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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-18-2013, 02:29 PM
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Today I finally got to see an eye doctor from the NORA website, thank you Mokey for sending me his link!, and I have been prescribed a prism lens and light vision therapy. Just in case anyone is curious, the appointment was approx. $250, the glasses would have started at $200 depending what frames and lens coatings you choose, and the vision therapy will be 3x/week for 20 appts and will be $800.
I am very excited! The doctor knew everything I was talking about and even said what I was experiencing before I told him! We even said one thing at the exact same time (can't stand people standing too close to me because I can't see them properly). It was wonderful just to be understood, as I'm sure you all get. I had the lens on for only a minute but the world finally looked "real" to me again! I didn't want to take them off!!! Can't wait till next week when I can pick them up. My head and eyes are killing me and I'm going to go now but I just had to share with all of you. Even if you don't think you're problem is eyes, if you're having problems with dizziness or sensitivities, eye fatigue or strain, etc. get them checked out! He even said that carrying on conversations is linked to the eyes. I will be able to follow them more clearly once my eyes are better. I can't wait, and am trying not to get my hopes too high, to see what benefits I'm going to have from this! Today is a good day! I hope you are all having one too! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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04-18-2013, 02:51 PM
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SOOOOOOOOO happy that this is promising for you. I love good news stories!!!!! Wonderful! Keep us posted as to how it goes.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | cyclecrash (04-18-2013) |
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04-18-2013, 03:05 PM
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I'm doing vision therapy right now too! Mine is now just once a week. I did intensive therapy to get rid of my dizziness and now am trying to get rid of my eye strain and light sensitivity. Isn't it great to be empowered? My binasal occlusions are basically doing for me what prisms will do for you. It feels like a game changer! I hope the prisms will be for you!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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| "Thanks for this!" says: | cyclecrash (04-18-2013), Mokey (04-18-2013) |
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04-19-2013, 12:47 AM
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So happy for you!!! I have Mokey to thank as well for finding me a qualified person in my area as well.
In the one month of wearing my prism glasses I have seen the most drastic improvement of all six months so far. 
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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| "Thanks for this!" says: | Mokey (04-19-2013) |
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04-19-2013, 08:20 AM
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That's great MsRrio! I'm so glad you're finally seeing results! You're doing vestibular therapy too right? That's probably helping also.
Did your eye doctor say if you have to permanently wear the prism lenses? I used to only wear my glasses for driving and watching tv or at a movie theatre etc. but I'm thinking I may have to wear them more often for a while. And my eye doctor says he thinks I'm going to permanently need the prism, although it's a very small prism. Just wondering what others have been told.
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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04-19-2013, 09:29 AM
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Wonderful news. MsRrio!
We love good news here!!!!! If only it were the 100% cure....but at least it is part of it. The brain will develop and heal until the end of its life. At least that gives everyone a bit of hope. Having said that, have felt horrible for the past three weeks (i.e more horrible that the weeks prior to that)... But that is how it goes, I guess! Next week can be better!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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04-19-2013, 09:40 AM
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I'm sorry you're not feeling well Mokey! It's a good reminder though that even though the prism glasses and therapy is going to help, I have to be careful not to get my hopes up too high! It really isn't a magic cure all. It will be good to get rid of some of the problems and then see what's left and re-evaluate.
I hope you are feeling much better next week! I haven't had the time or energy to read all the other threads, so I hope this isn't repetitive, but have you tried any herbal or prescription meds yet? I hope your day gets better. CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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eye appt, prism lens, light therapy
Congrats!
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