Have you gone to see the headache clinic at Stanford? or What about UCSF brain and spine injury clinic?

Thanks!

I haven't yet, though it reamins an option. As luck would have it, just as I was about to investigate headache clinics, the migraines backed off. I went from having one virtually every day, to 2-3 a week and much less severe. That's where I am right now, not having fun but it's manageable.

I'm half Japanese, also. Other half is Chinese. My screen name is the Chinese spelling of a Japanese given name.

Hi Kenjhee,

Wow that's great! How long have you had headaches for? May I ask your treatment plan? My headaches are every single day and on the left side:( Are you born in America?

Thank you!

Thoughts
 

Sorry to hear of your frustrations. I think that Drs. know nothing about PCS and only treat the symptoms - I don't think my Dr. even believes my struggles with PCS - so frustrating.

Hang in there.

my stanford visit
 

I also go to Stanford. the neurologist is a specialist in tbi and pcs. you would not know it. I read her reports and wonder if I was at the same appointment. I say I have been drinking less she writes I have been drinking more. how in the world do I get that corrected. after 3 visits she truly believes I have pcs and says see you in 6 months. that is the action plan. I feel like its me and the internet with this one.


me.... mva. fractured c2. herniated c7. concussion. 10 days later walked into a pole. gave over. daily headaches now. confusion. numbness. getting lost. insomnia, sleepiness. isolation. good psychiatrist who is my best friend for $200 per hour. 57 y/o pharmacist that now can not make change at a drive thru.

Oh, sorry, didn't see this originally. I've had migraines since the accident. So I've been battling these incredibly painful occurrences for some 37 years. They are almost always on the left side as well.

Their frequency goes through cycles. I'll have attacks every day for a while (the longest while being 2 years). They they may back off to alternating days for a period. Haven't been able to correlate this behavior to anything in particular.

I have been using Imitrex very effectively for the past few years. It works about 90% of the time. I take the Imitrex with some Ibuprofen so it works faster (basically manufacturing Treximet in my mouth). Lately I've been adding Dilaudid to my "cocktail", a trick I picked up on my last visit to the emergency room.

I am half Japanese and half Chinese, and was born in the SF Bay Area. I speak just a little Japanese and have been to Japan 4 times (each time I nearly killed myself as my constitution can not bear the strain of international travel :().