Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 04-17-2013, 07:12 PM #1
DFayesMom DFayesMom is offline
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Default If you think your eyes could be part of the problem

You could try binasal occlusion. I'm not a doctor, but as far as I can tell, there would be no harm in trying it to see if it would help you, until you are able to get in to see a neuro-opthamologist. I wish I'd tried this months ago! It's basically scotch tape placed on the outside of lens nearest to the nose. Here's a pic and blog of a woman wearing them: http://abledis.com/tag/binasal-occlusion

I've been using it on my sunglasses just around the house the last few days, since my doc recommended them, and I'm amazed by what I can do that I was struggling with before--mainly reading and being on the computer, but I also just realized that I have not run into anything today! I was clumsy before PCS, so I was unsure how much it was affecting me in that way, but now I have my answer! I've been so used to running into things and bruising myself constantly that I thought it was normal, but it's not! Yay!

Here is an article with some interesting case studies: http://www.vision-therapy-pa.com/201...sal-occlusion/

Also, here's an article with a brief explanation on the science behind it for those that are curious: http://www.optometrystudents.com/bin...arl-garbus-od/

I'm not suggesting this is something to do instead of going to a neuro-opthamologist. In my research, I couldn't find any reason not to share this as a possible temporary intervention for those of you playing the old waiting game. Hope this helps one or two people!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-18-2013, 05:27 AM #2
sospan sospan is offline
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Interesting, not being an expert I wonder if this works in the same way as prisms - fooling the eye / brain into focusing slightly differently?
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
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Old 04-18-2013, 10:04 AM #3
DFayesMom DFayesMom is offline
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Default It works as well as prisms for me but

Everyone is different. It will not work for everyone, and prisms may work for some people even when binasal occlusion did not work for them. But if it does work for you, man, what a difference it makes!

I talked to my eye doc today to ask him of it was okay to wear them more than we'd originally discussed, including while driving long distances. He said it was fine. I asked him if there were any dangers to wearing them, and he said the only danger would be blocking too much of your vision. It's just something you have to play around with until you find the best position of the tape. The woman in the pic I attached looks like she has less tape on her glasses than I do, so I might try to decrease the amount of tape and see if it's still as effective.

It's funny, but when I talked to my eye doc today, he was positively delighted at how much binasal occlusion was helping me. He had me tell his colleague about it, and he told me I should tell any doctors I interact with about it too. Apparently, it's something that not a lot of doctors know about.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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anon22217 (04-18-2013)
Old 04-18-2013, 02:01 PM #4
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How would I know prisms would work for me?

My neurologist referred me to an opthamologist and she did various tests and said that my vision is fine. However, I am scheduled to go back and do a visual field test.

Other than that the doctor didnt' really offer any suggestions into my light sensitivity and eye strain issue.

Thank you!

Quote:
Originally Posted by DFayesMom View Post
Everyone is different. It will not work for
everyone, and prisms may work for some people even when binasal occlusion did not work for them. But if it does work for you, man, what a difference it makes!

I talked to my eye doc today to ask him of it was okay to wear them more than we'd originally discussed, including while driving long distances. He said it was fine. I asked him if there were any dangers to wearing them, and he said the only danger would be blocking too much of your vision. It's just something you have to play around with until you find the best position of the tape. The woman in the pic I attached looks like she has less tape on her glasses than I do, so I might try to decrease the amount of tape and see if it's still as effective.

It's funny, but when I talked to my eye doc today, he was positively delighted at how much binasal occlusion was helping me. He had me tell his colleague about it, and he told me I should tell any doctors I interact with about it too. Apparently, it's something that not a lot of doctors know about.
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Old 04-18-2013, 02:48 PM #5
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You need to see a NEURO opthamologist. The normal one will not do the same tests.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-18-2013, 03:16 PM #6
DFayesMom DFayesMom is offline
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Default Yes, see a NEURO Opthamologist

I went to a retina specialist, who just said my eyes were fine but that I had presbyopia (not true!), and then a regular optometrist, who was flummoxed and unable to get a good read on my eyes. Finally, I was referred to a neuro optometrist by my physical therapist. This guy is a genius. He knows what he's doing. If he were a cult leader, I would join. (Kidding! Kind of!) Make sure you are going to the right kind of doctor, one who is really going to help you. He or she should try out prism lenses on you to see if they help.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Mokey (04-18-2013)
Old 04-18-2013, 05:49 PM #7
berkeleybrain berkeleybrain is offline
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Default

Have the neuro-opthalmologist check for binocular vision or convergence issues with both your left and right eye being able to work together. It is very common to have this difficulty after mtbi or pcs.

The 20/20 eye chart and field of vision won't assess your Left and Right eyes being able to work together.

Good luck! It sounds like you have great momentum to get answers!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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