Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-27-2013, 10:05 AM #1
kbenson kbenson is offline
New Member
 
Join Date: Feb 2013
Posts: 4
10 yr Member
kbenson kbenson is offline
New Member
 
Join Date: Feb 2013
Posts: 4
10 yr Member
Default Sounds and crowds

Hi all,
I am new to this forum. I thought my symptoms had pretty much dissipated, but am finding that they still linger, almost six months after a car accident. Things like, still having problems sifting through a one-on-one conversation when other people are nearby and talking; sensitivity to loud sounds, stumbling over saying some words when I am tired.

The first day, I had some nausea, dizziness, and especially noticed problems understanding whether the nurse was asking for my zip or area code, and which one it was... then it was hard to pull the right word out. I rested some, but didn't get much followup. Also had distortion of vision, such as walking down a hallway and the perspective was way off... looked like one of those mirrors in a funhouse because it narrowed so severely. I think I just got scared and wanted it all to go away.

My car accident happened out of state, I was at school for a week (master's program), and just kept going, and then I didn't really rest until I got back home. Of course they say don't make any big decisions after a concussion, but I had to get a new(er) car! ha

Also still having problems with my neck and a jaw that pops out of place, but that is different than the concussion symptoms. Any thoughts/ideas/feeedback would be helpful. We have healthcare nearby, but not very sophisticated, mostly just a county hospital.
kbenson is offline   Reply With QuoteReply With Quote

advertisement
Old 02-27-2013, 10:41 AM #2
Brain patch's Avatar
Brain patch Brain patch is offline
Member
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
Member
Brain patch's Avatar
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default Neurologist

Hi,
Welcome! Have you been to a neurologist? I found this was a good place to start for me. He recommended Neuropsychological Testing which has been very helpful so far. I am still undergoing the testing but it looks like it is going to give me a lot of answers and direct me to the type of treatment that I need.
Have you had an MRI? I am so sorry you are suffering these symptoms. Hope you get feeling better soon. Others will come along and offer more advise.
Brain
__________________
Brain patch.
.


Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
Brain patch is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Suzi Q (06-26-2018)
Old 02-27-2013, 11:22 AM #3
Lightrail11's Avatar
Lightrail11 Lightrail11 is offline
Member
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Lightrail11 Lightrail11 is offline
Member
Lightrail11's Avatar
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Default

Hi and welcome. The symptoms you describe are consistent with post-concussion syndrome. Your experience of symptoms six months post trauma is not unusual, all brain injuries are different and they heal on their own schedule.

You will find lots of good information here. In general, rest, good nutrition including a healthy vitamin regimen, and refraining from alcohol is recommended. Asking questions and giving some more details on your medical care to date will allow other forum members to share experiences that are close to yours, and give advice that have worked for similar symptoms.

Best to you as you recover.
__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
Lightrail11 is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 01:45 PM #4
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Quote:
Originally Posted by Lightrail11 View Post
Hi and welcome. The symptoms you describe are consistent with post-concussion syndrome. Your experience of symptoms six months post trauma is not unusual, all brain injuries are different and they heal on their own schedule.

You will find lots of good information here. In general, rest, good nutrition including a healthy vitamin regimen, and refraining from alcohol is recommended. Asking questions and giving some more details on your medical care to date will allow other forum members to share experiences that are close to yours, and give advice that have worked for similar symptoms.

Best to you as you recover.
I was told by my doctors that post concussion is not a brain injury but a head injury. It is a semi-perminent condition but many people who experience it think it is a brain injury. A brain injury has to be confirmed on a CT or MRI, this isn't the case with PCS.
mouse1 is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 02:07 PM #5
cyclecrash's Avatar
cyclecrash cyclecrash is offline
Member
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
10 yr Member
cyclecrash cyclecrash is offline
Member
cyclecrash's Avatar
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
10 yr Member
Default

I'm sorry but I don't understand what your doctor is talking about. A concussion is most certainly a brain injury:

From the Brain Injury Association of Canada,
"Mild Traumatic Brain Injury (mTBI) is also known as concussion. "

Ontario Neurotrauma Foundation,
"Concussion/mild TBI (mTBI) is the most common form of traumatic brain injury."

Center for Disease Control and Prevention,
"What is a Concussion?
A concussion is a type of traumatic brain injury, or TBI, caused by a bump, blow, or jolt to the head that can change the way your brain normally works. "

Maybe he's thinking that Post Concussion Syndrome is not caused by a brain injury because it is not confirmed on CT or MRI but then what is causing it? I don't understand his logic. Sorry

CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 02:10 PM #6
Brain patch's Avatar
Brain patch Brain patch is offline
Member
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
Member
Brain patch's Avatar
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default Head injury or brain injury

That is interesting mouse. I know mine is a traumatic brain injury because it does show damage on an MRI. Also, I am still having severe problems and my injury happened in 2006. With some 5-7 concussions before that. I am still not able to drive or work and have very limited activities. I know mine is possibly permanent. I have both diagnosis of TBI and PCS. I was wondering about just having the post concussive syndrome though. Do you think this is a permanent kind of syndrome like chronic pain that becomes a chronic condition that you have to manage? Or do you think it is possible to completely heal with no symptoms at all after having been diagnosed with post concussive syndrome?
Let me know what you guys think.
Brain
__________________
Brain patch.
.


Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
Brain patch is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Suzi Q (06-26-2018)
Old 02-27-2013, 02:48 PM #7
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Quote:
Originally Posted by Brain patch View Post
That is interesting mouse. I know mine is a traumatic brain injury because it does show damage on an MRI. Also, I am still having severe problems and my injury happened in 2006. With some 5-7 concussions before that. I am still not able to drive or work and have very limited activities. I know mine is possibly permanent. I have both diagnosis of TBI and PCS. I was wondering about just having the post concussive syndrome though. Do you think this is a permanent kind of syndrome like chronic pain that becomes a chronic condition that you have to manage? Or do you think it is possible to completely heal with no symptoms at all after having been diagnosed with post concussive syndrome?
Let me know what you guys think.
Brain
I honestly don't know! I am coming upto my 4th month of Postconcussion Syndrome and both my doctor and neuropsychologist have said I have a significant head injury but not a brain injury. I have had severe light/noise sensitivity, chronic headaches\migraines, chronic fatigue, tinitus, pain in eyes, teeth, sinus and facial pain. Numbness, fuzzyness, hypersensitve hearing, motion sickness, insomnia, wave sensations through body (tension). In the first 2/3 months I had these problems on a fairly constant basis.

Currently instead of headaches I have head pressure occasionally, numbness, tinitus rarely, milder noise/light sensitivity, ear ache, eye pain occasionally, blurred vision, concentration problems, occasional fatigue, and occasional wave sensations through body, exercise intolerance and improving insomnia. On occasions I have felt normal for 5 minutes or so, without symptoms. All of the symptoms are coming and going, so I am therefore told that this is a sign that I am in the process of recovering from PCS. If I do recover it isn't a brain injury but a temporary condition?
mouse1 is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 03:08 PM #8
Brain patch's Avatar
Brain patch Brain patch is offline
Member
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
Member
Brain patch's Avatar
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default I think that is good news either way

Mouse,
I think that your improved symptoms is good news either way. I think it shows that your still recovering. I am at a point and have been for a long time that the symptoms remain the same. Some good days and mostly bad days but it is a constant. With you having such improvements in areas I think there is great hope for you. I am hoping for 100 percent recovery for you. Do you feel like your old self or do you feel like a totally different person? I do not remember who I use to be. I am having to form a whole new identity.
Keep up the progress! I am pulling for you.
Brain
__________________
Brain patch.
.


Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
Brain patch is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 03:12 PM #9
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Quote:
Originally Posted by cyclecrash View Post
I'm sorry but I don't understand what your doctor is talking about. A concussion is most certainly a brain injury:

From the Brain Injury Association of Canada,
"Mild Traumatic Brain Injury (mTBI) is also known as concussion. "

Ontario Neurotrauma Foundation,
"Concussion/mild TBI (mTBI) is the most common form of traumatic brain injury."

Center for Disease Control and Prevention,
"What is a Concussion?
A concussion is a type of traumatic brain injury, or TBI, caused by a bump, blow, or jolt to the head that can change the way your brain normally works. "

Maybe he's thinking that Post Concussion Syndrome is not caused by a brain injury because it is not confirmed on CT or MRI but then what is causing it? I don't understand his logic. Sorry

CC
I agree that it is a type of brain injury because the functioning of the brain is affected, however I am told that I do not have a brain injury because the CT scans I have do not show any brain injury.
mouse1 is offline   Reply With QuoteReply With Quote
Old 02-27-2013, 03:19 PM #10
MsRriO's Avatar
MsRriO MsRriO is offline
Member
 
Join Date: Dec 2012
Location: Saskatchewan
Posts: 237
10 yr Member
MsRriO MsRriO is offline
Member
MsRriO's Avatar
 
Join Date: Dec 2012
Location: Saskatchewan
Posts: 237
10 yr Member
Default

Quote:
Originally Posted by mouse1 View Post
I was told by my doctors that post concussion is not a brain injury but a head injury. It is a semi-perminent condition but many people who experience it think it is a brain injury. A brain injury has to be confirmed on a CT or MRI, this isn't the case with PCS.
I'm with CC on this one. Very odd counsel from your doctors... sounds like lawyer semantics to me... but that's what we all come to expect with the sheer volume of misinformation out there.

Back to topic:

Welcome to the forums Kbenson! Six months post injury you say hey... I'm at 4 months myself and still experiencing many symptoms. You will find great info here if you browse around. It's not all in one place because as you can see, conversations take on a life of their own even within threads. That's ok, because we're all learning from one another. I guess there's an ebb and flow in many threads.

One thing that stands out from your post is master's program! Quite something to have an injury during such an intense time. Are you finished schooling and now working or are you taking time to rest?
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
MsRriO is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I know this sounds trite....but....... karilann The Stumble Inn 12 05-15-2011 09:49 PM
Sounds of Silence cyclelops Peripheral Neuropathy 11 01-11-2008 12:07 AM


All times are GMT -5. The time now is 11:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.