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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-01-2013, 03:15 PM | #1 | ||
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Hi everyone,
I dont understand the theory behind taking medication and then once you feel better you begin to taper off the medication? But once, you're off the medication won't your symptoms come back or has your brain healed? Thank you! |
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05-01-2013, 03:22 PM | #2 | ||
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I think it depends on the medication and why you are taking it. Some people stay on medication for life, others for short periods of time.
When I stopped taking amantadine, I definitely felt much worse than when I was taking it. So after a month break, started up again, despite it giving me bad sleeps.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | anon22217 (05-01-2013) |
05-01-2013, 03:36 PM | #3 | ||
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Dear Mokey,
Thanks for your response. ARe you taking Amantadine for headaches? Also I saw that you're taking reversotal? Do you think this will help with headaches?Thank you! Quote:
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05-01-2013, 05:49 PM | #4 | ||
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Legendary
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Resveratrol is a general health supplement. It has no specific value to PCS.
Often, meds are prescribed to reduce symptoms like anxiety and depression so the patient can focus on healing, etc. This is especially true when the neuro or PCP does not have a strong understanding of concussions.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | anon22217 (05-01-2013) |
05-01-2013, 06:00 PM | #5 | ||
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Guest
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Do you think I should try prescription meds or just try to wait it out then?
More specifialy nortryptalin. Thank you Quote:
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05-01-2013, 06:42 PM | #6 | ||
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Hi Blue Hiroko,
Resveratrol acts as an anti-inflamatory and there is research that suggests that it can help counteract neuroinflamation which occurs after a brain injury. It is like having a lot of red wine in one capsule. It is also good for the heart (bonus). It can help the neuronic cell dysfunction which occurs after brain injury and it also an anti-oxidant. Anti-oxidants arevery important to brain health. You can get it in omega 3 fatty acids (fish oil) and vitamin C (among other things). Amantadine was recommended to me to break through the fog of brain injury, not specifically for headaches. It is thought to do at least two things that are helpful to injured brains: increase dopamine, which is a neurotransmitter (what makes a connection between neurons happen) and it is thought to promote healing. I find it makes a huge difference in my energy level and my ability to withstand noisy environments. These are still tough, seem easier to take when I am on amantadine. Hope things improve for you! Anti-
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | anon22217 (05-01-2013) |
05-04-2013, 11:20 AM | #7 | |||
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I am in the middle of coming off Cymbalta because:
a) I am recovering from PCS b) my mood is stable c) my pain has gone d) the drug has side effects Everyone has different, but I have stopped the medication because I only needed it on a temporary basis.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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"Thanks for this!" says: | anon22217 (05-04-2013) |
05-04-2013, 12:59 PM | #8 | ||
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Legendary
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Mokey,
Where did you find the information about Resveratrol and the brain ? All I have found is it is suspected of increasing oxygen levels and possibly strengthening mitochondria function.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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05-04-2013, 01:13 PM | #9 | ||
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Guest
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Dear mouse,
Thank you for your reply. I'm just curious how long do you need to be symptom free before coming off it? Thank you. |
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05-04-2013, 03:39 PM | #10 | |||
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I don't know, I suppose it depends on the person.
I have been symptom free for about 3 weeks, as long as I rest and avoid exercise. So the pain and symptom reducing qualities of Cymbalta were no longer needed. I do not have a history of depression, but my mood was low with PCS, so I am confident I can come off it and go back to normal. The main reason we agreed that I come off it was because it was upsetting my stomach.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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