Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-18-2013, 07:16 PM #21
Sara from Minnesota Sara from Minnesota is offline
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Sara from Minnesota Sara from Minnesota is offline
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Seeing a Doctor Levine at the U of M ENT department. Mokey, are you coming in to see Rubenfeld? I proceeded with Levine on my own. I am still in the mild/moderate brain group at HCMC but I am just not seeing any improvement at this point ....NONE..... and that scares me to death. Do you both have the 24/7 off balance feeling when you walk? I got to thinking that with this constant fullness in my ear, and all my balance issues and the awful Tullio Effect I experience, I needed to look more into my ear issues. Mokey how old are your kiddos? Let me know what you find out Berkley Brain!!! I think we really have to take charge of our health during a nightmare like this. I am honestly considering seeing the guru of all dizziness/balance issues..... a Dr. Gianoli down South. I will see what happens after my battery of tests at U of M.
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Old 04-18-2013, 11:41 PM #22
Mokey Mokey is offline
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Mokey Mokey is offline
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Hi Sara. Yes, I have an appt with Dr Rubenfeld. I wonder if the HCMC is keeping up with everything....I had a intensive testing with their audiogist but I don't think she did any of the central auditory tests that others recommend for my symptoms. Did you like Levine? Recommended?
My kids are 9 and 12... Growing up but still needing me. I hate having been out of it for the past 1.5 years.,., they say they can't remember what I was like before. Breaks my heart.
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.

Last edited by Mokey; 04-18-2013 at 11:41 PM. Reason: Typo
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