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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   my doctors say never have seen someone like me (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/185326-doctors-seen.html)

Lui 03-13-2013 08:31 PM

Thank you so much! You don't know how much you're helping right now! I needed that!:)

Concussion 03-13-2013 09:27 PM

Very well put , Brain Patch.

Lui 03-13-2013 10:13 PM

btw, i asked him in panic if there is any chance of recovery. he said yes, but vision problems are hard to fix. he said i am having good chances to actually heal because i am young. but it's gonna take a long time. beside that, he is really clueless.
if i will ever be ok again, i would appreciate life like never before. I think everybody with pcs would...
then he prescribed me a migraine medicin with caffeein in it?! tought that would be bad for concussion?
the funny thing is, my mom won't let me take it if it causes any serious side effects. If she would have my migraine headaches...:mad:

DFayesMom 03-14-2013 06:34 AM

Just wanted to say
 
That I have a few similar remaining symptoms and that mine are vision-related. I'm doing vision therapy. Visual snow, Dream Feeling, Flashes, Light Sensivity, and Ice pick headaches are likely related to vision issues from the concussions. Do the headaches start above or behind your eyes? Anyway, you have a good attitude. Did your neurologist recommend seeing a neuro-opthamologist? If not, I'd look into it on your own.

Lui 03-14-2013 06:44 AM

Yes, I told him that I want to see one and he gave his ok! How is vision theraphy working out for you?
The heaches are on top of my head where the ball hit.

Brain patch 03-14-2013 08:49 AM

What do you mean your mom won't let you take it if it has any side effects? She is not taking your medication away from you? I have had the kind you are talking about with caffeine. It actually works really good. Actually, extra strength excederin works really good and you can buy that at the store without a prescription. Just remember not to take more than 4 pills a day EVER. The Tylenol in it is bad for your liver. This is how I had liver failure. If you think PCS sucks, you won't like liver failure at all.
Brain

DFayesMom 03-14-2013 04:18 PM

Vision therapy
 
What I'm doing right now is a combination of vision therapy and sensory integration therapy. As of today, knock on wood, it seems to be working! I'm trying not to get my hopes up too high, but I just feel different today, less dizzy. I'm seeing more depth in things that looked flatter previously. I'm pretty excited. Yesterday, I was just miserable and concerned about not seeing any results yet, but today is just so different. I will post about it after I am done with this intensive part of the therapy.

Lui 03-14-2013 05:18 PM

Got the medication today. I lied to my mum(sorry mum)! I just can't stand that headaches anymore. It's called Esgic or so. I won't get any liver problems when I am just taking one every six hours right?
Beside that I got all the supplements Mark wrote down.
@DFayesMom, what are your symptoms? My best for your recovery!

Brain patch 03-14-2013 06:49 PM

Good girl. Nope you won't get any liver problems if your not taking too much. Take only as prescribed and you will be good. I took my regular medication and added extra strength excederin on top of it without realizing they were both jam packed with Tylenol. This ended up in Tylenol overdose and boy was it painful.
Just remember to rest when needed instead of just pushing yourself and taking more medication so you can keep up your normal lifestyle. That is where the problems begin. We must listen to our bodies and not just keep pushing at all costs. Because the costs are high.
I am so glad you are feeling so hopeful and I see you are tough and a fighter.
Be kind to yourself.
Brain

Lui 03-14-2013 06:59 PM

Quote:

Originally Posted by Brain patch (Post 965966)
Good girl. Nope you won't get any liver problems if your not taking too much. Take only as prescribed and you will be good. I took my regular medication and added extra strength excederin on top of it without realizing they were both jam packed with Tylenol. This ended up in Tylenol overdose and boy was it painful.
Just remember to rest when needed instead of just pushing yourself and taking more medication so you can keep up your normal lifestyle. That is where the problems begin. We must listen to our bodies and not just keep pushing at all costs. Because the costs are high.
I am so glad you are feeling so hopeful and I see you are tough and a fighter.
Be kind to yourself.
Brain

I won't let this ball I headed ruin my life!:winky:
Thanks for the help man! When do such medication usually start to work? Right after the first tablet?
That sounds horrible! I hope you're gonna feel better soon! Don't give up either! I am so sure that evrybody can heal!:)


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