Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-27-2012, 10:14 PM #1
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Default Falling Up?

For the past two days, I've had this constant feeling of falling upwards. Sounds pretty crazy, right? It's more noticable when I'm outside....I just feel like I'm gonna fall into the sky lol.

Anyone else experience this?
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 09-27-2012, 10:58 PM #2
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I know what you are talking about. I have always discounted it as just strange since it rarely lasts very long. I think it may be a sort of vertigo.
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Old 09-28-2012, 11:34 AM #3
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Default

I think I understand you also.

I used to have what I think everyone has had at times in bed, those little dropsy sensations like falling slipping down in bed.......but thats not it.

I will be lying there and just 'fall up', and the bed will shake, and my wife will wake and ask wth just hit, and I tell her its ok, go back to sleep, Im ok. It passes, Im ok, and go sleep again.

Its like the "wobble' I said I have sometimes when out with my dogs, I will be walking and not have the world go round but fall into myself, and mistep but not lose my balance or anythinng, just whoops, and stand still a moment and it passes, and focus returns and Im ok with the dogs standing there looking at me.

Hope you have good luck with your teeth guy - sadly Medical docs know nothing about dental abcesses, stay with a DmD, he'll do right by you, and take his meds faithfully til he says you don't need more...Oral infections can remain low-grade enough that they do and will cause many central problems in and of themselves, as well as systemic problems.
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Old 10-02-2012, 01:51 PM #4
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Default Me too!

I actually looked on this site specifically to look for a post about this! I think it's a kind of vertigo. I've been having it since this morning, though I was also a little dizzy last night. Now it's really bad. I thought all my physical symptoms were in the past and that I was on my way to recovering, but apparently not. Friday, I was bending over and I got an instantly terrible headache. I had that headache until today, but it's been replaced by this terrible spinning--feeling like you are falling upwards is a good way to put it! I also have ringing in my ears and this feeling of pressure in my face and behind my eyes. I'm just praying it goes away! I'm trying just to rest all day, so as not to aggrevate it. I am definitely not bending over again!
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Old 10-02-2012, 07:44 PM #5
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Re: "this terrible spinning--feeling like you are falling upwards"
and
"not have the world go round but fall into myself"
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Yes, one of the 'brain-spinning' experiences that I also experience.
It is for me very highly unsettling, particularly disturbing when in a car. Yet is the same sensation if I am standing, walking or seated.
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50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it."
1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm!
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Old 10-03-2012, 01:36 PM #6
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Default a type of migraine???

I talked to a friend last night who had several brain injuries years ago, and she suggested that maybe the dizziness I've been experiencing could be a migraine. It's possible. She had migraines that weren't even headaches. She would see smoke, then her words would start to slur, and then she'd start talking jibberish. I had migraines before my head injuries, and they've always been the same for me--I see sparklies, feel weird, then experience a searing brutal pain in my head, usually accompanied by terrible nausea and sensitivity to light. This most recent bout of dizziness, my head does hurt a bit, but not much. Instead, everything looks misty, my peripheral vision is kind of blurred, and then I have that falling upwards feeling. I also do have an increased sensitivity to light. Anyway, I'm feeling somewhat better today, so I'm just continuing my plan of resting, but if I continue to have this dizziness, I'm going to get some migraine meds! Just thought I'd share this possibility with others having the same problem!
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Old 10-16-2012, 12:06 PM #7
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Default Update on Dizzy Feeling

I was having a migraine, but the dizziness seems to be separate from that! I went to a neurologist and he thinks the dizziness/vertigo is caused by an injury to my neck sustained during the car crash that gave me my third concussion. He wants me to do physical therapy for it. This could be the answer, but I'm not sure, because I told him looking down or bending over seems to trigger the sensation, and he said he didn't think that would cause it and that it was more likely that any physical activity would trigger it. I have to disagree! Each bout of it seems to be triggered by bending over or looking down for too long. It's really hard not to bend over or look down, so I keep having it come back! Very unnerving! Just thought I'd share.
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Old 05-05-2013, 07:32 AM #8
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Smirk Wanted to update this old old thread!

My vertigo was not caused by a neck injury. It was caused by a constellation of concussion-related vision problems. When I look back at when the vertigo started, I usually say it started when I sprained my brain, because that is what it felt like! I did have a neck injury, but once it resolved through physical therapy, the dizziness remained. It was sensory integration therapy that cured my dizziness. Now the only time I get dizzy is when I'm doing certain exercises for my vision therapy to work on my convergence insufficiency, and it goes away within a few minutes.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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