Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-12-2013, 11:39 AM #1
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Default Nerve pain - good news for me I hope.

I thought my head injury had caused trigeminal neuralgia because I was getting pain in the right side of my face in my nostril, jaw, cheek, eye, ear, gums and teeth. Well after a molar extraction today and a tooth filling, I am not experiencing these. Its funny how you can put everything down to PCS. My only worry is that this facial pain started when I went back to work, but hopefully this is just a coincidence and it is dental and not PCS related. I do get sore eyes and ears due to noise and light occasionally, but the right ear and eye pain was excessive and could be down to an additional dental factor. I really hope so because I will be well on my way to recovery if all this pain goes away for good.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-12-2013, 11:41 AM #2
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That's great to hear! It really is important that we not assume everything is PCS related and look at all options. It's great that it was a simple fix! Thanks for sharing!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 04-13-2013, 03:16 AM #3
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I feel great today and haven't taken any painkillers for the first time in months. A large filling came out in my lower back molar whilst I had very bad PCS symptoms, the tooth was decayed. The tooth next to it also needed filled. Looks like the migraine, neuralgia, ear ache, sinus and eye pain was down to my teeth as well. Maybe the PCS and toothache created a storm of nerve pain resulting in all these symptoms. It's all perfectly timed, because my daughter is 6 today and has a noisy party with 20 friends! Today will be a good test of how far I have come, onwards and upwards!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-13-2013, 08:53 AM #4
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Happy 6 Birthday to your daughter! That will be a fun day! Definately a test for you. I am so glad to hear that some of your pain is gone. Sure glad you went to the dentist! That is worth it. Good to hear you are feeling better. Have fun with your daughter.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-13-2013, 09:43 AM #5
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Good luck with the party! My daughter missed her 8th because of my mtbi....i was determined she have a 9th. It was hard but we did it. Life's important moments. Enjoy.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-13-2013, 03:07 PM #6
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Thanks, it went great, 21 noisy kids in a play centre followed by a party and disco with loud music and flashing lights. Its evening now and we are back home and I still haven't got a headache or noise sensitivity and it was a noisy day! I don't think I would have been able to do this without the dental visit. It means a lot because the kids haven't had a good time either as I have been avoiding them for months with my noise sensitivity and low mood. Not anymore!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-13-2013, 03:23 PM #7
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Yeah mouse! Sure am glad you were able to have a good time and with 21 loud kids and flashing lights! That is great news. Sounds like a fun day for all.
Means so much to be able to do stuff with the kids doesn't it? More important than working even. So happy for you.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-13-2013, 03:51 PM #8
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Yes it means much more. In January and February the children were with a childminder whilst I was sick - I was unable to look after them - because of the distress caused by the noise sensitivity. I am surprised I was able to stand the noise levels of the children today, never mind a disco and flashing lights. Things are definately moving in the right direction, I still prefer quiet, but at least I can do these noisy things again which I previously took for granted.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.

Last edited by mouse1; 04-14-2013 at 02:38 AM.
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Old 04-13-2013, 05:25 PM #9
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Default Great good news!

Yea!! I am very happy for you and cheering you on from the cbyer sidelines.

All of these "tests" and trials are so important. Keep on healing.

Sincerely,

PM
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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