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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-11-2013, 01:40 PM
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Ohhhhhhh I like this metaphor, because I think in analogies and metaphors.
Anyhow, as I am starting to feel better and better I know there are limits to what I should and really can do. It's easy to OVERdo when you may want to get back to that life you had.. So I am wondering what this metaphor means to you? Is there anything you have to pull yourself back from doing because you know, "Hey just because I feel better it doesn't mean I can _________________________________________" I am still not sure what it means for me in terms of my energy, abiltiy to be out in public or in a busy store, or going to work again...(oh that's a stressful thought right there) I am going to take a short walk (easy exercise) and think on this and see later what this metaphor may mean for you.
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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04-11-2013, 01:48 PM
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Exercise is a no go for me. I used to go to the gym 3 times a week, but now nothing. I don't think its worth risking at the minute until my symptoms all go. However, a gentle walk in the countryside is progress and a good alternative.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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04-11-2013, 03:11 PM
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For me it means stuff like- just because I am feeling better it does not mean I can do anything else on the same day that I wash my hair and take a bath-that is a full day limit of physical activity for me.(I have very long hair). Pretty sad but true. It means - just because I am feeling better it does not mean I can go to the zoo or anywhere that I would have to walk very far or be exposed to too many people and noises. It means- just because I am feeling better that I still do not have to rest and only be out of the house for 4-5 hours max even though I want to be. It means-just because I am feeling better I cannot return to a job no matter how much I miss mine. It means-just because I am feeling better that I don't have to be very mindful of doing too much and must watch my symptoms and rest instead of pushing myself to the breaking point. It means- just because I am feeling better that I do not have severe limits on my life.
But it also means- because I am feeling better that I can walk a little and get some exercise. Because I am feeling better I can laugh and joke and smile again. Because I am feeling better I have hope. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | poetrymom (04-11-2013) |
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04-11-2013, 07:03 PM
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just because I'm feeling better doesn't mean
A. I am ready to drive a car yet. B. Go back to work (though I probably will at some point before the school year is over) C. I will feel this way again tomorrow if I overdo things today. This journey with PCS is so different from any other way I've been sick or injured, because it has peaks a n d Valleys.......... But I too have abundant HOPE which does not mean I should go out and jump rope, read that novel I want to read write more and more and more no but take it easy, and find out gently what can can be done
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | anon22217 (04-11-2013), Brain patch (04-11-2013) |
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04-11-2013, 11:24 PM
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Thanks for that. I've had to learn to take it easy from my previous fast paced life. May I ask what is vestibular therapy? Thank you
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04-11-2013, 11:38 PM
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Vestibular therapy is for balance issues and BPPV.I go to a TBI vestibular therapist 2times a week since January. She also does physical therapy with me in baby steps.
I included a link for more information http://en.wikipedia.org/wiki/Benign_...tional_vertigo
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ Last edited by MiaVita2012; 04-12-2013 at 12:13 AM. |
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| "Thanks for this!" says: | anon22217 (04-12-2013) |
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