Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 04-11-2013, 01:28 PM #1
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default Exhausted, but did 2 days with exercise!

Hi Guys,
Hope everyone is having a good day today. I am exhausted. My back and leg are killing me. Did not sleep for more than a few hours. But, I did make it out of the house and exercised for two days in a row. This is huge for me. I have to stay down today and rest and am hurting like crazy but I did make it for 2 days of activity (was out for about 4 hours each day). I am happy. It does bring some confidence back. I will rest today and force myself to go out again tomorrow. Even if it is just for a small walk in the mountains. It is improvement. I also noticed that when I went to the mall, instead of buying sweats and pajamas that I actually bought regular cute clothes. This is an improvement. I can wear Levi's again. After the liver failure for years all I could wear was really soft cotton sweatpants. I know it is not much in comparison to how much progress some of you have made but for me this is progress.
My family found a program about living in chronic pain/illness and helping family members who live with chronic pain/illness. We are all going to it on Saturday for me and for my dad. It is very positive that the rest of the family is now trying to help with me and my dad. Dad has Parkinson's disease with dementia.
My poor mom needs help. I try to help as much as I can but she does have to take care of me some too. I am hoping this will get the family more involved with helping my mom.
Brain
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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