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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-21-2013, 06:21 PM
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Hi Everybody,
I found a website called traumatic brain injury.com. You can look up symptoms of mild, moderate or severe brain injury. There are also numerous resources on this website including referrals to lawyers, doctors, treatment, new updates on news etc. i have symptoms of severe traumatic brain injury. I knew that already but it made me understand a few things like why I am having flaring emotions, sleep disorders, seizures, trouble controlling bowels (I pee about 100 times a day) that is an actual symptom and many others that I cannot remember now. But it was helpful to understand that these things are symptoms. It was also helpful to understand the severity category. There are some on here that I know are in the same category as me but most these other new people I think are in the mild category. Anyway, there are a lot of resources on there to help people like us. Please check it out. I don't know how to post a link or I would. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-21-2013, 06:36 PM
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I went threw both list on website and I am severe traumatic brain injury....My hope just turned hopeless today in reality....lost & crushed!
 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-21-2013) |
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03-21-2013, 06:56 PM
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What happened today Mia? I hope what I posted did not upset you. This was not my intention. I was only trying to give everyone more information on there situation and resources to help them.
Brain 
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | MiaVita2012 (03-21-2013) |
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03-21-2013, 07:04 PM
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This At&t commercial that I posted got to me....you are good I found it very interesting such as the frequency in urination and other things that I was wondering.I thought it was just me!Good research how did you find that?
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-21-2013) |
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03-21-2013, 07:18 PM
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Just surfing the web. Wow, it just took me 20 minutes to figure out how to spell surf. I was always such a great speller. All I can do is laugh about it.
 I thought the lawyers on this site might be helpful because they specialize in traumatic brain injury cases. I am gonna call them and see if I can get a lawyer to help me with disability. I know many of you have Workers Compensation and injury from motor vehicle accidents that you may need specialized lawyers for. This website also has numerous other resources and keeps up on the latest research being done to help us. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | MiaVita2012 (03-21-2013) |
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03-21-2013, 07:25 PM
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I don't even want to talk about who I was before versus now!Have you seen my sentence structure or whatever it is...just a mess<<<<I laugh at myself all day to make it to next day....day in...day out over and over
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-22-2013) |
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03-22-2013, 11:34 AM
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Have hope friends. Even though I am in the severe category, I pass as normal to others for a short period of time. My speech slurring has cleared up a lot. People don't think I am drunk or a heroin addict anymore.
 **** what can I do but laugh? Somehow I have passed as normal enough to not get diagnosed with this until 8 years after the fact. Was just diagnosed with chronic pain and PTSD until i started having seizures and saw a neurologist finally. Have regained the ability to come here and type messages and talk to you all. It is Amazing to me how a human being learns coping skills and ways around things when injured or sick. Have also learned not to let the opinions of others effect me. Avoid negativity at all costs. Whose to say what could happen, I have proved the doctors wrong on numerous occasions. Brain 
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-22-2013, 11:54 AM
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This may be better on the "hope and healing" thread, but FWIW, on admission to hospital my GCS was 11 (moderate), my duration of posttraumatic amnesia (PTA) was greater than 4 weeks (extremely severe); I had a skull fracture, epidural hematoma with midline shift, and subarachnoid hemorrhage.
My last NPA (5 months post trauma) showed no residual cognative deficits. Today I'm back to work, living a normal life. The very best to all of you on continued recovery. http://www.ncbi.nlm.nih.gov/books/NBK27291/#A1433
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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| "Thanks for this!" says: | Brain patch (03-22-2013), DFayesMom (03-23-2013), greenfrog (03-22-2013), MiaVita2012 (03-22-2013), Mokey (03-22-2013) |
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03-22-2013, 12:08 PM
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I am having problems with my nice mixture of PCS & PTSD.So If I seem really scattered in emotions that is because I am!
 I am going to PTSD psychologist today.Thank the higher power
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-22-2013) |
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03-22-2013, 12:21 PM
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Lightrail,
You are my hero! Honestly. You are one badass person. Who could get hit by a freaking Lightrail and now be back to work and living a normal life? You are amazing. How long did it take to get to this point? I had the real severe amnesia after the accident score also. Went a long time of total amnesia. I wonder what I did during this time and how my co-workers did not notice or if they did why they did not get me help. You would think one would notice if they were speaking to a zombie huh? Guess not. Anyway, really you are my inspiration and hero. I always think of you when I start to get down. Much love, Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | Lightrail11 (03-22-2013), MiaVita2012 (03-22-2013) |
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