Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 03-24-2013, 09:48 AM #1
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Brain patch Brain patch is offline
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default Good news

I had it out with my little brother last night. He finally listened to me and I was able to explain to him what has and is happening to me. He has taken my behaviors as rude instead of realizing that I act this way to avoid stress, seizures, symptoms. I am so glad that I finally have a family member that "gets it". He has agreed to become an advocate for me and to help me get disability. He looked it up and found out the only requirement to obtaining disability from social security with the diagnosis of traumatic brain injury is that the person must no longer be independent. I am not. I need help from my family to survive. He is going to write a letter and have the whole family sign it. He has also agreed to come to the neuropsychological testing results meeting. I am so relieved to finally have a family member understand and care. That being said it was a very stressful confrontation. I had a seizure last night from the stress. I am wiped out today but grateful. He is very smart and would be the only person in my family that would be able to help me. He now understands that I wear sunglasses all the time due to light sensitivity and vision disturbance, migraine reduction etc. and that I take time outs during family parties not because I am rude but because my brain gets overloaded and I start having symptoms.
I just feel so relieved. That has been the worst thing for me is not having my family understand and think badly of me. I think this neuropsychologist can set the story right and am glad I have someone who will come and listen and try to help me. Thank god. I so need their support and understanding.
Brain
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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