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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-08-2013, 08:34 PM
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Hi Everybody,
Hope you are doing well. I am just wondering if any of you with PCS have had any seizures? I had a bad one at the end of January and just had another one on March 7th. Dang! These things hurt. Makes you feel like you have been beat with a baseball bat. I think mine are from my sleep disorder but was just wondering if anyone else has had one. Mine are happening in the night while I am asleep. I was woken up in the middle of the first one and I was having the REM sleep behavior where I act out my dreams. I slept through the one I just had but know I had one because of the way I feel when I wake up. The neurologist thinks I could have nocturnal frontal lobe epilepsy but I can't afford the sleep study to nail down whether it is that or REM sleep behavior disorder or both. Another thing I do a lot is eat candy in my sleep. Weird. Anyone else have any strange sleep problems or seizure activity? Thanks. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-08-2013, 09:40 PM
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I had a few slight trauma seizures in Jan....I was just wore out after...good thing they happened while I was on bed so I had soft landing but really did not fall out hard.I have not had any since I got on valium.
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-09-2013) |
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03-09-2013, 10:54 AM
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I feel like I have been beaten by a gang of Hells Angels with baseball bats. Seizures hurt bad for weeks. I guess I was lucky I was in bed too so I was on soft things but it does not feel like it helped much.
I am going to ask my doc if I can take one clonazepam in the afternoon and one at night. How many Valium a day does your doc let you take? I am thinking I need one in the day for anxiety and one at night for the seizure control of the sleep disorder. Things have gotten so stressful at my house. My dad has Parkinson's disease with dementia and things have gotten worse lately real fast and my mom is a nervous wreck. It is affecting me. I am having bad anxiety /panic attacks and seizures. I think the sleep disorder is aggravated by stress so therefore so are the seizures. I am in hell. I hope you guys are having a much better day than I am today. Brain 
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-09-2013, 11:06 AM
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I take 2 10mg at night....I was on xanax when I was having the trauma seizures...you might need to change benzos?
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-09-2013) |
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