Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-03-2013, 07:04 AM #1
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Default thankful for the small things

Yesterday was my first day in weeks where my headache subsided on its own... Saturday I was experiencing my worst bout of headaches in many months, so to go from the worst, to very low headache just feels like such a wonderful blessing!

So I'm curious... what are you thankful for today? It could be big, or small... I just want to focus on the positives today.
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong.

When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment.
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Old 04-03-2013, 07:54 AM #2
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Originally Posted by camyam73 View Post
Yesterday was my first day in weeks where my headache subsided on its own... Saturday I was experiencing my worst bout of headaches in many months, so to go from the worst, to very low headache just feels like such a wonderful blessing!

So I'm curious... what are you thankful for today? It could be big, or small... I just want to focus on the positives today.
Made it through my second 5 hour day in work. Ear pain, eye pain and headache all came back during it, but I made it through it and am home and feel ok.
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Old 04-03-2013, 09:37 AM #3
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Made it through my second 5 hour day in work. Ear pain, eye pain and headache all came back during it, but I made it through it and am home and feel ok.
So happy for you! Love this positive post too. I am happy to have my husband here with us. And I know our 8 month old son it too.
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Old 04-03-2013, 12:05 PM #4
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Default Took a short walk

I've been taking short walks. We live in the country, but not too far from a highway. Anyhow, had a nice 8 minute walk and heard birds out and around, and it was just before sunrise so I didn't wear my sunglasses. Lovely to hear the birds and spring coming back.
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Old 04-03-2013, 12:43 PM #5
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Good post! Despite feeling awful today , I am thankful for my children, my spouse, the country I live in, my slow progress over the past six months, and thankful that I still have the ability to laugh.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-03-2013, 05:41 PM #6
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Today, I had physio.. and although I feel strange, I know that this therapist is a good fit, and that this will be a good addition to my treatment lineup! SOOOO thankful!
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong.

When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment.
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Old 04-03-2013, 05:57 PM #7
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Default Thankful

I was able to "read" the paper today and track well, concentrate, and be able to focus on different topics. I haven't done that much in the last six months. Overall I'm not feeling well tonight, so it's good to try to focus on gratitude.
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Old 04-03-2013, 08:08 PM #8
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Wink thankful

I'm thankful that my husband has so much patience and understanding about this illness. I wonder if I would be as patient. I've been low because my symptoms have returned with a vengeance and he has done a marvelous job of affirming my emotions but cheering me up at the same time. I'm thankful this illness isn't fatal and I'm thankful for all the helpful posts on this website.
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Old 04-03-2013, 09:02 PM #9
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Heart Thankful

I am thankful for the friends that have come in to my life recently. I needed them so badly and it has helped me so much. I am thankful for my family. I am thankful that I have a roof over my head and clean water and good food to eat. I am thankful for all of you guys also.
Much love to all of you,
Brain
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-03-2013, 11:49 PM #10
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Default Huge

This is a very hard one for me.It is hard because I am very thankful for SO MANY HUGE things. I am thankful for being a fighter, getting this diagnosis after I went threw war, all my family threw thick and thin, all my speciality M.D.s, my ability to survive this condition, I am thankful for being able to do physical activities, I am thankful for getting my meds lowered today, and I am soooo thankful that today I achieved a self goal. I do not really know what small is anymore.
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~

Last edited by MiaVita2012; 04-04-2013 at 12:07 AM.
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