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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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08-27-2015, 08:40 PM | #11 | ||
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My Sports Med Doctor advocates something along that line called HRV biofeedback.
According to his website: "Heart Rate Variability (HRV) Biofeedback is used to restore balance to the autonomic nervous system. It has been postulated that during the post-concussion syndrome the balance of the automatic response to stress is dysfunctional. Evidence has shown that aerobic exercise training increases parasympathetic activity reduces sympathetic activation, and improves cerebral blood flow. In addition to the exercise protocol, heart rate variability training may help to restore balance in autonomic nervous system function, which in turn can help reduce symptoms." It sounds interesting in theory, but when you are tired all the time its very hard to get the right amount of exercises...It's still a work in progress on my end. |
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08-28-2015, 12:29 AM | #12 | ||
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Micro,
It would be a lot easier to exercise if it didn't create such genuine discomfort, don't you think! I can't complain as this time last year I couldn't do a thing except walk around the house. I can't run like I want but I can walk and swim. Bud |
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"Thanks for this!" says: | MicroMan (08-28-2015) |
08-28-2015, 05:23 PM | #13 | ||
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I've been trying to do something similar to the Buffalo Protocol for almost two years now using a stationary bike. Made some progress with it, especially this year. I'm able to sustain 30 minutes at 145-150 bpm without too much of symptom increase afterwards.
When I just started with it, I would literally just do 2-3 minutes of slowly turning the pedals with no resistance, but even that would increase my symptoms. Eventually I worked myself up to adding some resistance/time. Every time I have a setback I have to stop, sometimes for a few months at a time. After my ear surgery I stopped for about 6 months. After these long stops I go back to slowly working it up again.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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08-31-2015, 07:13 PM | #14 | ||
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I was told by the team of doctors that the first 6 months is rest the brain (for MBI). I could then start excising working up slowly. They didn't want me to do heavy weight lifting or go all out.
I was able to run 4 miles within 6 weeks (I was a runner before the car accident). I then stopped because I wanted to focus on mental tasks and found the excising very draining. |
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09-10-2015, 02:11 AM | #15 | ||
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Quote:
I am still around but haven't posted in a long time, as Mark correctly pointed out. My symptoms are much the same as they were when I initially developed PCS several years ago. The only improvement I have noticed is being able to tolerate light and noise with less difficulty. Although I do not wish to sound pessimistic, I realised about a year ago that I was never really going to recover to anywhere near the person I was. So I stopped reading and posting on this forum as it wasn't really helping me personally, and instead was constantly reminding me of my problems and causing me to focus too much on symptoms. It is a negative spiral. These days I try to take it easy and find that I feel better when I think less about symptoms. However they are still easily brought on by physical (especially) and cognitive exertion. I would suggest this is due to the myelin sheath surrounding the neuron axons now being damaged, sensitive and prone to inflammation following exercise. I do not think there is a cure for this. But such is life and accepting my state has at least allowed me to move on and experience happier times. I hope all the best for you. Halfnelson |
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"Thanks for this!" says: | Bud (09-10-2015) |
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