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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-26-2013, 04:16 PM
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Hi Guys,
Easter is a very bad holiday for me. This is the day my daughter was injured and had a surgical instrument sewed up inside her leg. Resulting in a blood infection of some unknown infectious disease that almost killed her for a year. This is the reason I have PTSD. I get very depressed around this time of year. I hate Easter. She goes into a depression also. We were both very traumatized over what happened to her. Any encouragement would be much appreciated. Brain 
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-26-2013, 04:19 PM
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Sending you both lots of positive, healing thoughts. Remember you are always healing, even though sometimes it does not seem that way!
You will cope!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | Brain patch (03-26-2013) |
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03-26-2013, 05:03 PM
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I can relate to associating holidays with traumatic events. My TBI happened the Monday after Thanksgiving, and I was still in the hospital over Christmas. This causes feelings of guilt, as in my mind it was my fault that the family missed being together for Christmas. Along with that come the accompanying depressed feelings.
Here are some things that have been helpful for me. I celebrate the fact that I survived and have the chance to spend this time with loved ones. Try to disassociate the trauma with the date. If the weather is good go for an outing. Do some activity together that is in a different setting and provides some enjoyable outlet. For me time is a healer. We have celebrated two holiday seasons since the year of the accident. 2012 was easier than 2011. I expect 2013 to be better yet. Best to you.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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| "Thanks for this!" says: | Brain patch (03-27-2013) |
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03-26-2013, 05:50 PM
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I have to think about this because ALL holidays are not my thing since we lost my love's father .Holidays were kind of bad and now,
 these past couple years I did not really participate at all I cannot remember...Just because you developed PTSD from this traumatic event I would say read a lot of self help books and try to be happy that life is still available to both of you.And start doing research for your soon to be speciality MDs that you need to get you back moving forward
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (03-27-2013) |
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03-26-2013, 08:04 PM
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We just sent notice to the families..........Easter Bunny is away from home this year. Family is having sick days. Father-in-law and wife are down with flu.....and I have no plans on entertaining anyone. Best wishes folks.
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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| "Thanks for this!" says: | Brain patch (03-27-2013), MiaVita2012 (03-26-2013) |
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03-26-2013, 08:43 PM
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BP have you and/or your daughter thought of seeking treatment for the PTSD? It is treatable and when you find a therapists that works for you it can be a godsend!
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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| "Thanks for this!" says: | Brain patch (03-27-2013), MiaVita2012 (03-26-2013) |
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03-27-2013, 09:29 AM
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Yes. I have thought of seeking treatment. We both need treatment. I have been unable to afford treatment. Even when I was working and had the best insurance, mental health treatment was only covered at 50 percent. I was a single mother and could not afford the other 50 percent for my daughter and myself.
Now that I am on Medicaid it may be possible for me to get some treatment for the PTSD. I am looking in to finding a counselor. If I can get on disability then I am going to offer to pay for her to go to a counselor as well. Thanks all of you for the support and understanding. It looks like I am not alone in having a hard time with holidays. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-27-2013, 12:46 PM
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Hi Brain ,
Your daughter had surgical instrument left in her --wow --that is scary!! Did she become septic? I just read all you been thru ---its truly is amazing what a human being can endure. You must be a extremely strong person !! I know holiday are tough when you have bad memories but maybe try to do something on Easter to distract yourself---or do something you enjoy or use to enjoy--- and have not done in a longtime. It may help. Holidays are not the same for me either so I understand it. I wish you a nice one and hope it turns better than you think it will. |
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| "Thanks for this!" says: | Brain patch (03-27-2013), MiaVita2012 (03-28-2013) |
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03-27-2013, 01:26 PM
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Hi Mg Neck Prob,
Yes she went septic. My daughter almost died because of this surgical instrument being sewed up inside her. The whole situation was just horrifying. I don't like to talk about it much. I guess I am a strong person. I feel like I have survived going down on the Titanic or something. I have been through so much it is amazing. I have really been forced to find out what I am made of. Thanks for the support. I appreciate all of you so much. I am sorry that so many of us have problems with holidays. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | MiaVita2012 (03-28-2013) |
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03-27-2013, 04:10 PM
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Very sorry this time of year brings you difficulties. We are here.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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| "Thanks for this!" says: | Brain patch (03-27-2013), MiaVita2012 (03-28-2013) |
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