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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-06-2013, 08:22 PM | #1 | ||
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First day of therapy, and I've been nauseous and had a bad headache since about a half hour after I got home from my appointment. Are the next 11 days going to suck this much? Is this normal? Got to get off this evil iPad and sit in the dark. Any feedback would be appreciated!
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03-06-2013, 08:37 PM | #2 | |||
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I'm surprised they didn't warn you... I'd say its completely normal but I suppose you should take the advice of someone that's actually had vision therapy over mine! The reason I understand what you are going through is because I've had vestibular therapy and the exercises start out all eye movements. I have eye issues also.
The day of my first session was the worst, the next day wasn't great and then I was back to the usual. I don't know how long it will last for you but today will probably be the worst. Hopefully someone that's actually had vision therapy will answer you with more helpful advice Just wanted to say I know what you're going through and its most likely perfectly normal! No pain, no gain. Good luck with your treatment and I hope you are feeling better soon! On days I have therapy I schedule nothing the rest of the day and make sure there's leftovers in the house! Take care CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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03-06-2013, 09:44 PM | #3 | ||
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Hi, I had vision therapy for about 4 months, and the 1st session was definitely the hardest on my brain. It took a few hours for it to settle down afterwards. I was also a bit nauseous. The therapist gave me exercises to do at home, as well. And they also bothered me. But each session got a bit better, till I could handle it fine.
Take it easy after you get home, if you can. And rest. That always brings me relief. Best of luck to you. |
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03-06-2013, 11:01 PM | #4 | ||
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This therapy is every day for 1 1/2 hours for 12 days straight. I'm wondering now if this is typical? I am dying to research more, but I can't. I might just have to wait to talk to them about it tOmorrow.
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03-06-2013, 11:07 PM | #5 | |||
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Wow that does sound really intense! Hopefully each day gets a little better! Let us know how it goes. Vision therapy is something I've been trying to get for months. Still have a long wait.
Take care CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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03-06-2013, 11:48 PM | #6 | ||
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That sounds like a lot to me. I was told at the beginning, about 15 minutes a day and increase as you feel able.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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03-07-2013, 02:55 PM | #7 | ||
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The therapy may vary on the type of vision issues they are addressing.
With my convergence insufficiency, I meet for 8 weeks once a week for 1 hour each session. In the first weeks, I got intense migraines afterwards, and I needed to rest before tackling the rest of the day. In the second month, my therapy seems to have plateaued, and I am not really progressing now. The headaches are still here, but they are less intense and no migraines. But I have eye twitching and blurriness afterwards, so I know they are working hard. I was told that it was important to go up to your "threshold" for these exercises, but I know I get anxious and haven't really done so. Best of luck! |
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03-07-2013, 06:35 PM | #8 | ||
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When I had my eyes tested, it flared up my symptoms really bad and was told it would be pretty similar for vision therapy. I ended up going with another eye Dr. because I didn't want to have to drive for therapy and it was more costly than getting the tinted glasses.
The nice thing about the glasses is the eyes self correct themselves and you get relief right away. After wearing the glasses for 6 weeks, I got tested again for convergent insufficiency. I was still outside the normal boundaries but it was a huge improvement from where I was. Best of luck with vision therapy and I hope you find relief. |
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03-07-2013, 06:50 PM | #9 | |||
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What do they do to test for it? Is it a machine or do they just look at your eyes and have you move them or something? I know I have as yet undiagnosed eye issues but I'm not sure it's convergence insufficiency from what I've read on it.
CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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03-07-2013, 08:27 PM | #10 | ||
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Quote:
I know if you read online the definition of convergence, it says you see double images but that wasn't the case for me. I had difficulty reading for more than a couple minutes or spending more than 30 min on a computer. I did vestibular therapy and doing the tracking exercises would always make my symptoms horrible but since I had no problem actually seeing things in focus, didn't think vision was the cause. |
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