Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 04-18-2013, 10:28 AM #21
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

Great news! Take is easy, though. I have ramped up sometimes and then had a period (weeks) of dysfunction.
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
Mokey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mouse1 (04-18-2013)

advertisement
Old 04-18-2013, 02:02 PM #22
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Mokey, your advice is a bit late. I actually went to the gym early this evening and did 25 mins on the Crosstrainer, jogged 15 mins on treadmill (a first since injury)and did 10 mins on stationary bike. I felt I was up to it and have so far have been proved right, as its 3 hours later and I am not fatigued and have a mild headache. I think when I can do this level of exercise without any reaction I will be completely better. So its maybe fair to say I am nearly better.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brain patch (04-19-2013), poetrymom (04-19-2013)
Old 04-18-2013, 02:49 PM #23
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

Wonderful!!!! Keep it up!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
Mokey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mouse1 (04-18-2013)
Old 04-19-2013, 10:05 AM #24
GingerandBella GingerandBella is offline
Junior Member
 
Join Date: Apr 2013
Location: Canada
Posts: 47
10 yr Member
GingerandBella GingerandBella is offline
Junior Member
 
Join Date: Apr 2013
Location: Canada
Posts: 47
10 yr Member
Default Feel Better

[QUOTE=mouse1;972783]I am absolutely exhausted, I haven't done anything this weekend apart from sit around but no let up in being tired.

Sorry to hear about you being so exhausted - it sounds like you are doing too much - can you reduce your workload?

I think being tired is normal - as my 8:30pm bedtime dictates.

I really wish there were more studies done - sounds like many are suffering.

Hang in there
GingerandBella is offline   Reply With QuoteReply With Quote
Old 04-19-2013, 10:42 AM #25
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Thanks for your concern, but there is no need. I really am getting better and can even go to the gym without getting too tired or provoking symptoms. I hoovered the house today (without earplugs) and mopped all the floors, if I did this month ago it would have made me very ill. I am back working and things are really starting to look up, but this will be an ordeal I will never, ever forget!
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (05-15-2013), Mokey (04-19-2013), poetrymom (04-19-2013)
Old 04-19-2013, 12:32 PM #26
Tpont21 Tpont21 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 58
10 yr Member
Tpont21 Tpont21 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 58
10 yr Member
Default

Quote:
Originally Posted by mouse1 View Post
Thanks for your concern, but there is no need. I really am getting better and can even go to the gym without getting too tired or provoking symptoms. I hoovered the house today (without earplugs) and mopped all the floors, if I did this month ago it would have made me very ill. I am back working and things are really starting to look up, but this will be an ordeal I will never, ever forget!
Mouse, I feel the same way. This will be an ordeal I will never forget. Even though it seems you are a little further along in your recovery, I know when I get out of this it will be a life-changing experience. I know I'll appreciate life so much more and not take anything for granted. I may never snowboard again, I don't know. I just know I never want another concussion in my life. I wish you the best in your recovery and I hope you keep heading in the right direction!
__________________
I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect.

Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings.

Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on.

I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms.
Tpont21 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (05-15-2013), Mokey (04-19-2013), mouse1 (04-19-2013), poetrymom (04-19-2013)
Old 04-19-2013, 12:50 PM #27
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default Life chaning event!

Goodness yes

So glad you are feeling better and can work out Mouse.

My husband makes wine. I have enjoyed his wine over the years, but I doubt I can ever enjoy alcohol again the way I did. I am really at peace with that thoug, because if I never have another concussion again and then PCS-- it will be a small, minor, manageable thing not to drink wine or any alcohol.

I find I am so grateful for so many things now. Clean sheets, good food, herbal tea (no caffeine for me either -- and that is a permanent change for the good) my plants, my husband, his cooking, our daughter,,,it goes on and on

Life is a blessing. How we interpret what happens to us, how we go forward with the setbacks, the joys, everything -- this is what matters.

Keep on healing mouse and let us know more about it.

Sincerely,

Poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (05-15-2013), Mokey (04-19-2013), mouse1 (04-19-2013), Su seb (04-19-2013)
Old 04-19-2013, 02:48 PM #28
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Thanks for your comments. I agree with you, and would say that there is actually something good that can come from PCS. As you come to the end of it you appreciate what you have and indeed all the things you have missed and indeed taken for granted.

I will appreciate life more than ever, I intend to get fitter and healthier than I have ever been before. I used to drink quite a lot of wine at weekends, but I don't drink now either, I think abstaining has helped my recovery. I hope I can have a glass of wine or two again, but I am in no rush either as there are more important priorities in my changed life. PCS has given me a new perspective because I thought all I had was lost, but thankfully it isn't. I hope you all get better too!
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (05-15-2013), Mokey (04-19-2013), poetrymom (05-15-2013), Su seb (04-19-2013)
Old 04-19-2013, 07:27 PM #29
Virginia in Canada Virginia in Canada is offline
Junior Member
 
Join Date: Nov 2012
Location: Halifax, Nova Scotia
Posts: 27
10 yr Member
Virginia in Canada Virginia in Canada is offline
Junior Member
 
Join Date: Nov 2012
Location: Halifax, Nova Scotia
Posts: 27
10 yr Member
Default Great news

Glad to hear that you're doing better.
__________________
Rear-ended Oct. 2012. Main issues now short term memory loss, word finding, problems with concentration and focus, light and sound sensitivity.
Virginia in Canada is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mouse1 (05-15-2013)
Old 05-15-2013, 02:01 PM #30
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Just to let you know that after working a 3 day week for two months, I am finally moving up to a 4 day week.

This will consist of 3 x 8-6 days and 1 x 8-1 and I have agreed with my employer that this will be my working hours from now on. I am not going above this, and will have 3 days off Fri, Sat, Sun. I also look after my 3 young children by myself for two afternoons. I am leading a pretty full on life again.

I am going full pelt in work now, but since stopping the SNRI Cymbalta I have more fatigue and headaches. I have given up on exercise - I have enough going on already! The headaches grow as the day goes on and only go away with Imigran. I am going to speak to my doctor about getting a preventative medication.

I am approaching 7 months post injury and am probably functioning at 90% these days as long as I don't exercise or push myself too hard.

Good luck to you all, PCS recovery will come - it just takes patience, rest and a whole lot of time!
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.

Last edited by mouse1; 05-15-2013 at 03:22 PM.
mouse1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DFayesMom (05-15-2013), Mokey (05-16-2013), poetrymom (05-15-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
It is only 10:30 and I am exhausted! barb02 The Stumble Inn 7 03-28-2010 04:06 PM
Hello All..I'm Exhausted Indea88 Thoracic Outlet Syndrome 4 05-26-2008 02:11 AM
So exhausted.................... Nikko Bipolar Disorder 4 03-27-2008 03:22 PM
Very exhausted of this: scenicworlds Bipolar Disorder 4 01-22-2008 10:51 PM
Exhausted befuddled2 Bipolar Disorder 8 08-20-2007 01:14 PM


All times are GMT -5. The time now is 09:25 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.