Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-07-2013, 01:10 PM #1
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Default Exhausted

I am absolutely exhausted, I haven't done anything this weekend apart from sit around but no let up in being tired.

I did two days last week in work, and had to get up at 645am for this, and worked 8-1. I over did things after work on Friday and still haven't recovered, my legs are like lead. Yesterday I was in pain so ended up taking Imigran and Nurofen on top of my Cymbalta for right sided facial pain. I wonder if this drug combination increases fatigue, it really pushes up serotonin levels anyway.

I have been pain free today thankfully. I have to do two 8-1 days and one 8-5 this week, so am now wondering how I am going to do it when I feel so bad now. Hopefully I will feel better tomorrow when I have work, I am still optimistic about things, but didn't realise that trying to get back to normality would be so tiring.
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Old 04-07-2013, 01:24 PM #2
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Mouse,
I am so sorry you are feeling so bad. I am also so proud of you for trying so hard. You are really doing a lot. Maybe if you need to you can cut back a little. 8 to 1 sounds do-able for you but 8 to 5? I don't know. I don't want you to get frustrated. You are doing so well and so much. Take it easy on yourself today. Get plenty of sleep and rest. Drink a lot of water. Never underestimate the power of water. I use something called emergen-c, it is a packet that you mix with your water that has a lot of vitamin c and b vitamins and just makes you feel really perked up. It tastes good too. Helps me a lot. Gives me an energy buzz. Maybe this can help you at work when you start to drag.
I am really proud of you. Please be kind to yourself. If you need to do less there is no shame in it. You are giving it your all.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-07-2013, 01:52 PM #3
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Thanks for your support. I am just going to concentrate on getting through my work week and do nothing else. As soon as I get home I am going to rest, and tonight I am having a hot bath to try and lift the fatigue and have an early night. I was due in for 4 days the following week with two 8-5 days, but depending on how I get on I might have to cut back. I have an understanding employer and good colleagues so this helps.
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Old 04-07-2013, 01:55 PM #4
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It feels awful to be exhausted! I have had a similar bad time of it this week....not functioning well....and then my spouse who is stressed from my injury opened a box of new knives and somehow one went through the top of his hand. Rushed to emergency...and he waited ten hours...came home at 4:30 am. I didn't sleep and finally tried a muscle relaxant and melatonin and still didn't sleep but have been groggy ever since!!
I guess muscle relaxants don't work on nerve pain behind the eyes. Now i know! And melatonin has not worked for me since my MTBI.....live and learn. I don't even feel safe enough to drive or use a knife myself!
Having said all that, we need to just get through this bad day and wake up hopefully feeling a bit more energetic tomorrow!
Healing is hard work, Mouse, and it sure takes a lot of deep down strength and commitment to keep up the healing struggle. Keep digging deep inside yourself to find your strength...and keep on going.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-07-2013, 08:41 PM #5
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Default Your health

I have been struggling for six months with balancing rest and work. I think I have slowed my healing because I have worked too much. If I could go back, I would rest more, your brain is more important! If you are experiencing symptoms, back off. Especially if your employer is understanding.
Interestingly, grocery stores and shopping in general is one of the worst things for me. So if I need to get through the work week I make sure to stay away from them.
Good luck
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Old 04-07-2013, 10:00 PM #6
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Default Good luck at work tomorrow

Just wanted to give you some encouragement for work tomorrow. Hope you have a good day and make it through without any problems. Remember to come home and take it easy. Don't push yourself too hard too fast. This is coming along for you. Slow and easy brother. Slow and easy. Take plenty of breaks. Drink lots of water. Keep a positive attitude. If you need to leave early or can't make it that is ok. You are doing great. Proud of your progress. It takes a lot of guts to put yourself out there with a head injury. Sounds like you have some good people that you work with. Let them help if needed. Good luck! Will keep you in my prayers.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-08-2013, 08:50 AM #7
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Thanks for your thoughts, work went very well today, I took extra pain meds at breakfast (which I haven't done for a very long time) and this worked great. I was in a 2.5 hour meeting and was able to follow and contribute well, without worrying about eye, ear and facial pain. Getting a good nights sleep is so important as well to get you through a working day. I am becoming a lot more optimistic and positive about the future and don't feel so tired today. Down time all day today though to prepare me for work tommorow, when I am away from work I am taking it really slow.
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Old 04-08-2013, 09:54 AM #8
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So glad to hear today went well! I was worried for you. I hope to hear that the whole week went well come Friday! So great to have a success posted as it's happening!

Thanks for sharing and get some rest.

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 04-19-2013, 10:05 AM #9
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Default Feel Better

[QUOTE=mouse1;972783]I am absolutely exhausted, I haven't done anything this weekend apart from sit around but no let up in being tired.

Sorry to hear about you being so exhausted - it sounds like you are doing too much - can you reduce your workload?

I think being tired is normal - as my 8:30pm bedtime dictates.

I really wish there were more studies done - sounds like many are suffering.

Hang in there
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Old 04-19-2013, 10:42 AM #10
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Thanks for your concern, but there is no need. I really am getting better and can even go to the gym without getting too tired or provoking symptoms. I hoovered the house today (without earplugs) and mopped all the floors, if I did this month ago it would have made me very ill. I am back working and things are really starting to look up, but this will be an ordeal I will never, ever forget!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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