Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-14-2013, 10:29 AM #1
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Default Seeing doc today about MRI results- scared

Hi Guys,
I am seeing my doctor at 3:00 today. Will be finding out what MRI report means. Shows a 3mm part of my brain that is receiving no signals. This does not sound good. I am scared. Keep me in your prayers please. I will let you know how it goes ASAP.
Brain
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-14-2013, 10:38 AM #2
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Good luck Brain!
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 03-14-2013, 02:34 PM #3
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Thinking of you.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 03-14-2013, 02:35 PM #4
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Heart You are a fighter!

I hope you get some answers or a answer to the seizures to start(baby steps).You are a strong fighter and you will keep fighting for answers
Yes I agree you do need to see some MDs in the Neuro speciality most def!If you don't mind me asking have you not because of insurance?Let us know how your day goes....keep your head up
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-14-2013, 06:34 PM #5
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Hi Everybody,
I went to my pain doctor today and he just said that the MRI is conducive to people who have migraine headaches. He is not real educated about brain injuries. He has always just treated me for chronic pain. I have just stuck with him because he is always positive and just encourages me to fight my way through the pain and other symptoms. I like him for that reason. But I realized I needed to see a neurologist when I started having seizures. As well as I was denied disability because I need to give them evidence of my impairments. So after the neurologist diagnosis which totally made me understand what was going on with me I have been going for neuropsychological testing. So I can provide evidence of my impairments. I think I will get a lot more answers from the neuropsychologist when she is done evaluating me. She seemed to think the MRI had more significance than what my doctor today said. To answer your question Mia, I have just been too damaged to figure out what kind of doctor I needed to go too. I just thought all these other symptoms were from having such severe chronic pain. I did get my doctor today to fill out an impairment rating for me for disability. I will turn that in with the neuropsychologist report and I have already turned in my MRI , letter from neurologist and some random notes from me and from people who have been with me when I have sustained concussions from passing out. I hope this is going to be enough evidence to get me on disability. I don't know what else I can give them. If anyone has any ideas I would love to hear them. I really can't work or I would be. I hate being without money. But what kind of job can you do if you can only leave your house for a few hours on good days and have a hard time even getting yourself dressed?
Hope you are all having a good day. Spring is here!
Much love to you all,
Brain
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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