Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-27-2013, 09:23 PM #1
greenfrog greenfrog is offline
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Gradually, over many painstaking months, I have been improving. Today I was out on one of my twice-daily walks, striding purposefully at a fairly robust clip through my neighbourhood, and a woman I've seen a couple of times called out:

"You're doing amazing!"

She apparently also goes for frequent walks in our area. She said that when she first saw me, about a year and four months ago (eight months after my injury), I looked like I was in significant pain and appeared to be "walking on eggshells." But she said she could tell how determined I was and that she knew I would get better. She says she prayed for me, and that I now look great.

It's true that I have made major gains. I feel far better than I did early on (and for many months). I'm not fully recovered (maybe 85%+), but I am pretty far along and have regained much of my former functionality. Recent developments include adding hours at work and an exercise routine (brisk walking on treadmill).
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"Thanks for this!" says:
anon22217 (04-27-2013), DFayesMom (04-28-2013), Lightrail11 (04-28-2013), MiaVita2012 (04-27-2013), Mokey (04-28-2013), mouse1 (04-28-2013), MsRriO (04-29-2013), poetrymom (04-28-2013), Su seb (04-27-2013)

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Old 04-28-2013, 12:11 AM #2
Mokey Mokey is offline
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Wonderful. Thanks so much for sharing that. So you are at the two year point? So important to remain hopeful. Not easy sometimes. Most times to be honest! Keep it up!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-28-2013, 07:09 AM #3
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I'm also driving regularly now - a huge boon. I didn't drive for about a year and a half after my injury, maybe a bit longer.
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Old 04-28-2013, 10:43 AM #4
DFayesMom DFayesMom is offline
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Thumbs up That's great!

How nice of that lady to share that with you. I'm sure that made you feel good. It's important to celebrate our progress! When I think how I was just six months ago, I can't believe how much better I am in so many ways. Glad you are doing so well!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-28-2013, 12:06 PM #5
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Quote:
Originally Posted by greenfrog View Post
"You're doing amazing!"
Thank you, it helps all of us to hear of the successful recovery journeys.

You highlight another important point, people (some we don't know) notice and can celebrate with us.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 12-07-2014, 11:33 PM #6
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Glad to hear that @greenfrog . This gives us hope. Did you have sensitivity to bumps on road that you didn't drive ? What were your symptoms ?
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Old 12-08-2014, 03:09 PM #7
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This is really nice to hear, glad things are getting better for you
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