Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-05-2013, 02:19 PM #21
todayistomorrow todayistomorrow is offline
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Quote:
Originally Posted by CBS64 View Post
How do you know if you're a candidate for prism lenses or blue lenses?

I think my insurance is going to cover the vision therapy, but I'm looking for relief as soon as I can get it so I would be willing to try anything.
The neuro had me try on some prism glasses of varying degree and had me walk back and forth and report symptoms. Since it was almost impossible for me to walk and triggered headaches, she knew to start with blue tint.

I don't think there are many Dr. Qualified to do this sort of testing. It's worth flying to a place that does this.

My insurance covered 70% of there evaluation(400$) but I paid 300 out of pocket for frames and lenses.
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Old 04-12-2013, 03:10 PM #22
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I have had issues with my vision for 13 months now. I am going to a neur opthomologist next week. I have been diagnosed with post traumatic vision syndrome. I watch t.v. for maybe 2 hours a day, computer about 45 minutes. Apparently it is quite common to have focus issues after a concussion. One issues was called convergence insufficiency (not sure about spelling), this is the inability to focus both eyes on one image (ie to read). I have been reading up on vision therapy and for some it is life changing and for others not much change. I find it extremely frustrating having to chase down alot of the information myself, but I have learned that self advocacy is key; without the ability to read or work on an computer I can not be employed. I very much want to get back to work, it is extremely stressful to live on disability. Not to mention how boring life is without being able to read or watch t.v.

I have had my eyes tested twice with nothing identified, however general eye doctor would not recognize the issue. It is really important to keep looking for more help and something that rings true for you. I also cannot go out in crowds, I find I cannot navigate if a bunch of people are walking towards me and the activity seems to wear me out.

Good Luck, but I would suggest googling post traumatic vision syndrome and see if it is a fit for you.
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Old 05-23-2015, 05:05 PM #23
mesh138 mesh138 is offline
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Hello, I have been suffering from Post Trauma vision syndrome for 20+ years. Over these 20 years, I've been misdiagnosed and placed in the hands of dozens of opthomologists who just say use warm compresses. Honestly, this forum is the first time I've seen other people who experience something remotely close to what ails me. I get the same pain that you do when looking at tv, cell phone, etc. but also my eyelids swell up and break out in styes. I've gotten a stye every week or every other week for 20+ years. I've never had a doctor talk to me about prism glasses or anything like that. They just see that the eye itself looks healthy and a brain scan shows nothing wrong. These posts actually give me a little bit of hope that I might get my life back, but the next step is figuring out what doctor to go to. I refuse to go to anymore eye doctors in Las Vegas, where I live. One of them is even listed as a neuro-optometrist, and he flat out told me my symptoms are physically impossible. I struggle to know where to turn next. There are specific eye care centers around the US such as Jules Stein in California and the opthomology department of Mayo Clinic. I will have to save up some dough to get there, but I don't know any other way to move forward.
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Old 05-24-2015, 12:02 PM #24
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Check out a functional neurology place like this. This guy explains the eye therapy at around 20 min in the podcast. http://www.bengreenfieldfitness.com/...-a-concussion/
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Old 05-24-2015, 06:47 PM #25
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Default Look at the sac odometry sectio

http://minnesotafunctionalneurology.com/concussions/
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Old 05-24-2015, 06:57 PM #26
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Sacrial therapy made me worse. The problem with having lunch with 3 or 4 people is it is to hard to keep up and too much stimulation. There is a big difference if here is just one or two. I am also quite with large numbers because I can not jump into conversations, the subject has moved on before you can get your head around it. My children are particularly rude saying you twenty minutes behind (there are four of them) and I just don't participate in conversation which lead to extreme isolation.

The crowd thing can also be depth perception, if I am in a crowd I can not navigate through a crowd, someone has to take the lead (and my hand) and bring through a crowd. Again with the crowd there is sensory overload and too much for your brain to handle.

I limit my computer to 1/2hour, you can also get coloured background that will calm you brain, making it easier. I have also been told that Apple computers have less "visual noise" and are easier to read. I have exceptional issues with facebook because I have to scan and scroll and my eyes get really tired quickly.

I have head that vision therapy is extremely helpful for some even life changing but unfortunately for me I have had minimal improvement. I do wear prism glasses for my mid line shift, which I have been told has improved but is still there.

Keep moving forward, you will find something that will work for you.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues.

Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest.....
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