalled in my recovery, I am back on amantadine because I believe it is very effective for me. So far, waking up only once or twice. But I am trying to go with the flow! I tried sleep medication (lunesta type) but it didn't work! Just made me feel tired AND groggy the next day. Good luck...it does improve, I hope! It has for me, but I know what a night are it can be.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | Brain patch (02-26-2013) |
02-22-2013, 01:35 PM | #13 | |||
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Thanks for this information. Had a really interesting conversation today with my neuropsychologist who said that with PCS my tension/arousal levels are higher than normal causing reduced concentration, headaches, photophobia and fatigue etc, so when faced with stress the impact is a lot greater on me. This probably explains why I have isolated myself from my family, and children for the past few months and enjoy my own company. I don't feel good about it, but I feel better for it! As time goes by the tension/arousal levels drop and with it the symptoms drop, until eventually everything falls back into place. Stressing about the condituon isn't going to help when you have already raised levels of tension/arousal. I know only too well this is easier said than done! Biochemical changes have happened which will reverse in time, it is a temporary condition for many. The pressing sensation in my head is apparently muscular and has nothing to do with bloodflow like I thought, I have learned a lot today.
Last edited by mouse1; 02-22-2013 at 02:15 PM. |
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"Thanks for this!" says: | Brain patch (02-23-2013), cyclecrash (02-22-2013) |
02-22-2013, 02:19 PM | #14 | ||
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I think that makes sense. My happiest place is usually being by myself.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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02-23-2013, 03:19 AM | #15 | |||
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I think having my symptoms explained to me, and the causes of them has really helped. Knowing that I am in a heightened state of stress/arousal and subsequently the normal stresses of the day are exacerbated is a relief to me. That the pressing in my head is muscular and not to do with bloodflow, and that the wave like symptoms I have relate to stress and not something else. When you have PCS you need a neuropsychologist to help you! I slept 11-12.30 and then 1-6, I feel like I could run a mile - not that I will be doing that! Please God it will continue.
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02-24-2013, 10:44 PM | #16 | |||
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A neuoropsychologist is a great support during the Pcs journey! My NP says she is my concussion Sherpa and it is her job to be my guide along the way Just knowing the reasons why things are happening, that they are a normal part or recovering from concussion and that they will get better or go away is a huge help!
Just having someone understand and believe what you're going through helps. Mine has also been fabulous at explaining things to my doctor, disability company and family when I wasn't able to very well. Of course this all doesn't come cheap! Everyone should be seeing one if they can afford it or have insurance coverage! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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02-25-2013, 05:45 AM | #17 | |||
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