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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-02-2013, 11:01 PM
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Hello everyone...Just wanted to drop in and let you know I'm still alive.
For those of you who don't know me, I'm Nick and I suffered a really bad mTBI in June of 2011. My life has been really hectic since then with my recovery being far from "par for the course". I've dealt with extreme brain fog and what I believe to be a continued decline in my cognitive symptoms. I still have the same problems I've always had but you know what, I'm finally happy. I've learned to just let go of what happened to me and accept what my life has become. Yeah, I'm a complete and total space cadet. It's hard for me to retain information, properly communicate half the time, my memory is shot and I couldn't tell you much of what happened yesterday. But you know what...I dont mind it at all. I'm a damn good father, I love my kids to death and they love me too. I always find a way to enjoy life and turn a positive into a negative. I have a good heart, I'm the best friend and boyfriend anybody could ever have. For the first time in almost 2 years I could say that I'm happy with where I'm at in life. I bared witness to the birth of my second born today. It was an amazing feeling to watch him come into this world and hold him for the first time. I'm living with a best friend virtually rent free in a huge house where I have my own room and my kids have their own room too. I picked up a moving job a couple weeks ago that pays REALLY good money. I could finally afford to buy a vehicle, new clothes, new cell phone, laptop, toys/clothes for my kids and I'm able to take my kids to fun places and my girlfriend out to dinner at a fancy restaurant. The job I have makes my symptoms maximize by 10X but its worth it to me. I'm traveling all over the United States to places I've never seen before. I love it. My boss likes me, I work with one of my best friend and nobody looking over my shoulder. I'm ecstatic with the direction my life is heading. Basically, I've learned to accept that I will always have problems from this injury for the rest of my life. I learned to work around some of the issues and utilize what I still have left. You can all do it too. I will leave you with this powerful scripture from the bible: Don't worry about anything. Pray about everything. I hope you all find peace within yourselves. One more thing...Thank you Mark for all that you've taught me. Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. Last edited by SpaceCadet; 05-02-2013 at 11:26 PM. |
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| "Thanks for this!" says: | chickenmonkeyrs (05-02-2013), cyclecrash (05-03-2013), DFayesMom (05-03-2013), greenfrog (05-03-2013), MiaVita2012 (05-02-2013), Mokey (05-03-2013), MsRriO (05-03-2013), NormaW (05-05-2013), poetrymom (05-03-2013), Su seb (05-03-2013) |
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05-02-2013, 11:05 PM
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Congrats Nick on the new baby
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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05-03-2013, 12:05 AM
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Thanks for updating, Nick! Congratulations on your new bundle!
Life marches on. New babies are wonderful reminders of this. So happy to hear of your peace. 
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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05-03-2013, 10:26 PM
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Congratulations on your new baby! Sure puts things in perpsective. Amidst suffering so much joy arrives!!
Enjoy each moment!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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05-04-2013, 06:40 AM
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So glad to hear that you are in such a good place! Congratulations on the new baby! Thank you for coming back and letting us know your good news!
All the best, CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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