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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-03-2013, 10:52 AM
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Hi Everybody,
Hope you are all having a good day. I have my last session of Neuropsychological Testing today. After that she will want to talk to my family and then I can get her report/recommendations. So far the testing is really exhausting. I have had to draw things- shapes, connect things, try to remember words and recite them back, answer what the meaning of certain words are, fill out answers to questions about sleep, headaches etc. I will be glad when this is over. Will report back and let you know if this turned out to be helpful or not. Hopefully it will at least be helpful with disability acceptance. I am hoping that it will show where my brain is injured and be helpful in helping me and my family understand the problems that I continue to be challenged with. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | ginnie (04-07-2013), MiaVita2012 (04-03-2013) |
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04-03-2013, 11:13 AM
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Good luck!
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong. When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment. |
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| "Thanks for this!" says: | Brain patch (04-03-2013) |
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04-03-2013, 12:06 PM
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I know how hard this test is on us.I wish you the best and I hope you can push threw this last part.You will be in my prayers and I will be thinking about you.You need these answers like a fish that needs water.I wish you the best.
Love Mia 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (04-03-2013) |
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04-03-2013, 12:22 PM
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Good Luck.
Mine is next Month. Just for the testing though, already on SSDI. Best Wishes and 
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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| "Thanks for this!" says: | Brain patch (04-03-2013), MiaVita2012 (04-03-2013) |
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04-03-2013, 03:28 PM
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Wishing you the best. And go easy on yourself after being exhausted like this. It took me a full week to recover from mine. Thinking of you!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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| "Thanks for this!" says: | Brain patch (04-03-2013) |
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04-03-2013, 06:00 PM
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Good luck with the testing and the interpretation of the results. I ave my test in two weeks.
Su seb |
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| "Thanks for this!" says: | Brain patch (04-03-2013) |
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04-07-2013, 10:08 AM
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Hi Guys,
I have not received the written report from the neuropsychological testing yet but what she did say to me is that she does not see any permanent brain damage. That is good news! You know I have had 8 or so concussions from passing out and hitting my head on concrete etc. The passing out thing was diagnosed as hypoglycemia (it's where your blood sugar drops suddenly- it is the opposite of diabetes). But what she did say is that I have major depression. A score of 30 is worrisome and my score was 50. She also said I have a major anxiety/panic disorder caused from passing out in public so many times. I still have the passing out problem. The most recent event of that was in October I passed out and hit the bathtub and broke my nose again. Anyway, she told me that I must try to get out of the house as much as I can for short periods because I will end up just being stuck in a room if I don't. She agrees that I cannot work and went over my denial letter from disability and is writing a letter that refutes some of the judges findings about my medical records. Like the judge saw that I went to a movie and used that against me when really my doctor forced me to go out once a week and that is why that was in my medical records. The judge is saying -you can do these things but not understanding that I have trouble just leaving the house and these activities were forced therapy. So I am hoping her letter will help with disability. It sounds like it will. I know part of my depression comes from being so stressed out about money. I really cannot work. I know that and I don't know what I will do if they deny me again. I feel like I will have to kill myself because I will not be able to live. So hopefully I will get accepted for disability and that will help. I have to go to a psychiatrist for the depression. I live in chronic pain so that is also contributing to the depression factor. I will let you know what the report says when I get it. Should be next week. Hang on there everyone. If I don't have permanent brain damage after all the hits to the head I have taken chances are all of you will heal up with some time. Much love to you all, Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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04-07-2013, 10:23 AM
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That's great news! Hopefully you can get on the right medication and all of your issues will go away! It's amazing what the right medication can do for anxiety and how many symptoms are actually caused by it! Good luck with the psychologist and with the disability claim. It's very scary and stressful to not have an income or to worry it will be gone.
I hope you're having a good day! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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| "Thanks for this!" says: | Brain patch (04-07-2013) |
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04-07-2013, 10:25 AM
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#9 | |||
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Brain patch,
Good luck with this, it all sounds positive, hopefully you will get disability. I would say dealing with the depression is a priority from what you say and you need to discuss with a health professional about how you feel, medication can help some people. |
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| "Thanks for this!" says: | Brain patch (04-07-2013) |
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04-07-2013, 11:54 AM
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Sending you lots of healing energy. Remember there are good days sometimes! Hang in there!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | Brain patch (04-07-2013) |
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Last session of Neuropsychological Testing
I know How Hard the Test is
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